fat, flaring and frustrated!

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MJLD
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Date Joined Jul 2007
Total Posts : 1048
   Posted 9/10/2008 4:53 PM (GMT -7)   
I am suddenly flaring like you would not believe!  I am tired beyond belief, weepy, hurting and so frustrated!  I HATE LUPUS!  I want out of this bloated, painful, hard to manipulate body!  I saw my doc today.  Gotta go up on the cellcept, restart the plaquenil, change to demadex and zaroxolyn! I've got to see a wound care specialist again!   I'm sick of managing, swallowing and dealing will meds!  I'm sick of doctor's appointments, tests, medicaid, etc...Sorry for the rant!  I'm am weary!  JUDY

jhmom
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Date Joined Oct 2004
Total Posts : 2244
   Posted 9/10/2008 6:31 PM (GMT -7)   
((((( Judy ))))) I am sorry you are flaring smhair I pray all the med changes will help you feel better sooner rather than later! I'm there with ya, sick of docs, taking meds, hurting, physical limitations, etc. Rant all you want, that's what we're here for! You are in my thoughts and prayers.
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Darvocet (as needed) and magic mouthwash (for mouth sores)


FW
Regular Member


Date Joined May 2007
Total Posts : 477
   Posted 9/10/2008 6:53 PM (GMT -7)   
Judy,
I am sorry that you are feeling so bad. Hope you feel better!
Take care,
Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Prilosec, Nasacort, Prozac, Ambien CR.
Daily Supplements: Multi-vitamin, Calcium, B-100 Complex.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 9/10/2008 7:07 PM (GMT -7)   
I'm sick of managing, swallowing and dealing will meds!
 
Me too Judy;)  I only realized today what a good thing I did for my mother while she lived.  I managed her meds, and took them to her when she was supposed to take them.  Went with her to every doctors appointment that she had.  Just simple things can be missed so much.  Today I can't remember to take my meds when they are supposed to be taken.  and I am sick and tired of having to do it.
 
Maybe we can have a sit in and demand that more and better research for Lupus to be done.;)  I took so much for granted when I still had energy and strength.  When I could get up off the bed without pain.  When i could drive my car, sit in the seat and wait on my kids to get out of school, without pain.
 
I agree that you should rant all you want to, that this is what we are here for.  you need to express this anger, get it out of you with us, and then let it go hopefully.  Let us be your sounding board.
 
Hester
Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin daily, multivitamin daily, Arthrotec 50mg twice daily, Meclazine 25 mg, as needed 4x daily, Hydoxychloroquine (plaquinil) 200mg twice a day, Metoclopomide 10 mg, 4x daily, Doxepin 50 mg one cap 4x day, Metoprolol 100 mg daily, Levothyroxine (synthroid) 50 daily, Amlodipine 5mg daily, Crestor 10 mg one tab daily, Lisinopril 40 mg, one tab daily, Omeprazole (prilosec) 40 mg daily, Plavix 75mg daily, promethazine 25mg x4 daily, Restasis one drop in each eye every 12 hours
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 9/10/2008 7:38 PM (GMT -7)   
(((((( Judy ))))))))

My dad used to say: "If you can do something about your problems THAN DO IT!" but "If you can' do anything about your problems, than don't worry about it".

The only reason I bring this up . . . is that I got sick of the pill buffet and the medical hamster wheel (one doctor appointment after another). And I asked myself . . . "What CAN I do for myself?" . . . . for me, the answer was that I could very gradually lose weight and I could do my physical therapy exercises when possible. I really dug deep and decided that I would change one thing at a time in my diet to at least start a downward trend.

I'm so sorry you are so miserable. But my method of weight loss was "no deprivation". I started buying only whole grain bread and pasta. Healthy fats. and I force myself to eat more fruits and vegies. Those are not hard things to do . . . but they really quieted my appetite for junk.

Just a thought. I'm certainly not trying to lecture . . . just offering a way to gain back some power in your life.

You are a really strong woman . . . and you've helped a lot of folks here . . . I'm so sorry you are in such a rough patch right now.

(((((((((((((( Judy ))))))))))))

Hugs for you sis!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1548
   Posted 9/11/2008 5:17 AM (GMT -7)   
Hi Judy. I'm still waiting for the magic lupus pill. While I'm wishing, also include energy and pain control in this pill. I'm so sorry you're flaring. ((((Hugs)))) Love, Butterflake

Dx: SLE ('05), depression, diabetes, fibromyalgia, gerd, sleep apnea, hypertension, IBS Tx: CellCept, plaquenil, prednisone, lisinopril, actos, lipitor, nexeum, prozac, seroquel, celebrex, actonel
prn: arthritis tylenol, neurontin, promethazine, ambien.  multi vit, C, flaxseed oil, acupuncture
Donna
 


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 9/11/2008 12:48 PM (GMT -7)   
(((((Judy))))), I think you have described how many of us feel on really bad days. There are days I am so mad at this disease a want to scream. I got angry and stubborn and didn't fill my pill boxes this week, so I made myself more miserable by having to dig through twenty different bottle of pills every morning, afternoon and night trying to find the right ones to take. I finally filled my pill boxes again today.

I think it is so hard to try to lose weight while you are actively flaring, so try to be kind to yourself and get through this flare. You really have to take care of yourself since, if I remember right, you were just in the hospital not too long ago. When your flare is over maybe we can start that weightloss topic on the forum for everyone who is trying to lose weight.

You are in my thoughts and prayers.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



MJLD
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Date Joined Jul 2007
Total Posts : 1048
   Posted 9/11/2008 1:29 PM (GMT -7)   
Thanx Hippi and everyone! I have been in the hospital 4 times since June! My last admission was right before Gustav. She told me yesterday I would be headed back in a couple of days if things don't turn around pretty swiftly. Rosie...I didn't take your advice as lecturing. I appreciate it.

One of my big issues is deconditioning. I am more so now than ever. And my heart rate has stayed over 100 for months now because of severe anemia. It just seems like a vicious cycle. I know there are people with worse things going on. I feel guilty to whine. I just felt so overwhelmed yesterday. You'd think we'd get used to it after a while. But, I told my doc yesterday...I just can't adjust to feeling fine one day and being able to do some things all though i'm still limited and then suddenly and for no apparent reason, i'm on my back!!! Blaaah!!!! There's just no way to plan or predict and i'm sick of it. As i'm sure you all are! Sorry guys! JUDY

Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 9/11/2008 3:24 PM (GMT -7)   
I feel guilty to whine.
 
I don't think what you are doing is whining.  You only reflected what all of us feel sometimes.  It is good for me to hear you speak about these thing.  It helps me to make an effort to keep a fact sheet, so that when the really bad day arrives, as it always does,  I can look back at my log and see maybe if there is anything leading up to my bad days.
 
I need to hear you speak as you have.  I don't feel so guilty myself about feeling sorry for myself, because you feel the same way I do on bad days.
 
I have concluded that we have no power over lupus, but we do have control over how we respond to our symptoms.  Your anger was needed.  It is much better for any of us to feel anger, than some other negative emotions.  anger empowers sometimes.
 
take care
Hester
Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin daily, multivitamin daily, Arthrotec 50mg twice daily, Meclazine 25 mg, as needed 4x daily, Hydoxychloroquine (plaquinil) 200mg twice a day, Metoclopomide 10 mg, 4x daily, Doxepin 50 mg one cap 4x day, Metoprolol 100 mg daily, Levothyroxine (synthroid) 50 daily, Amlodipine 5mg daily, Crestor 10 mg one tab daily, Lisinopril 40 mg, one tab daily, Omeprazole (prilosec) 40 mg daily, Plavix 75mg daily, promethazine 25mg x4 daily, Restasis one drop in each eye every 12 hours
 


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 9/11/2008 5:23 PM (GMT -7)   
Judy, I agree with Hippi, that we've all walked in your shoes and have felt unbearably sick and tired of having lupus, and we've also all come here and ranted about it. It's so hard Judy, and I'm sorry you're going through it. No one but those of us who have chronic illnesses can imagine how difficult this journey is. I hope that the new meds kick in quickly and that you don't have to go into the hospital again, and that you start feeling better emotionally too.

You're lucky to be able to take cellcept. I wish I could take more and consider it my miracle drug. I can only take 500 mg a day and even that little bit is a help. I don't know know about you, but my emotions always spiral down when I flare. Sometimes I don't know how I'm going to make it through one more day. But somehow I do. It's usually those days that this forum means the most to me. And it's also those days that the forum gets the biggest and longest rants out of me and my friends here come to my support because they know what I need and especially because they know what I'm going through.

Hang in there friend and let us know how do with your new meds. I hope and pray you feel better.

((((((Hugs)))))))

Pat
Lupus, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


joinery
Regular Member


Date Joined Oct 2007
Total Posts : 323
   Posted 9/11/2008 6:14 PM (GMT -7)   
Judy, I'm sorry you are feeling like this it can be so hard to cope with but remember your flare wont last forever. How we can all relate. Hope you feel better soon. Debbie
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
                Panic Attacks,Osteopenia,Thyroid  
  Reglan,Protonix,Synthroid,Plaquenil,Quinacrine,Flexeril,Zetia,Zoloft,Xnanx,Celebrex,Abuterol,  
  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     
 
 
 
 


MJLD
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Date Joined Jul 2007
Total Posts : 1048
   Posted 9/11/2008 11:49 PM (GMT -7)   
Thanx guys. Do you guys get weepy when you flare? Maybe it's the hormone factor! Judy

AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 9/12/2008 6:14 AM (GMT -7)   
Judy . . . I think part of the weepy feeling is when we feel powerless. I do everything I can to empower myself. For me, that means things like:

taking my important questions and info in writing to doctor appointments so I don't just lose my voice in there . . .

it means finding a way to use my recliner time productively when possible (I knit, crochet, craft . . . its become such a blessing . . . I make most gifts now, even for a wedding- afghan

positive self-talk, and lots of other little positive things. Even stocking the pantry with healthy food is empowerment.

(((((((((( Judy ))))))))) YES . . . I do go thru periods of weepyness!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 9/12/2008 6:14 AM (GMT -7)   
Do you guys get weepy when you flare?
 
I don't cry much.  I can count on one hand maybe two, the number of times I have cried in my life.  so when the rheumy asked me if I had ever cried and had no tears, I did not know how to answer him.  Mostly I beat myself up.  Looking for a reason to blame myself for the major (to me) flares that I have.  If I caused it, then I have control over it, and do not feel so powerless over my life.  This isn't realistic, and I am learning to not do this.
 
All of you seem to know your lupus symptoms by thier medical names, and I don't.  I don't even know if I could remember them medically even if I tried.  I don't talk much to my family about Lupus either.  It is just more stuff to them about Lupus, and Lupus is an old story to them, or so it seems.
 
When this flare started the middle of April of this year, I was sick.  Really sick.  and it has only been a little over two months since I asked for plaquenil and got it.  And then the blood tests that were so high.  and the relief that Lupus diagnoses, (again) and plaquenil brings to me.
 
i have got to learn to be pertinent.  Find some way to describe my symptoms maybe than the one that I use.
 
In the midst of this being so sick every day, one of my children asked me to babysit for the entire weekend.  Denial.  I think it is easier for them to deny my illness than to face the Potential future without me in it.
 
Hester
Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin daily, multivitamin daily, Arthrotec 50mg twice daily, Meclazine 25 mg, as needed 4x daily, Hydoxychloroquine (plaquinil) 200mg twice a day, Metoclopomide 10 mg, 4x daily, Doxepin 50 mg one cap 4x day, Metoprolol 100 mg daily, Levothyroxine (synthroid) 50 daily, Amlodipine 5mg daily, Crestor 10 mg one tab daily, Lisinopril 40 mg, one tab daily, Omeprazole (prilosec) 40 mg daily, Plavix 75mg daily, promethazine 25mg x4 daily, Restasis one drop in each eye every 12 hours
 


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 9/12/2008 6:49 AM (GMT -7)   

Judy,

I got caught up in my own response to flares and didn't respond to you directly about your question.  but I did speak to it from where I am, emotionally, during flares.

I am still so new here, that I really do not have much advice to offer.  I learn slowly, so it will take me some time of listening before I can remember all the stuff others talk about on this forum.

I had a father who had me under the car at four months pregnant.  He was teaching me what to do if my engine locked up.  crying was not an option to my father.  I learned that lesson well.  and I am so grateful that he taught me so many things that I really did need to know.

Without those lessons learned from my ex-marine father, I would probably be crying all the time;)  I was overwhelmed by this last lupus flare that started in April.  I had just had a heart attack in October, they wouldn't give me plaquenil, or arthrotec for the pain.  At my wits end, and pretty sure I would have been crying, if crying had been an option.

Hester


Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin daily, multivitamin daily, Arthrotec 50mg twice daily, Meclazine 25 mg, as needed 4x daily, Hydoxychloroquine (plaquinil) 200mg twice a day, Metoclopomide 10 mg, 4x daily, Doxepin 50 mg one cap 4x day, Metoprolol 100 mg daily, Levothyroxine (synthroid) 50 daily, Amlodipine 5mg daily, Crestor 10 mg one tab daily, Lisinopril 40 mg, one tab daily, Omeprazole (prilosec) 40 mg daily, Plavix 75mg daily, promethazine 25mg x4 daily, Restasis one drop in each eye every 12 hours
 


Trying2BFree
Regular Member


Date Joined Oct 2005
Total Posts : 251
   Posted 9/12/2008 6:53 AM (GMT -7)   
Judy, rant away!  We all know those feelings and sometimes just letting them out makes us feel better.
 
And yes, I do get very weepy.  I've been on a roll this week....poor Dh, I cry if he says the slightest thing to me.
Jeannie 
SLE diagnosis 10/05 now changed to RA 3/06, Endometriosis 5/05, PCOS 1990
Meds: Metformin ER 1500mg (PCOS); Loestrin BCPs (Endo); Methotrexate 15mg (RA); Metanx 5mg (RA); Orencia 750mgs (RA); Lunesta 2mg (as needed); Prevacid


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 9/12/2008 7:17 AM (GMT -7)   
Judy, yes I get weepy when I am flaring badly and sometimes I feel I have very little control over it. I cried more when I first got sick due to frustration and grief and guilt that I couldn't do as much with my kids. When it happens now, it seems almost involuntary and it usually just happens when I am really sick, like you are right now. I think it is both a physical and emotional response to the flare when my body has reached its breaking point.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



MJLD
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Date Joined Jul 2007
Total Posts : 1048
   Posted 9/12/2008 3:03 PM (GMT -7)   
I went today for wound care on my leg and I spoke with the physical therapist about trying to recondition myself and really what she said just echoed you, Rosie. She said if I can walk for 5 minutes, do it every day and increase by a minute every week or whatever I can tolerate. She said consistency is the key to reconditioning. She also advised me to make those small life style changes that I can do and every week add
another lifestyle change. She also said keeping a food journal and an exercise journal helps.

It's kind of funny. I used to be a nurse and I really know these things, but it's a different story when you're on the other side of the bedrail!
Thank each one of you for being real and sharing your painful "stuff" with me! Love ya, Judy

MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 9/12/2008 4:04 PM (GMT -7)   
Hey! I just wanted to share this. It has comforted me. If you get a chance, go to youtube and type in Timothy Freeman The Other Side of Broken. It's a beautiful song! Judy

Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 9/12/2008 4:42 PM (GMT -7)   

I went to the youtube.com and listened to the song.  It is really good.  Must be astounding for Christians.  made me think of the Indian who lives in Canada, and with whom I talked when I first arrived here.  Wondering if he is Christian.  many Indians are. I can't remember his name or his tribe.  shame on me.  but that's me can't remember much of anything unless it has been around for a thousand years.

I believe that there truly is another side of broken for all people no matter thier color, creed, or national origin.  And that other side often leads me out of some very dark places.

Thank you for sharing this site.

Hester


Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin daily, multivitamin daily, Arthrotec 50mg twice daily, Meclazine 25 mg, as needed 4x daily, Hydoxychloroquine (plaquinil) 200mg twice a day, Metoclopomide 10 mg, 4x daily, Doxepin 50 mg one cap 4x day, Metoprolol 100 mg daily, Levothyroxine (synthroid) 50 daily, Amlodipine 5mg daily, Crestor 10 mg one tab daily, Lisinopril 40 mg, one tab daily, Omeprazole (prilosec) 40 mg daily, Plavix 75mg daily, promethazine 25mg x4 daily, Restasis one drop in each eye every 12 hours
 


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 9/12/2008 5:19 PM (GMT -7)   
Yes, Judy, I do get weepy!
Lupus, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 9/12/2008 11:20 PM (GMT -7)   
Judy, I hope you are feeling better. I feel your pain. I have gained so much weight and the docs told me they won't do anything much more for me until I go to rehab and document attempts to exercise. They don't understand that with my liver and endocrine conditions along with meds, I get insaitable, ravenous hunger. It's awful. Today, I had diet protein smoothie. It sat well on my stomach, filled me up, and now I'm going to try doing that. I'm actually going on a very strict diet now because I have to do something. I have no energy to go to phys rehab. and they don't understand. I understand, and I'm not having it as bad as you, but I'm so sick of it all. I'm having to cut out red meat now too because I think I'm getting some encephalopathey (a liver thing). Well, I really understand some of it though probably not so deeply, but just the whole steroid thing. Anyway, take care and know i'm sending good vibes your way.
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 9/13/2008 4:22 AM (GMT -7)   
 I have gained so much weight and the docs told me they won't do anything much more for me until I go to rehab and document attempts to exercise.
 
This to me is cruel Judy.
 
The first time I took plaquenil, I was also taking prednisone.  I did the same thing as you...........gained huge amounts (for me) of weight.  I had been skinny all my life, and my neighbor told me I was swelliing up like a pumpkin.
 
When this flare started, the weight began to decrease.  Lost 26 pounds, but starting to gain it back now.  I think this was a good universe lesson for me.  for the first time in my life I knew how it feels to be unable to lose weight.  while on prednisone I went from a size seven to a size twenty pretty quick.  I craved popcorn even more than I craved cigarettes.  I understood finally what it means to be overweight and be unable to stop eating to lose weight.  I never understood why my mama could not cut back on food and lose weight.  I was cruel to my mama.
 
Lucky for me at this time when I was so big, my neighbor gave me some of her clothes to wear.
 
I wish there was something I could do to help you lose weight.  Some people are simply ignorant.  They would withhold your "treatment"  to make you lose weight?
 
I will send prayers your way and ask that you be given something to ease your burdens.
Hester
Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin daily, multivitamin daily, Arthrotec 50mg twice daily, Meclazine 25 mg, as needed 4x daily, Hydoxychloroquine (plaquinil) 200mg twice a day, Metoclopomide 10 mg, 4x daily, Doxepin 50 mg one cap 4x day, Metoprolol 100 mg daily, Levothyroxine (synthroid) 50 daily, Amlodipine 5mg daily, Crestor 10 mg one tab daily, Lisinopril 40 mg, one tab daily, Omeprazole (prilosec) 40 mg daily, Plavix 75mg daily, promethazine 25mg x4 daily, Restasis one drop in each eye every 12 hours
 


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 9/13/2008 9:34 AM (GMT -7)   
I am starting today trying to make some changes.  As Rosie said, there are some things that I can do.  Exercise would be extremely difficult for me right now.  I'm having alot of joint pain and that mind numbing fatigue!  I was wondering if anyone has ever used one of those exercise bands?  I might try that.  Judy

okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 9/13/2008 10:51 AM (GMT -7)   

I have to start doing an exercise program for my lungs. I'm not looking forward to it but if it helps then I'm game. I used those bands years ago but I didn't keep up with it. I guess like anything you have to be motivated. But you are in luck we can all motivate you with cyber power!

Hey I tried to find the youtube thing. I couldn't find it anywhere. do you have a link I could click on for it? I spent 20 mins. trying everything I could think of but no luck confused .

Hang in there hun

love ya carol


 
Possible scleroderma.  stage 4 COPD,  Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 Did you ever know that your my hero?
 
 

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