Post Edited (okie) : 9/4/2008 7:02:10 PM (GMT-6)
I'm sorry to hear your bad news. I do pray that they find no lupus in your lungs, and that if you need a transplant, you get it taken care of sooner rather than later. I completely understand why you would feel down about that--but the good news is that your lung functioning is up to 29%, from 23%. Perhaps in the overall scheme of things, your doctor was less than impressed, but we have to take our victories as they come.
My mother was in a similar situation, so even though I don't know firsthand what you're going through, I can identify with it as a sympathetic observer.
You and your family will be in my prayers.
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
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Prayers from my house to yours. I agree that there is a victory there if your lung has improved. Hope that things will go well for you in your physical therapy.
Please keep us posted as to what is happening with you, and how you feel about it. Sometimes if we can just name a feeling and tell someone, it helps.
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Ok update, I got the spiral ct scan done it was a piece of cake but the blood thing was a little worse. it took 4 tries to get a vein with anything in it. Not that that is uncommon for me. He finally took it out of my hand with a butterfly needle.
So I feel better today. thank you all so much for your love prayers and support. Even you hippo! I won't know anything until probably monday. I will let you know though.
I do have to share an experience I had today with you though. Iwas running out of oxygen at the hospital. So they brought me out some. It was liquid oxygen which is not what I use. So when I went in the back I sat down while the lab tech was trying to explain what was going to happen. I had the o2 on my lap. All the sudden I felt what felt like burning on the inside of my thigh. I jumped up real quick! For those who don't know(like me) liquid o2 is like dry ice. The tech started laughing once she knew what happened. It didn't burn me or anything it was just that sudden jolt and not knowning what it was. So anyway You know when you are standing outside in the cold and the breath looks like smoke coming out of your mouth? As she starts explaining to me again what's going on I have this smoke coming up from between my legs for about 5 mins. She couldn't even talk while I'm setting there trying to fan the smoke away from me. It was somthing I will never forget!
anyway thank you all again for your love and support
Hi ya Bab's and Rosie, thanks for replying. Yeah it was pretty funny. I was hoping to get my results back today but I havn't heard anything. CT scan on thursday, tech said monday but . Oh well I'll call them tomorrow and see what is going on. I'm just going to believe that no news is good news. Than maybe I can get some more info on the hospital in OKC since I forgot the name of the place.
love ya guys, hope you are doing well