Lynnwood, Co-Moderator: Lupus ForumSLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, ValtrexLinks: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
Clickable Links: Lupus Resources Lupous.Org Lupus Criteria (4 of 11) Lupus Chapter Locator
Lynwood, when I spoke to my Rheumie about what was going on with me, he told me I was stressed out and that is why I was having those problems. At the time I did have stress, who doesn't?, but it wasn't that.
How do you know what to think anymore with the doctors? Everyone has a different answer and it drives me crazy.
Sorry I can't give you any advice, I hope you can find some answers soon to your problems.
Hi Lynnwood, I just ran accrossed this when I was reading about physicians for what ever it's worth I thought of your question.
Good luck to everyone and may God Bless you everyday.....
I'm currently taking atenolol, verapamil, ovcon (no cycle since 2000), prednisone, neurontin, cytoxan, folbic, diludad, loratab, demerol,(depending on severity of pain), promethazine, singulair, lasix, amitriptyline, baby aspirin, patanol --- I think that's it...
I have SLE, SVT, MVP, Sjogrens, Fibromyalgia, Neuropathy, migraines, Pleurisy, asthma, endometrosis, Reynauds -- think that's it as well....
Sometime in 2007, my two grandsons were here, both adults, to spend the weekend. Josh asked me to call in a pizza and he would go get it and pay for it. So I went to the phone, but could not dial the number. so I decided to try to dial the number in my room. Instead of dialing the phone number, I set down at my computer and started playing a computer game. Josh got irritated and called the pizza in himself, and left to go pick it up. I don't remember his leaving or being gone. Finally I was acting so strange that my grandson called 911. On the way to the hospital i was medically unresponsive. At the hospital I was medically unresponsive. they did every test they could think of and found nothing wrong. they at first thought that I was having ministrokes, because sometimes I could think better than at other times. but that was not the case. I don't remember much about the hospital part until three days later when I came to myself, and could interact with my family when they came to visit. My two daughters stood beside my bed at the hospital. Never leaving, until they knew I was out of danger.
Everytime I have talked to a doctor about missing time, blank places in my brain, i have been referred to mental health. I think that this is all a doctor knows to do, when his medical training does not tell him what is wrong. this is the reason I asked about PTSD before. PTSD can cause one to have missing time, and blank places. the human mind can deny what is too traumatic to deal with to the point that entire segments of our life can come up missing. One of the things I am diagnosed with in the mental health area, is PTSD.
I think I could have been misdiagnosed in several ways by the mental health docotors that I saw. When that lady, can't remember her name, talked about slurred speech, stuttering, etc., the other day, it started me to thinking about my own brain disability, and wondering if I have been misdiagnosed. those diagnoses however got me the SSD that I so badly needed. But today I am 62. they can't take all of my social security benefits away from me. too old.
Maybe we can be vocal today, and maybe not help ourselves, but we might help help others in our path along the way, to benefit. Doctors need to listen to us. all of us. all the time. I had a neurologist at the hospital when this incident occurred. she diagnosed me with altered mental state. this is all she could take of. all the tests were normal. I never followed up with her. got sort of angry at her. she told me I had RA, but that the numbers were still out on whether or not I had lupus. Now I have had a blood test that was off the charts that verifies lupus. but what about all those years no one believed me. even though two doctors had diagnosed me, they didn't believe it.
Sorry to rattle on for so long. i have been thinking about this misdiagnosed for a few days.
It is different from the MRI and my insurance (believe it or not) did cover it...... SPECT scans show more "brain function" than the MRI b/c it mostly shows grey and white matter. I would ask for it if you have NEVER had one or even if it's been a while. VERY GOOD TEST!!!!!!!! My rhuemy ordered it but any doctor can order it for you.