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rere7896
New Member


Date Joined Jun 2008
Total Posts : 14
   Posted 9/4/2008 11:54 AM (GMT -7)   
Hi everyone,
  I was just wondering if anyone has had phoresis treatment for SLE? I'm going to be admitted for a week and receive it for 5 days and then my cytoxan again right after. Just curious???
Thanks

Good luck to everyone and may God Bless you everyday.....

I'm currently taking atenolol, verapamil, ovcon (no cycle since 2000), prednisone, neurontin, cytoxan, folbic, diludad, loratab, demerol,(depending on severity of pain), promethazine, singulair, lasix, amitriptyline, baby aspirin, patanol --- I think that's it...

I have SLE, SVT, MVP, Sjogrens, Fibromyalgia, Neuropathy, migraines, Pleurisy, asthma, endometrosis, Reynauds -- think that's it as well....


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 9/6/2008 10:54 AM (GMT -7)   
Sorry Rere . . . I never heard of it . . . but am bumping up your post so someone might see it.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/1/2008 9:27 AM (GMT -7)   
Hi Rere,

I was wondering if you had your treatment yet? and the cytoxin? How are you coping? Are you feeling ok or having a hard time.

Just want you to know I was thinking about you.

Give us an update when you feel up to it.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


rere7896
New Member


Date Joined Jun 2008
Total Posts : 14
   Posted 12/10/2008 6:06 PM (GMT -7)   

Hey everyone,

   My insurance decided after leaving me in the hospital (being switched in the middle) for a week that they weren't going to pay for it. I had the vas-cath put in my neck and everything before they let me know. Come to find out it was lymphocyticplasmaphoresis and it's when they filter your lymphocytes and plasma kind-of like dialysis. Hopefully, as much as that vas-cath hurt I will be able to have that procedure done b/c I heard it really makes you feel better. As far as the cytoxan, sometimes I get sick and sometimes I don't. There is no way to tell when I will or won't b/c I don't really do anything differently it just happens. Sorry it took me so long to respond and thanks for asking.....

Jen


Good luck to everyone and may God Bless you everyday.....

I'm currently taking atenolol, verapamil, ovcon (no cycle since 2000), prednisone, neurontin, cytoxan, folbic, diludad, loratab, demerol,(depending on severity of pain), promethazine, singulair, lasix, amitriptyline, baby aspirin, patanol --- I think that's it...

I have SLE, SVT, MVP, Sjogrens, Fibromyalgia, Neuropathy, migraines, Pleurisy, asthma, endometrosis, Reynauds -- think that's it as well....


Melissa D.
Regular Member


Date Joined Aug 2008
Total Posts : 342
   Posted 12/10/2008 6:17 PM (GMT -7)   
Wow Jen, I'm sorry to hear your insurance denied the treatment! It amazes me that they have the authority to deny a treatment your doctor feels you need. I think the government needs to do something about these companies playing doctor/God. I have never heard of the medicine or procedure that you described either, if you're still curious about what it might have been like you might look it up on the Mayo Clinic, they have some great information about drugs. Here is there link. http://www.mayoclinic.com/health/drug-information/DR601811
 
I hope things get better; you are in my thoughts and prayers.
 
Melissa
Lupus - 1997   Fibro - 2001    Sjorens  -  2007   Raynauds  -  2008
Plaquenil, Imuran, Prednisone, Synthroid, Topomax, Effexor, Norco, Prilsec, Xanex, Elidel, Restasis

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