In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
Clickable Links: Lupus Resources Lupous.Org Lupus Criteria (4 of 11) Lupus Chapter Locator
Lynnwood, Co-Moderator: Lupus ForumSLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, ValtrexLinks: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions
I am now on a maintenance dose of 5 mg. of pred. and will stay on this as it is the only way I can still work. I am a nursing instructor, and if I don't take pred. I can't walk due to extreme muscle weakness, yes, like the Boston Marathon was just run level of weak.... and I fall. All due to my SLE, which was first suspected to be MS, and then, double whammy, my neuro specialist wonders that I could have a very rare mixed patho of MS/SLE. My type of lupus is CNS, and without a daily dose, was flaring every 3 months, falling 3 times a week, and going from 40/30/20/10 mg tapers every other month. This dose is the minimum that gets me by, and I am always yucky, but some days less malaised than others. High dose prednisone makes me feel healthy, but at what cost? My bone density went down and I doubled in size......... I guess it's all about balance. I drop things alot and have carpel tunnel because of nerve inflammation, not scar tissue. The nerves swell when I flare, not from repetitive strain injury, but the end result is the same. I can't hold on tight, and I drop stuff. I have a wrist brace that helps, too. They are $15 at Walmart and worth it.
ps. due you spin? I mean yarn p.p.s. i am almost a gramma, too, 6 more weeks, Avery.