eye sight getting worse???

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Tá mé breá
Regular Member


Date Joined Aug 2008
Total Posts : 140
   Posted 8/31/2008 12:22 PM (GMT -7)   
has anyone had issues with eyesight getting worse after a flare? I have astigmatisms and have needed bifocals since I was 10 (2 of my boys are the same) but my near sightedness was just slightly an issue. suddenly though, I have trouble seeing distances. I can hardly drive at night. I have no optical ins so I am bummed, but what can you do!
dx 2006 - autoimmune issues, arthritis, 01/2008 - myelofibrosis. as of 08/08 testing continues signs point to Lupus. (family history - mother RA/Lupus).

symptoms - malar rash, mouth soars (in and out), joint pain, extreme fatigue, migraines, heart pounding on light activity.

rx-cymbalta, propranolol, clonazapam, prednisone, progesterone cream, supplements - b6, b12, flaxseed oil, c.

"All we have to decide, is what to do with the time we are given" ~ Gandalf


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 8/31/2008 2:53 PM (GMT -7)   
Hi Mawmaw!
 
I had this issue a few years ago.  Wasn't sure why I was having so much trouble driving at night and I just didn't have sharp vision anymore.  Well, it turned out to be prednisone induced cataracts. 
 
How much prednisone are you on, and how long have you been on it? 
 
Have you talked to your rheumy about this or seen an eye doctor?  The eye doctor will be able to see right away if there are cataracts, or if you have inflammation in your eyes.  That can cause vision issues too.
 
Hope you get the answers soon!
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Tá mé breá
Regular Member


Date Joined Aug 2008
Total Posts : 140
   Posted 8/31/2008 3:57 PM (GMT -7)   
no the eye issues started before the pred. I've only been on the pred for a little over a week. I'll get the eyes tested. My mother was on Plaquinil and really had eye problems, had to switch her to methotrexate.

Marie
dx 2006 - autoimmune issues, arthritis, 01/2008 - myelofibrosis. as of 08/08 testing continues signs point to Lupus. (family history - mother RA/Lupus).

symptoms - malar rash, mouth soars (in and out), joint pain, extreme fatigue, migraines, heart pounding on light activity.

rx-cymbalta, propranolol, clonazapam, prednisone, progesterone cream, supplements - b6, b12, flaxseed oil, c.

"All we have to decide, is what to do with the time we are given" ~ Gandalf


SSDore9240
Regular Member


Date Joined Aug 2008
Total Posts : 56
   Posted 8/31/2008 4:10 PM (GMT -7)   
Marie,
Re: your moms probs and Plaq...were there distinct changes the eye dr could see or just a worsening of vision? Mine just keep getting worse and worse. When I am in a flare...crazy things happen with my vision.

Good Luck
31 year old mom of 1: SLE, UCTD, FM, Arthritis, Reynalds(?), Migraines, Alopecia, Neuropothy(L:Hand & Foot), Int. Bells Palsey, Costrocondritis(?), a bunch of other stuff I don't remember right now and even more labwork I dont understand! Patient at Johns Hopkins in Baltimore, MD.
 Plaquinil, Trazodone, Lidoderm, Percocet for now...I hate taking the meds!  Refusing any more Prednisone!

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