Plaquenil an eye test we might can do for ourselves

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Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 9/7/2008 1:43 PM (GMT -7)   
I found this test online that is easy for all of us to do online, without going to the doctor right away. Scroll down after you go to this site until a graph shows up with a dot in the center. Look at the dot with one eye at a time, and if the lines change, then you might need to see the doctor. But the instructions are there for you in the body of the site.

Check Your Eyes

Hester

<Edited to point to a page where the grid has been corrected.>

Post Edited By Moderator (Lynnwood) : 9/8/2008 1:31:56 PM (GMT-6)


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 9/7/2008 3:30 PM (GMT -7)   

hi Hester, Thanks for bringing up the chart. It's very important to keep and eye on your eyes (so to speak) The only problem I have with the chart is when I looked a the dot the second line to the left and the 4th line to the left both look like they are kind of messed up. with either eye or even both eyes. So Now should I go see the dr or does it look like that to you too? tongue

hugs

carol



 
Possible scleroderma.  stage 4 COPD,  Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 Did you ever know that your my hero?
 
 


Tá mé breá
Regular Member


Date Joined Aug 2008
Total Posts : 140
   Posted 9/7/2008 4:02 PM (GMT -7)   
ooh, could one of the mods put that in the resources folder for future reference? Please :)
43 yr old mother of 6 grandmother of 1 going on 2!
dx 2006 - autoimmune issues, arthritis, 01/2008 - myelofibrosis. as of 08/08 testing continues signs point to Lupus. (family history - mother RA/Lupus).

symptoms - malar rash, mouth soars (in and out), joint pain, extreme fatigue, migraines, heart pounding on light activity.

rx-cymbalta, propranolol, clonazapam, prednisone, progesterone cream, supplements - b6, b12, flaxseed oil, c.

"All we have to decide, is what to do with the time we are given" ~ Gandalf


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 9/7/2008 7:09 PM (GMT -7)   

So Now should I go see the dr or does it look like that to you too? tongue

No it did not look like that to me.  the lines had no problems. if it was me, I would go see the doctor.  but I am a worry wort sometimes.   I don't know how the lines could appear this way to you, when they appear perfectly straight and attached to me.  Especially if you are seeing the same thing even with both eyes.

Thank you for your response

Hester


Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin daily, multivitamin daily, Arthrotec 50mg twice daily, Meclazine 25 mg, as needed 4x daily, Hydoxychloroquine (plaquinil) 200mg twice a day, Metoclopomide 10 mg, 4x daily, Doxepin 50 mg one cap 4x day, Metoprolol 100 mg daily, Levothyroxine (synthroid) 50 daily, Amlodipine 5mg daily, Crestor 10 mg one tab daily, Lisinopril 40 mg, one tab daily, Omeprazole (prilosec) 40 mg daily, Plavix 75mg daily, promethazine 25mg x4 daily, Restasis one drop in each eye every 12 hours
 


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 9/7/2008 7:26 PM (GMT -7)   

Ok thanks, that is weird. I'll have my bro look at it tomorrow first. I'm due to have my eyes checked anyway. Who knows maybe it's my computer screen too. thanks for the link

hugs


 
Possible scleroderma.  stage 4 COPD,  Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 Did you ever know that your my hero?
 
 


alexsal
New Member


Date Joined Sep 2008
Total Posts : 18
   Posted 9/7/2008 7:35 PM (GMT -7)   
I have taken plaquanil for about two years now. Now they added xanax because I have anxity I am 38 years old aqnd feel like I am 60.. It is getting to the point where i have to have help getting up. and thats when I eant to get out of bed,..this site is amazing because at least you guys understand whet we are going threw.. Cause we dont look sick....thanks for listening,,, Alex

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 9/7/2008 7:36 PM (GMT -7)   
I did some computer magic (my profession) on the grid. There really are a couple of problems that have nothing to do with your eyesight. You may or may not see them depending on the quality and type of your monitor, and your monitor settings.

The problems are drop-outs in the 2ond & 4th verticals left of the center dot and the 2ond horizontal line above the dot. There are also random problems where the lines intersect. Seeing these drop-outs with either or both eyes is not a problem. (I will build a correct grid and put it in the "Lupus Resources" folder in the next few days.)

If you see other problems - curving lines, etc. , especially if the problems differ from eye to eye, then you should see an ophthalmologist (eye diseases) immediately. An optometrist(prescribes glasses but is not a MD) is not qualified to do the Visual Field Test that you need.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

Post Edited (Lynnwood) : 9/7/2008 8:57:53 PM (GMT-6)


alexsal
New Member


Date Joined Sep 2008
Total Posts : 18
   Posted 9/7/2008 7:38 PM (GMT -7)   
I also have to have to get my eyes checked every 6 months

okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 9/7/2008 7:42 PM (GMT -7)   

Hey Lynnwood, thanks for putting the magic together. That was exactly what I was seeing. wink

Alexsal, welcome to the group. I don't know if you are m/f alex so I hope you post a message and tell us about yourself. That way we can all welcome you to the group.

hugs

carol


 
Possible scleroderma.  stage 4 COPD,  Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 Did you ever know that your my hero?
 
 


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 9/8/2008 6:14 AM (GMT -7)   
I did some computer magic (my profession) on the grid. There really are a couple of problems that have nothing to do with your eyesight. You may or may not see them depending on the quality and type of your monitor, and your monitor settings.

It is good to know this Lynnwood.  I might have missed these things simply because my eye sight has never been very good, especially in my right eye.  I am glad that you are going to build us a better grid, and that we will always have it in the lupus resources folder.
 
I want to take the plaquenil because it helps so much for me.  but not at the risk of losing my sight more than I already have.
 
Thank you
Hester
Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin daily, multivitamin daily, Arthrotec 50mg twice daily, Meclazine 25 mg, as needed 4x daily, Hydoxychloroquine (plaquinil) 200mg twice a day, Metoclopomide 10 mg, 4x daily, Doxepin 50 mg one cap 4x day, Metoprolol 100 mg daily, Levothyroxine (synthroid) 50 daily, Amlodipine 5mg daily, Crestor 10 mg one tab daily, Lisinopril 40 mg, one tab daily, Omeprazole (prilosec) 40 mg daily, Plavix 75mg daily, promethazine 25mg x4 daily, Restasis one drop in each eye every 12 hours
 


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 9/8/2008 12:43 PM (GMT -7)   
Hi all,

I've created a corrected eye test grid and put the link to it in the Lupus Resources. I also edited the original post to point to the corrected page, and here it is again for easy access.

Check Your Eyes

Cheers,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 9/8/2008 5:38 PM (GMT -7)   

thanks so much Lynnwood.  It is really a lot of help to me, to know that if I worry that plaquenil will do something to my eyes, I can always go to this place you created and check my eyes.  i really do over-react to things, and get paranoid about it if I feel powerless to do anything on my own.  this way we are all empowered who takes plaquenil. 

One of the hardest things for me about Lupus is losing so much of my independence.  Learning to do the things that really have to be done, and letting the rest go, is to give up my independence.  My neighbor cuts my grass for me now.  I used to cut it by myself.  I would still be too sick for two days after, but I could still do it.  I would clean the house really good, and then cut the grass, and then lay on the couch for two days when it felt like I had the flu.  today I cannot even do this.  Just minimal time in the sun has an effect.

I "want" to drive a car that is clean inside and out.  But I don't "need" to have a clean car.  Learning what is needed as opposed to what is wanted, has been difficult.  My house used to be so clean, and now it is neat, sort of, but not clean.  Not the clean the way I used to keep it.  So much energy I used to have, and this is no more. 

But I am learning to be thankful for the little things.  Thankful that lupus did not hit me the hardest until my kids were grown.  I got my babies raised first, and was there for most of my grandchildren.  The great grandbabies will never know that part of me because I can no longer take care of babies.  But at least I had the ability for a long time.

Having sjogren's was just one more thing to add to the list.  and i didn't want to add anything else.  still i am grateful that I waited til I was 62 to be diagnosed with it.

your creation for us has allowed me to get back some of that empowerment, and independence.  It is greatly appreciated.

Hester


Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin daily, multivitamin daily, Arthrotec 50mg twice daily, Meclazine 25 mg, as needed 4x daily, Hydoxychloroquine (plaquinil) 200mg twice a day, Metoclopomide 10 mg, 4x daily, Doxepin 50 mg one cap 4x day, Metoprolol 100 mg daily, Levothyroxine (synthroid) 50 daily, Amlodipine 5mg daily, Crestor 10 mg one tab daily, Lisinopril 40 mg, one tab daily, Omeprazole (prilosec) 40 mg daily, Plavix 75mg daily, promethazine 25mg x4 daily, Restasis one drop in each eye every 12 hours
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 9/8/2008 5:45 PM (GMT -7)   
Thanks Lynwood!!! You are such a blessing here!!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


alexsal
New Member


Date Joined Sep 2008
Total Posts : 18
   Posted 9/8/2008 7:17 PM (GMT -7)   
HELLO ALL MY NAME IS ALEX I AM 38 YEARS OLD AND I'M A MOTHER OF TWO BOYS. I HAVE SYSTEMIC LUPUS,DEPRESSION,DIABETES,AND HEART PROBLEMS. MIGRAINS. MY HUSBAND IS VERY SUPPORTIVE AND LOST AT THE SAME TIME. HE IS GETTING ALOT BETTER.THANK YOU FOR WHOMEVER CAME UP WITH THIS SITE IT IS A LIFE SAVER
SYSTEMIC LUPUS,ASTHMA,DIABETES,DEPRESSION,MIGRAINS


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 9/8/2008 7:22 PM (GMT -7)   
Hi Alexsal !!

Welcome to the forum.

Make sure to start a new topic and introduce yourself. Most members won't see your post here and they will want a chance to say hello and welcome you.

Glad you found us!! YES! This site is definitely a blessing! The site founder/administrator's name is Peter. God bless him!!

It helps to fund this site if you click on the ads. Lots of us aren't in a position to donate . . . but each time we click on an ad, it brings a couple pennies to help out.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 9/9/2008 2:17 AM (GMT -7)   

I am new to Alex, and I could not think at first to tell this group about myself.  I have always had a problem when people told me to tell them a little about myself.  My life is so boring most of the time that there is nothing i can think of to say.   After awhile I got the hang of it, read other people's posts, and learned to find something to say about myself.

In June 1998 I had open heart surgery and my boring days were over for the most part.  I do not wish to be defined by my illnesses, but at the same time, I do not wish to deny them either.  In October 2007, I had a heart attack.  i was just getting wound up about my masters degree program that i wanted to take.  gave it up however.  It was too stressful.  Couldn't handle it.  With all these grandbabies running in and out of my house, my life really isn't all that boring anymore.  And those babies are enough for me.  all that I need to inspire me to take another step in a good direction, are these babies my children keep presenting me with.  Can't babysit them anymore, but I sure can love them.  My youngest great granddaughter is 2 1/2 months old and beautiful to me.

Hope your day has been good to you as you read this

Hester


Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin daily, multivitamin daily, Arthrotec 50mg twice daily, Meclazine 25 mg, as needed 4x daily, Hydoxychloroquine (plaquinil) 200mg twice a day, Metoclopomide 10 mg, 4x daily, Doxepin 50 mg one cap 4x day, Metoprolol 100 mg daily, Levothyroxine (synthroid) 50 daily, Amlodipine 5mg daily, Crestor 10 mg one tab daily, Lisinopril 40 mg, one tab daily, Omeprazole (prilosec) 40 mg daily, Plavix 75mg daily, promethazine 25mg x4 daily, Restasis one drop in each eye every 12 hours
 

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