Rheumy wants me to start Methotrexate

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purplerose652
Regular Member


Date Joined Mar 2006
Total Posts : 124
   Posted 9/8/2008 11:42 PM (GMT 0)   
Hi everyone,
 
I saw my Rheumy today and he thinks it is time for Methotrexate. I have been reluctant to take it for awhile now. I have asthma and bronchitis alot and I am afraid the metho might make my lungs worse. If anyone has any advice or is taking it and can tell me your experience I would really appreciate it! :)  Thank you!
Take Care,
 
Renee
 
"Grace by which I stand."
 
Fibromyalgia, IBS,Gerd, Scoliosis, & Costochondritis, Lupus
 
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 9/8/2008 5:40 PM (GMT -7)   
Hi Renee,

I did take MTX for about a year. I started at 15mg and went up to 20. I took it once a week. It never made me feel nauseous but I did feel sleepy the next day or so. It actually helped my fatigue and did help some with my pain.

I did NOT have lung issues though. I really don't know if it would have any side affect that way . . . but your doctor should really know about your risks. You could also ask your pharmacist.

Hopefully some of the others will know. What is the purpose for taking it? (symptom-wise)

Hang in there!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


purplerose652
Regular Member


Date Joined Mar 2006
Total Posts : 124
   Posted 9/8/2008 5:49 PM (GMT -7)   
Hi Rosie,

I have been on plaquenil now for almost 2 years and it has helped a little, but my DR feels it is worth a try to see if I can get more relief from the pain and fatigue. He said that in 25 years of practice he has never seen it cause lung problems but it is a possibility. I find that kind of confusing when it is also used for Lung cancer. I was hoping he would just give me something to help me sleep. I take vicodin at night when the pain is so bad I can't sleep. But it doesn't always help that well. I tried a sleeping pill (can't remember the name) but it just made me really drowsy the next day....I didn't like that. I just think if I was sleeping better I would feel better.Thank you for your help! Have a good night! :)
Take Care,
 
Renee
 
"Grace by which I stand."
 
Fibromyalgia, IBS,Gerd, Scoliosis, & Costochondritis, Lupus
 
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 9/8/2008 5:56 PM (GMT -7)   
Hey Renee,

Good sleep IS really important (and sometimes hard to come by!).

I agree that the sleep really is a big issue. My rheumy said that he would address sleep issues before other symptoms because bad sleep really can cause the pain and fatigue. * sighhhhh *

Have you tried taking benadryl (Diphenhydramine hydrochloride). This is the PM in Tylenol PM. I buy generic and only use it "as needed". Sometimes I'll use it three nights in a row and sometimes only on occasion. I try not to use it all the time because I'm afraid it will lose its effectiveness (not sure that's a legitimate concern). But . . . it seems (in my case) that good sleep has resulted in more good sleep. In other words . . . once I got a few nights of good sleep, I had more energy, did more physically (careful not to overdo, of course) and then slept better w/o any benadryl.

Just a thought.

I'm sending you some sleepy dust to help you sleep tonight!! I used to pull it out of my pocket and toss it at my kids as I tucked them in. They would block their eyes!!! LOL!! But then they'd always laugh!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


purplerose652
Regular Member


Date Joined Mar 2006
Total Posts : 124
   Posted 9/8/2008 6:53 PM (GMT -7)   
Thanks, Rosie. I never thought of that. Since I take the vicodin I never thought of Tylenol PM. But I guess I could just take Benedryl alone. I will ask my Pharm. if it is safe with all my other meds. I really don't want to take the MTX. But I am afraid I will have to change Rheumy's if I don't. He seems to be getting a little annoyed with me because I won't listen to him and take it. He won't even consider any other meds until I try the MTX. I really don't know what to do.....
Take Care,
 
Renee
 
"Grace by which I stand."
 
Fibromyalgia, IBS,Gerd, Scoliosis, & Costochondritis, Lupus
 
 


alexsal
New Member


Date Joined Sep 2008
Total Posts : 18
   Posted 9/8/2008 7:04 PM (GMT -7)   
HELLO Renee I know that im new to this site and mind you GRATEFUL fo have found it. I have been taking the metho for about 1 1/2 years I have asthma,lupus,diabetes, nad some heart problems. I have never had any problems with metho the asthma. I do though have some problems with the med making my sugar go high but nothing I haven't been able to control..Good luck,Alex

jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 9/8/2008 7:13 PM (GMT -7)   
Hi Renee, I have been on plaq since 2004 it works well for my fatigue but I needed more help with my joint pain. Doctor added NSAIDS but needed even more help, I am also on Imuran which is more for my gut and back in Feb I started MTX, it took a while to kick in but has helped my joint pain especially with my lower back and hip pain. I was also reluctant to start it but was at my wits end with the joint pain. I hope it works well for you
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Darvocet (as needed) and magic mouthwash (for mouth sores)


purplerose652
Regular Member


Date Joined Mar 2006
Total Posts : 124
   Posted 9/8/2008 7:24 PM (GMT -7)   
Thank you Alex and Stacie. I appreciate all your replies and I am starting to feel a little better about taking the MTX. I too am SO grateful to have found this site. Everytime I need some advice someone is always there to help. It also is so nice to know we are not in this alone. Even though I really wouldn't wish this DD on my worst enemy. Take Care!
Take Care,
 
Renee
 
"Grace by which I stand."
 
Fibromyalgia, IBS,Gerd, Scoliosis, & Costochondritis, Lupus
 
 

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