Lupus and Pregnancy

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New Member

Date Joined Feb 2007
Total Posts : 16
   Posted 9/9/2008 8:42 PM (GMT -6)   
Hello, I just found out that I am about 6 weeks pregnant.  My doctor took me off cellcept about 5 months ago so that my husband and I could try to have a child.  Two weeks before I found out I was pregnant he told us that we need to quit trying and get back on all my meds (little did i know that I was already pregnant). 
Today we went to my Rheumy and he put me on imuran, plaquenil and raised my prednisone to 20 mg.  I am already leaking quite a bit of protein and I am just really scared of the outcome for myself and the baby.  I guess my questions to everyone would be:
What is the normal (SAFE) dosage of Imuran and Prednisone during pregnancy?
Has anyone every had kidney invlovment in an acitve flare and have a safe pregnancy?
Thanks so much and I appreciate everyone taking the time to read and answer my question.
Amber :)
Prednisone 10mg, Lisinopril 40mg, Lovastatin 40mg, Plaquenil 200mg, CellCept 2000mg, Lunesta (whenever needed), DHEA
Phl 4:13 "I can do all things through Christ which strengtheneth me".

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 9/10/2008 3:49 PM (GMT -6)   

Hi Tulip,

I just noticed that there weren't any comments to your question.  Sorry about that. 

Imuran and Prednisone are the safest meds to be on during pregnancy. I have been told that if I ever got pregnant, I could stay on my current meds, which happens to be Imuran and Prednisone.  I don't know what doses are deemed safe and what aren't safe.  But I think prednisone is fine regardless of the dose. Redrose could have some great information for you about her pregnancy and the meds she was on.  Hopefully she sees your posting.

I do know that a pregnancy during active lupus will often present some challenges.  You just have to be really "on things" during the 9 months. You might also be put on bed rest if things get bad. I hope and pray that your experience is a good one.



I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Regular Member

Date Joined Aug 2008
Total Posts : 431
   Posted 9/10/2008 6:09 PM (GMT -6)   

Hey Amber,

I have no idea what happened to the first reply I made to this topic.  Hopefully I will not have sent two posts to the same topic.

I have never been pregnant while taking Lupus meds, so I do not know what to tell you about it.  I can understand your worries though.  Hopefully someone will respond that can help you more.

I apologize for not responding before.  I really had no advice to give to you about it, so didnt respond to your topic.  but that is no excuse.  I could have given you moral support.


Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
aspirin daily, multivitamin daily, Arthrotec 50mg twice daily, Meclazine 25 mg, as needed 4x daily, Hydoxychloroquine (plaquinil) 200mg twice a day, Metoclopomide 10 mg, 4x daily, Doxepin 50 mg one cap 4x day, Metoprolol 100 mg daily, Levothyroxine (synthroid) 50 daily, Amlodipine 5mg daily, Crestor 10 mg one tab daily, Lisinopril 40 mg, one tab daily, Omeprazole (prilosec) 40 mg daily, Plavix 75mg daily, promethazine 25mg x4 daily, Restasis one drop in each eye every 12 hours

New Member

Date Joined Aug 2008
Total Posts : 7
   Posted 9/15/2008 1:14 PM (GMT -6)   
Hi Amber.
Congrats on the pregnancy. I know how you feel when i was that early on i was so scared about the meds i was taking and if it was safe for the baby . but i just had to trust my doctors. I mean they know more then i do.. Right now i am only on 5 mg of prednisone .My high risk ob and kidney doctor said that if i am feeling comfortable i.e no joint pains then i can stay in that dosage. and if there is any cause for concern then they can further evaluate the dosage. And i am on 50 mg of imuran. Both my doctors have told me that these are very safe for the baby. I am not currently taking anyother meds except for a blood pressure medication that is also safe.
Right now i am 13 weeks pregnant and my lupus is in remission and i am feeling very good.. and the high risk ob says that some people even get better when they are pregnant. just depends on the person i guess.
Dont worry because with good prenantal care and with the help of doctors and nurses your pregnancy should go very well. What i am doing is really staying on top of things and reporting anything that is out of the norm to my doctors. =)

New Member

Date Joined Jun 2008
Total Posts : 6
   Posted 9/18/2008 9:54 AM (GMT -6)   
Hi Amber,

I'm can relate to you, because i have lupus with kidney involvment..I'm not pregnant .I'm on the same sort of medication, Imuran, i often wondered if it is safe..i did some research, my doctors told me its ok, just need extra supervision..

just follow your doctors,remain postive and it'll all work out,good luck and congrats..

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