My test results/UPDATE

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okie
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Date Joined Dec 2006
Total Posts : 2818
   Posted 9/9/2008 3:33 PM (GMT -7)   
Ok I don't want to sound all freaked out or anything. My blood work hasn't come back yet but my spiral ct scan did. The nurse called and said they found 2 spots on my lungs. I have no idea what that means. It could be anything from benign, scar, pnemonia, some AI problem heck I don't know. At first she didn't seem to concerned. I asked her if I needed to come in and asked me if I wanted to come in before my sleep apnea test or after. which is like 6 weeks from now. I said I don't know. Is it somthing I need to get in there sooner for? So she said she would talk to the doctor and get back to me. Well when she called she said She is trying to find a place that will do the sleep study ASAP so I can have that done before I go into the office. She said he told her I need to come in sooner than later. I really hate this. Why do they have to play these games. Why can't they just say hey it's this or that or we need to check out this or that? mad
Anyway I'll let ya know what I find out
hugs


 
Possible scleroderma.  stage 4 COPD,  Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 Did you ever know that your my hero?
 
 

Post Edited (okie) : 9/12/2008 12:03:40 PM (GMT-6)


MJLD
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Date Joined Jul 2007
Total Posts : 1048
   Posted 9/9/2008 4:03 PM (GMT -7)   
((((((((OKIE)))))))))))))
I'm sorry you have to wait! It is beyond frustrating and scarey! You are in my prayers. Judy

smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 9/9/2008 4:12 PM (GMT -7)   

(((OKIE)))

Try to stay calm, hopefully it will turn out to be nothing serious. Please keep us posted ok?

 

Connie


 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.Thyroid Disease ,RA
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.


PattyLatty
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Date Joined Mar 2006
Total Posts : 2570
   Posted 9/9/2008 4:53 PM (GMT -7)   
Carol,

Don't you think that if it were real serious he wouldn't want to wait for a sleep study? Let's hope for the best. If it were pneumonia he'd put you on antibiotics right away. I just can't imagine what it might be and hope it's not scleroderma. Hang in there Carol. Bless your heart, I'll bet you get tired of hearing me say that at least once a week. Darn it, I get mad and I know you do too, having to hear all this negative news all the time. Once again, funny girl, you'll have us all on pins and needles till we hear from you. The good news is that they aren't dragging their feet.

(((((Hugs and more hugs))))))

Pat
Lupus, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


jhmom
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Date Joined Oct 2004
Total Posts : 2244
   Posted 9/9/2008 5:05 PM (GMT -7)   
(((( Carol )))) I pray they will get you in soon, so you won't have to wait too long. It's so frustrating to wait... we wait for a dx, we wait for test results, etc. Hang in there sis, you are in my prayers. :-)
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Darvocet (as needed) and magic mouthwash (for mouth sores)


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 9/9/2008 5:28 PM (GMT -7)   

Thanks Stacie, Patty, Connie, and Judy, I'm sure it's not cancer anyway. Well at least I would hope not since he didn't call me himself and tell me to get my butt in there. My biggest worry is it's going to be somthing autoimmune that will cause me to not be able to get a transplant. Than again I have had pneumonia so many times I could have scaring from that. I don't know if that would show up as a (spot). I'm not gonna freak out though. It takes to much energy smilewinkgrin . Anyone else ever gotten spots on their lungs? just curious.

Love ya all

thanks again ladies


 
Possible scleroderma.  stage 4 COPD,  Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 Did you ever know that your my hero?
 
 


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 9/10/2008 7:59 PM (GMT -7)   
Ditto to Patty's post!

((((((((( Carol )))))))) Will be thinking about you while you wait. Sorry you have more to worry about . . . mom had spots and it was scar tissue. But it wasn't simple to figure that out. I hope that's all they are seeing on your scan.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

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hippimom2
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   Posted 9/11/2008 12:26 PM (GMT -7)   
(((((((Carol))))))) I wish you didn't have to wait to find out what the doc thinks. Sometimes waiting can be harder than knowing. I pray it's nothing that will keep you from getting the transplant. Hang in there. Lots of love and hugs being sent your way.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
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okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 9/11/2008 12:56 PM (GMT -7)   

Thanks Hippi and Rosie, Right now I'm really frustrated. I can't get the sleep study done until the 22nd and I can't get a pulm. appt until the 30th. I talked to the nurse  and said I don't want to wait until the 30th to find out what's going on with the spots on my lungs. She said she would have the dr. call me as soon as he comes in. I got a call about an hour ago and she said she was calling to check on me. That the dr. doesn't usually come in on thursday because he teaches at the hospital. I said well can't you tell me anything? She just said No ma'am! You're right hippi waiting is the worst thing. You'd think these dr. would know that. mad   So of course now I'm thinking the worst because the nurse won't tell me anything. I've had nurses tell me things lots of times. So now I don't have a choice but to wait. You know I can handle what ever they tell me but they have to tell me somthing so I can deal with it.

anyway I'm done ranting

thanks again love ya


 
Possible scleroderma.  stage 4 COPD,  Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 Did you ever know that your my hero?
 
 


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 9/11/2008 6:22 PM (GMT -7)   
Carol, I hope that doctor calls you first thing in the morning. If he doesn't, I'd call him. He has to know how concerned you are and what this could mean to you and I'd bug him to death till I got a straight answer from him. I don't like waiting for the mailman! much less for the results of a medical exam. I'll try to call ya in the morning. I'm kind of going in circles these days and don't know which way is up so if I forget, knock me on the head.

Sleep tight & we'll talk tomorrow.

Love ya,

Pat
Lupus, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 9/11/2008 7:39 PM (GMT -7)   
Carol,
I know this sounds pretty stupid, but have they done a recent TB test as part of your recent testing? I had a spot of TB on my lungs and it appeared with the onset of my autoimmune symptoms and liver problems. Since I've been on Anti TB therapy, my basal temperature has risen from 95-96 to a normal consistent 98.3 or just slightly lower. My temperature hasn't been normal for 15 years, since the onset of my disease.

They say the endocrine caused the liver problems, and who knows what attacked the endocrine. Possibly it was the TB I had, it sure seems like it since I"m doing better.

I Hope that it is just some kind of infection that can be cleared with antibiotics. If you haven't had a recent TB test I would talk to the doc about it. They just don't even think about it half the time. I came into the hospital with pneumonia and I had to remind them I had a positive TB skin test, and then they all freaked out and they put me in quarentine. Of course, I'd been walking around hacking and been to my doc repeatedly and they knew I had positive TB test and had had the lesions in my lungs before. Even my great pulmonologist (he was very good) did not read the chart thoroughly and notice I said I had positive skin test. I brought it up in conversation and he freaked. The masks went on fast.

There's some other less serious infections that can mimic TB, other strains of mycobacterium. Anyway, its a good thing to get out of the way. Also, you could get it going to the pulmonologist office or possibly from dirty equipment. They also thought I had legionnaires for a while.

I know you have been going through so much and not getting any answers, or conflicting ones. I hope that they get this sorted out for you soon. You can get a TB test at the health dept, you know, where they inject the stuff just under your skin and then you come back three days later and they look at it. They should be doing testing, but many docs and hospitals just don't feel that Americans have a problem with it. Heck, they were supposed to give me anti TB drugs before giving me steroids and they didn't. Steroids can make the TB become active and I can be a health risk.

Anyway, heres some ((((Hugs)))) and some *fresh air* and I hope you can get some rest and some answers. Know I'm praying for you.
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
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okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 9/12/2008 11:11 AM (GMT -7)   

Hi all, Marji, no that is not a silly question. Actually my pcp mentioned taking a tb test but than before I left the office she had forgotten about it. I'll ask the pulm to do one whenI go in. Patty, thank you so much for calling and checking on me today. It helps to know people really do care.

Ok so anyway the pulm office called. They sent my report over to an oncologist. I have 2 spots one on each lung. Good news is one is diffinently benign. The other one is (not sure yet). So if one is benign I'm just going to beleive they both are. Now what is causing it is another story. Anyway I have a pulm. appt next wenesday at 4 pm so I will hopfully get some more info. I just hope it's nothing that will cause a problem with a transplant. There are a lot of people here with a lot worse problems than mine and I just want to say thank you so much for taking the time to support me. It means a lot. I think it's time for a nap! tongue

You folks around Texas keep your feet dry!

love ya guys carol


 
Possible scleroderma.  stage 4 COPD,  Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 Did you ever know that your my hero?
 
 

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