Pain Management Doctor

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momtothree78
New Member


Date Joined Sep 2008
Total Posts : 5
   Posted 9/16/2008 6:40 AM (GMT -7)   
Has anyone on this board ever been to a pain management doctor?  I am just wondering what it involves, I am going on Thursday and am a little nervous not knowing what to expect.  I am currently taking hydrocodone for the pain associated with Lupus and now my doctor says he can't prescribe this anymore and I need to see a pain management doctor.  Any feedback would be greatly appreciated.

painwithgrace
New Member


Date Joined Sep 2008
Total Posts : 2
   Posted 9/16/2008 8:19 AM (GMT -7)   
This probably means that your primary care doctor doesn't have the expertise and comfort level to follow you long-term if you are going to be taking pain medicines. They have probably referred you to a pain management doctor so that the new doctor can evaluate you and offer some alternatives to pain medication. My experience has been that some pain doctors are comfortable with long-term prescribing of narcotics, and that others work with you to offer other kinds of medicines, procedures, or behavioral methods to manage pain long-term. Pain doctors vary widely in their training, expertise, and philosophy for long term management of pain. Please don't feel like you are a failure since your doctor is referring you elsewhere. Try to be open-minded about what the new doctor has to offer. But the final line is that you are in charge of your health care and that if you don't see eye to eye with your doctors, it is up to you to make sure you get the treatment you need. I hope this helps.

Grace

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 9/16/2008 9:54 AM (GMT -7)   
Mom, I think Grace is right. Although I've never been to a pain management doctor for pain management (I went to one to alleviate a migraine with accupuncture) I've been thinking and talking about it for a long time. I know there are alternatives to narcotics that are healthier and non addictive. Accupuncture can help with lupus and fibro pain, and I know there are many other forms of natural medicine that can help as well. We have to get the idea of the pill as a quick fix out of our minds and listen to what the pain management doctor has to offer. Our doctors have seen so many patients become addicted to narcotics and they do have an obligation to keep us from going down that road.

I'll be real interested in hearing what you have to say after your appointment. Please check in and educate us!

Pat
Lupus, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


painwithgrace
New Member


Date Joined Sep 2008
Total Posts : 2
   Posted 9/16/2008 10:21 AM (GMT -7)   
Hi Patty, thanks for the response. As a fibromyalgia sufferer, I use a variety of "tools" to manage my illness, one of which is the use of narcotics. So I am not against them at all. I also know that there are many other things we can learn to do to help ourselves, which involve really hard behavioral changes that can help our illnesses just as much if not more than a pain pill. So it is one tool in the box. Yes, you are right that taking a pill is easy, usually fairly cheap, and is quick. But it only takes you so far. That is where, after a certain time, you say, "I need more help than this." This includes getting help for treating our depression/anxiety and other things that impact our illnesses. What we don't realize is, that much of what you need is already inside of you - inner strengths and resources that can be realized through therapy, religion, yoga, relaxation, and such. There is also diet, weight management, and overall taking good care of yourself, these all can really change you a lot and help you tremendously. Hope this helps...

Grace

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1551
   Posted 9/16/2008 10:25 AM (GMT -7)   
Hi Mom2378. I take Celebrex twice daily and arthritis tylenol as needed, but last spring my pain simply would not ease up. I didn't want narcotics so my rheumy had me try everything before I finally tried fentenyl (sp) patches. Those were awful for me- nausea, itching. I then went to an acupunturist 3 x a week and it was like magic! Finally something to stop the pain. I still have to take Celebrex even with the acupuncture, but that's very do able. I hope you get some relief and a regamin you like. (((Hugs))) Love, Butterflake 
Dx: SLE ('05), depression, diabetes, fibromyalgia, gerd, sleep apnea, hypertension, IBS Tx: CellCept, plaquenil, prednisone, lisinopril, actos, lipitor, nexeum, prozac, seroquel, celebrex, actonel
prn: arthritis tylenol, neurontin, promethazine, ambien.  multi vit, C, flaxseed oil, acupuncture
Donna
 


momtothree78
New Member


Date Joined Sep 2008
Total Posts : 5
   Posted 9/16/2008 11:20 AM (GMT -7)   
Thanks for all the info from everyone.  My Dr. really made me mad Monday when I saw him.  He said he wasn't going to give my a script for Hydro anymore.  I just graduated from nursing school in May and I said to him, you can't just stop taking hydro all of a sudden like this.  He said I would probably have seizures and he was not going to write the script.  I almost fell off the table.  I said please just give me enough hydro so I don't withdrawal until I can get an appt at the pain clinic.  So he did give me 80 5/325 hydro and he also gave me Cymbalta to start.  He is a freakin' quack, my husband wants me to turn him in.  I also found out from the PA in his office that he is on a "Narc watch"!!!!  I don't have health insurance right now because I am not working, I am studying for my NCLEX and my husband was laid off from Delphi.  I have three kids ages 14, 11 and 9....so how am I doing??????  I was soooo mad I called the pain clinic the minute I got home and was able to get an appt for Thursday.....as far as the cost, I just have to put it on our credit card for now I guess.  I have tried all sorts of meds....plaquenil, lyrica, neurontin, prozac....nothing has helped this pain except hydro so far.  I would much rather go to the rheumy dr. but without insurance it is $483 just to walk in the door, ABSURD!!!!!!!!!   Another thing this quack Dr. said is that Lupus and Fibro long term pain patients should not be on narcotics because they don't work, is this true???? Aren't some narcotics for long term use???? All I want to get from the pain clinic is the hydro but maybe a script for 10/325 so I don't have to take as many and some type of pain med for FLARE UPS and BREAKTHROUGH pain that I would only take as needed....do you think that is to much to ask for??????????  Thanks for all the input!!!!!!!!!!

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 9/16/2008 11:30 AM (GMT -7)   
Hi Mom,

Are you still taking plaquenil? Any others? You really need to address the specific cause of your pain. If you have lupus, then the cause is likely inflammation. The plaquenil takes several months to build in your system. . . it is taken long term to help control inflammation. The neurontin might have been prescribed for nerve pain. You haven't really shared what is causing your pain, where it is. If it is pinched nerve in your spine, then sometimes physical therapy can help. I have to make sure I fit in PT for my back, shoulders, neck, etc. each day or I eventually end up in a lot more pain.

A doctor should NOT just hand out narcotics w/o also working on the cause of your pain.

I'm so sorry you are in so much pain and have limited choices for health care . . . but I wanted to welcome you to the forum.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


momtothree78
New Member


Date Joined Sep 2008
Total Posts : 5
   Posted 9/16/2008 11:50 AM (GMT -7)   
The pain I have is from Lupus and Fibro, I also have a cyst inside my knee cap that the ortho Dr. might have to fill with bone marrow.....yes I still take plaquenil and cymbalta.....NO RELIEF....the only way I know how to describe the pain in my hips and knees is it is IN THE BONES....terrible terrible bone aches....my hands are also throbbing and I have sharp stabbing pain in them....this pain wakes me from a dead sleep at night mad ...I get up and walk around and shake it off.  I just don't know what else to try....I have tried hot packs, cold packs, hot baths, icy hot rub, a variety of different meds.....I guess I will have to wait and see what the pain dr. says on Thursday.....OH I also have a TENS machine, this machine just takes the edge off, but this is for nerve pain so I don't quite understand why it is working when my pain is in my bones skull ......have a great day!!!! turn

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 9/16/2008 5:11 PM (GMT -7)   
Dear mom,

I absolutely hate this problem. I didn't mean to imply that I don't take pain meds because I do. All my PCP will prescribe for me is Ultram for pain and Celebrex for inflammation. When the pain gets out of control and alternating ice bags and hot baths plus extra tramadol oon top of the ultram doesn't work I borrow lortabs from my DH and even that doesn't kill the pain. I do believe that if I had unlimited access to lortabs I'd take them all day long. I don't know what the answer is. I have learned to live with lupus and fibro pain and some days and nights are pretty unbearable.

I was happy to read that Butterflake has had great results from accupuncture because that is my next step.

Good luck with your doctor!

I hope you get some relief from your pain.

Pat
Lupus, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin

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