do I have sle ?

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matt321
New Member


Date Joined Sep 2008
Total Posts : 1
   Posted 9/2/2008 2:47 PM (GMT -7)   
In Feb. I had a lump on my forehead that wouldn't go away.  I made a appt with derm.  In the meantime I started getting bald spots on my scalp.  The Dr. did a biopsy and the diagnosis was a autoimmune disease.  My ana test has come back neg.  but in 2000 I had a false positive for syphylis.  Also small blister like sores on my hands and ears.  Could I have sle ?

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 9/2/2008 4:11 PM (GMT -7)   
Hey Matt,
 
Welcome to the forum.  Sorry to hear of your skin involvement.  SLE can present skin involvement, but it would also be showing up elsewhere in the body, attacking other organs.  The "S" in SLE means systemic, or "all of body".
 
What you might have instead of SLE is DLE.  Discoid Lupus Erythmatosis.  Where the disease only attacks the skin. 
 
More biopsies and blood tests will be needed to get a firm diagnosis.  Are you having any other symptoms that would lead to SLE?
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 9/2/2008 11:35 PM (GMT -7)   
Hi Matt,

Ginny gave you some good info. I just wanted to welcome you to the forum.

More info in the links at the end of my signature. I will say that you may have symptoms that you never thought to even mention to the doc. So reading here and in the links provided may provide you with info that will help you give your docs more symptoms.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


chevyrane
New Member


Date Joined Sep 2008
Total Posts : 5
   Posted 9/3/2008 1:59 PM (GMT -7)   

Good Day to Everyone!!!

I am a 28 year old female. I have been suffering for 3 weeks now with a red blistery rash (hives i believe) on my legs, bum, arms and stomach. Thought maybe it was an allergic reation to something i touched or ate... doc put me on reactine and predizone (not sure i spelled that right) i found that it helped, but symptoms come back as soon as drugs wear off. Along with that i have other symptoms, extreme tiredness, swelling of feet, hands and ears with red blotchy blisters that are real itcy, headaches ( i wake up and go to sleep with them - tylenol does not work) hair loss, loss of appetite, aching all over ~ stiffness in elbows, knees and hands, shortness of breath ( i am a smoker thought maybe i was getting a cold) and a cough that i can't seem to shake.

I haven't been back to the doctor yet, as i have been reading these forums for the last couple days trying to educate myself before my next visit. I heard that Lupus can run in the family, and was wondering since my grandmother and aunt (on my mothers side) have lupus would i be wrong to think that i could have the early signs of it???

I just know that this is not an allergic reaction - these symptoms are nothing like i have ever experienced before. I'm feeling so lost!!!!

Thank you for listening to me, and i appreciate all thoughts and opinions!

Chevyrane

 

 


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 9/3/2008 7:33 PM (GMT -7)   
Hi Matt and welcome and also welcome Chevrane. I hope both of you get some answers soon. Lupus can be a difficult disease to diagnose since its symptoms are present in so many other illnesses (lupus is known as the great imitator).

Matt, one piece of info you have is the false positive syphilis test which I remember reading can be present in lupus. Have you seen a rheumatologist yet? They are the specialists who treat lupus, but make sure you get one that specializes in lupus since not all are up to date on lupus (they also treat arthritis and other illnesses).

Please continue to ask any questions you have. We have a great group of supportive people here.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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Co-Moderator: Lupus and CFS Forums


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