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I first went to the doctor because I was swollen with a lot of fluid. My nephrologist did a kidney biopsy and lupus activity was evident on the biopsy. I also had a positive ANA, but all other blood tests were normal. Over the next several years more and more symptoms started showing up; sun sensitivity, rashes, memory problems, mouth sores, joint pain, etc... Between my symptoms and biopsy I had no trouble getting a diagnosis. I have been given a DX of lupus by 3 different nephrologists and 1 rheumy. My ANA goes up every time it is checked, it started out at 1:320 and it's now 1:1280, but all other blood work for lupus is still normal. Hope this helps.
Lynnwood, Co-Moderator: Lupus ForumSLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, ValtrexLinks: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions
I am hoping that someone has not already asked this. I did not read all the responses before I replied to you. afraid I would forget to ask you the question.
What is barrett's esophagus? what are its symptoms?
Hi, I was diagnosed with a mild form of inflammatory arthritis and RA, after a very long time of symptoms that I never even recognized as anything at all until the pain got so bad I could hardly raise my arms above my head or get up from a chair, and the fatigue was incredible. I had a lot of other symptoms too but really didn't know what was wrong for a very very long time.
Went to GP then referred to a Rheumy. My GP did a Inflammatory Profile. She ran two different ones a month apart and the last one was higher than the first one. I took both to the Rheumy appointment and he also did the testing himself. His results were negative. But from all the symptoms and the previous testing he put me on Plaquenil and I was living on Ibuprophen and low doses of Predisone. That was three years ago next this month. He did not want to put a Lupus diagnosis on paper for insurance purposes and I agreed.
The Plaquenil did wonders and I am doing quite well. I go to the Rheumy every six months to monitor the medication and blood work once a year. I have flares when I get stressed out, extrememly fatiqued, or a major changed in the weather, but for the most part am very thankful I am doing quite well. I read a lot of the posts and consider myself very fortunate not to be in constant pain all the time like a lot of you. I do have more good days than bad.
I really like the forum and it has helped me cope in so many ways. I do not post very often. Just the reading is very informative. Thanks again to everyone for all the posts, they are very helpful and hopeful. AnnieRae
Sorry. we got off topic again. did not purposely do this. I will try to do better.
Keep in mind that I had a diagnosis of barretts after an edoscopic exam and biopsy. Had 2 more after the initial one and due to get one this fall.
I don't want to have Barrett's esophagus. Already have a cancer doctor who fusses at me for not getting in to see him often enough. What he and other doctors do not seem to realize is that I can't afford more than two medical trips a month. and right now Lupus is the most important, because it is Lupus making me sick at the moment, not breast cancer. the cancer center was so good to me when they were giving me my daily radiation therapy. They believed me when I told them I had lupus, and treated me different because of it. When my skin started to blister, they said Lupus was causing it, and stopped my radiation treatments for a week.
I just want the medicare part D to treat all its patients the same, in all states. All people do not get well after 14 days of prilosec. some people never stop having heart burn, and acid reflux. I assume that the hiatal hernia has a lot to do with this.
And I don't want to have that esophagus test either. My mother had that done. i remember. I am too chicken hearted maybe to add another thing to my list of medical stuff. But I might have to.
Thank you so much for your response