red bumps on face

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lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 669
   Posted 9/10/2008 8:07 PM (GMT -7)   
I just got back from vacation (too bad it wasn't a vacation from pain and fatigue, sigh) and among other flare signs and symptoms now, I seem to have broken out with red bumps, for lack of a more technical term, on my face across the cheeks.  It kind of looks like pimples or bug bites, (they are not all the same size) but don't act like either (nothing to squeeze out (sorry) and no itching.  I do't think it looks much like the classic malar rash - just not that inflamed - but since I'm flaring am wondering.....possible connection? 
Lucy 
diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; CEBV 2005; UCTD (dx limbo) 2007
meds:  occasional low dose xanax for sleep, artificial tears w/ ointment at night, ibuprophin (none of which manages the problems very well!)
 
We cannot avoid the birds of sadness flying over our heads, but we need not let them make nests in our hair. 
       ~~ Chinese saying as quoted by Helen Nearing


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 9/10/2008 8:19 PM (GMT -7)   
Hi Lucy,

Its really hard to say . . . but there are a couple links at the end of my signature that might help. "4 of 11" will show you how they dx Lupus.

Sorry your meds aren't helping enough.

Do take a picture of your rash. It may be interesting and helpful to the doctor at your next rheumy appointment. Also document your symptoms.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


lucysgd
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Date Joined Jun 2008
Total Posts : 669
   Posted 9/11/2008 6:13 AM (GMT -7)   
Hi Rosie,
Thanks for the reminders to document...I see the rheumy in 2 wks. The bumps are better this morning - seem to be receding, so they only lasted 3-4 days. Wasn't really a rash, nor were they raised "patches" - so i don't know what to think, based on the 4 of 11 criteria. Guess I'll just be glad they are going away!
Lucy
diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; CEBV 2005; UCTD (dx limbo) 2007
meds:  occasional low dose xanax for sleep, artificial tears w/ ointment at night, ibuprophin (none of which manages the problems very well!)
 
We cannot avoid the birds of sadness flying over our heads, but we need not let them make nests in our hair. 
       ~~ Chinese saying as quoted by Helen Nearing


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 9/11/2008 12:32 PM (GMT -7)   
Hey Lucy,

That's why we take pictures. Let the doctor decide what the skin issue is.

I thought of one other thing. Make sure that you don't wear ANY makeup at your rheumy appointment. They can get quite a bit of information just from your bare skin. Be freshly showered, but no moisturizer, no makeup, no lipstick. No creme rinse in your hair. No hair product. Sometimes we can really hide our sick hair and skin. The doctor can get some good clues if we don't hide them.

Just a thought.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 669
   Posted 9/11/2008 1:48 PM (GMT -7)   
I appreciate the thought, Rosie - though I may scare a few folks, including myself, LOL. I hear what you're saying though, and it can't help to disguize the evidence. I will be brave - even to the point of no moisturizer! ;-) Thanks so much for your input!
Lucy
diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; CEBV 2005; UCTD (dx limbo) 2007
meds:  occasional low dose xanax for sleep, artificial tears w/ ointment at night, ibuprophin (none of which manages the problems very well!)
 
We cannot avoid the birds of sadness flying over our heads, but we need not let them make nests in our hair. 
       ~~ Chinese saying as quoted by Helen Nearing


mygrljes
Regular Member


Date Joined Mar 2008
Total Posts : 110
   Posted 9/11/2008 5:06 PM (GMT -7)   
Hi Lucy,

That's exactly how my malar rash always starts out. The very first time I had it my rheumy told me it was not, but a few days later I saw her again and the bumps had spread open. She took one look at me and said, "That's a lupus rash!".
Robin
 
dix: lupus sle Jan. '99, hypo-thyroid Mar. '06
rx: pred. 5mg/day, plaquenil 200mg/day, levothyroxine .112mg/day, premarin .45mg/day, methotrexate 7.5mg/week, folic acid 1mg/day
 
 
Also a wife and mother of three.


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 9/11/2008 5:35 PM (GMT -7)   
Were you in the sun on your vacation? If so, could the sun have precipitated this rash? I once had my face break out like sandpaper and it ended up being an alergic reaction to the sun, but was all over my face. Sounds like yours is more like a malar rash or lupus rash. I hope you get photos and keep taking them if the rash changes. Let us know what your rheumy says. I'd be interested in knowing. And, I hope it goes away!

Pat
Lupus, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 669
   Posted 9/11/2008 7:32 PM (GMT -7)   
Hi Robin & Pat - I was out in the sun a little bit - we were in GA and it was too hot to stay out long - but we did walk on the river parkway in the sun - and while I had sunglasses on (big ones) I forgot to put sunblock on. The bumps came on slowly over the next few days - reached a certain level that I found mildy alarming, and then began dissipating. I tried to get a picture - but it really didn't show much today, and I'm afraid the Dr. will think I'm a hypochondriac if I take that in. My face tends to be red anyway - I'm a fair skinned, freckled redhead.

Robin, when you say the bumps spread open....do you mean it became like a solid patch? These things seem to just be going away. And Pat - I have noticed that my face feels very rough - kinda sandpaperish from time to time and I've been trying to figure out why. I'm assuming you had redness with the rash you described. Does Lupus change the texture of your skin? I've been assuming it's from aging (I'm 54).

Thanks for the help, Ladies - it means a lot!
Lucy

Thanks
diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; CEBV 2005; UCTD (dx limbo) 2007
meds:  occasional low dose xanax for sleep, artificial tears w/ ointment at night, ibuprophin (none of which manages the problems very well!)
 
We cannot avoid the birds of sadness flying over our heads, but we need not let them make nests in our hair. 
       ~~ Chinese saying as quoted by Helen Nearing


mygrljes
Regular Member


Date Joined Mar 2008
Total Posts : 110
   Posted 9/12/2008 3:56 AM (GMT -7)   
Lucy,
 
Yes, they became a solid patch. Sometimes, when I spend a little too much time in the sun, I will get just the bumps and then they go away after a few days. It doesn't take long for me to be in the sun too long; maybe 10-15 min. It could be because of the walk you took. Don't be afraid to take walks, though, they're good for us. Just get yourself a nice wide brimmed hat. Another thing I do is use facial moisturizer with sunblock in it. I sometimes forget to use sunblock, too, and since I put my moisturizer on every morning that works as a good back up.
 
take care
Robin
 
dix: lupus sle Jan. '99, hypo-thyroid Mar. '06
rx: pred. 5mg/day, plaquenil 200mg/day, levothyroxine .112mg/day, premarin .45mg/day, methotrexate 7.5mg/week, folic acid 1mg/day
 
 
Also a wife and mother of three.


lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 669
   Posted 9/12/2008 8:30 AM (GMT -7)   
Hey Robin -
I've been reading old posts about malar rash and I guess it can take many forms. Your description is helpful. I think it is possible that I just have a mild form of rash that is worse some times more than others. Some people described theirs as a blush that doesn't go away. So my thinking of a malar rash in terms of it only being a very dark red color in a solid patch across cheeks and nose was uninformed. I'm going to start paying more attention to my face and get those pictures right away when it acts up.


Thanks for the hat and moisturizer tips, too - very helpful!
Lucy
diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; CEBV 2005; UCTD (dx limbo) 2007
meds:  occasional low dose xanax for sleep, artificial tears w/ ointment at night, ibuprophin (none of which manages the problems very well!)
 
We cannot avoid the birds of sadness flying over our heads, but we need not let them make nests in our hair. 
       ~~ Chinese saying as quoted by Helen Nearing


Baybreeze
Regular Member


Date Joined Oct 2005
Total Posts : 315
   Posted 9/14/2008 9:39 AM (GMT -7)   
I have little red bumps along with redness across my face pretty much all the time, though I don't know if it's lupus related or maybe hormonal. Mine are not pimples either. Many years ago, when I got my first facial rash, it was very red on my cheeks and across my nose bridge. Then it became a bit raised and had plaquey-like patches in areas. When I saw a Derm, the first thing he suspected was lupus malar rash. But since then i've never seen a derm, just a rheumy over the past several years. But I always have the redness across that area and many times have red bumps, but I really have no idea what it could be from.....maybe I have Rosacea..

lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 669
   Posted 9/14/2008 11:08 AM (GMT -7)   
I guess I'm wondering the same thing right now....rosacea...or lupus rash?  My sister has been dx'd w/ rosacea - hers got pretty bad - and her face is always much redder than mine - though she has no symptoms of the autuimmune thing. 
 
Since I started looking at pictures of lupus rash, I've come to realize that I may have been mis-diagnosed with ringworm (large circular thing on my neck under my jaw, and nowhere else - urgent care doc) and a few years ago  I had a huge ulcer on my hand, certain it was cancer, it was so crater like....but couldn't get into the derm for 3 weeks, so in the meantime I applied vitamin E - which took care of the problem and it was gone when I saw the derm (never to return). Also have had small infections/ulcers in my nail beds - which is what sent me back to a rheumie over a year ago (in conjunction w/ the pain&fatigue sx).
 
It's just hard right now in diagnosis limbo....I hate to dismiss something relevant (as I have done in the past) but I don't want to be driven crazy by every little thing that may have a connection.  As I have learned more, I realize that I have probably been dealing with this for quite a few years.... with quite a few different symptoms and I want the mystery solved and treatment to help me feel better....like yesterday!!!  confused
diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; CEBV 2005; UCTD (dx limbo) 2007
meds:  occasional low dose xanax for sleep, artificial tears w/ ointment at night, ibuprophin (none of which manages the problems very well!)
 
We cannot avoid the birds of sadness flying over our heads, but we need not let them make nests in our hair. 
       ~~ Chinese saying as quoted by Helen Nearing


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 9/23/2008 9:38 AM (GMT -7)   
lucysgd said...
I appreciate the thought, Rosie - though I may scare a few folks, including myself, LOL. I hear what you're saying though, and it can't help to disguize the evidence. I will be brave - even to the point of no moisturizer! ;-) Thanks so much for your input!
Lucy

I thought the same thing the first time I recieved this advice.  the make up is easy.  i don't wear it much anyway.  but my hair.??  Catastrophe.  My hair is very long and without moisturizer it will be interesting to say the least.  I might scare people too. yeah Don't know if I can get it combed without moisturizer.  But I plan to follow this advice. Pin it up all tangled and such if i have to, for every little bit helps I think.
 
Wrote it down again in my journal/symptom log.
 
Thanks for the reminder
 
Hester
Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin daily, multivitamin daily, Arthrotec 50mg twice daily, Meclazine 25 mg, as needed 4x daily, Hydoxychloroquine (plaquinil) 200mg twice a day, Metoclopomide 10 mg, 4x daily, Doxepin 50 mg one cap 4x day, Metoprolol 100 mg daily, Levothyroxine (synthroid) 50 daily, Amlodipine 5mg daily, Crestor 10 mg one tab daily, Lisinopril 40 mg, one tab daily, Omeprazole (prilosec) 40 mg daily, Plavix 75mg daily, promethazine 25mg x4 daily, Restasis one drop in each eye every 12 hours
 

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