I had my 1st appt with Rheumy today.

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honorablemention
Regular Member


Date Joined Sep 2008
Total Posts : 26
   Posted 9/16/2008 6:10 PM (GMT -7)   
So after waiting months for this appointment, today finally came. I was soooo nervous and scared that I might wind up with a bad doc. Well, I was worrying for no reason because I think he's pretty great.

Anyway, he was very attentive, and wrote down everything I told him. From the symptoms I gave him, he believes I have Sjogren's...which isn't much of a shock to me. But since my ANA, RF, sed rate, and uric acid tests all came back normal, he ordered more tests....ANA profile, urinanalysis, and some tests checking my iron.

Right now, I think this guy is the best doc I've seen in a while. It was awesome. He explained everything. I mean, what autoimmune diseases are, what sjogrens is, and about treatment options. I never let on that I was familiar with anything just to see how thorough he was. And I'm quite satisfied.

I go back in 10 days for a follow-up. He'll give me the test results then. And if I'm not mistaken, he said that it sounds as if I have organ involvement with whatever it is that I have. sad Oh well...at least I'm being taken seriously now.

I just wanted to share how well my appointment went with you guys! wink

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 9/16/2008 8:01 PM (GMT -7)   
Dear honorable,

I'm so happy that you like your rheumy and that you feel comfortable with him. That's a big part of the battle, isn't it. Finding someone with whom you're comfortable, and someone who listens to you. And on top of everything he explained things to you! Eureka!

Good luck on your follow-up. I hope you don't have any organ involvement.

Pat
Lupus, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 9/16/2008 8:21 PM (GMT -7)   
That's great!  I mean the visit.  Not great that you likely have sjogrens.  I have that too.  I sure hope you don't have any organ involvement too.  Is he going to test you for other autoimmune diseases?
 
What a relief to know you have someone who is listening and taking you seriously!  I'm very happy for you!  Thanks for sharing your positive experience.
 
Let us know if you have any questions about sjogrens okay,
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


honorablemention
Regular Member


Date Joined Sep 2008
Total Posts : 26
   Posted 9/17/2008 6:30 PM (GMT -7)   
thanks patty and ginny.

ginny, he's doing a ana profile, and from my understanding that checks for several autoantibodies. am i correct?
but im ecstatic that he's going to treat my symptoms regardless. im tired of being sore, tired, and dried up. lol

mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 9/18/2008 4:20 PM (GMT -7)   
I'm glad to hear you find a good rheumy you like and takes you serious. It's hard to find one like that. I hope the tests results are good and he puts you on the right treatment plan to help you feel better. Take care and you will be in my thoughts and prayers.
                                                               Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 9/19/2008 7:35 AM (GMT -7)   
Getting a great rheumy is such a great feeling. You know you have a great doc when they are going to treat the symptoms regardless of labs. Docs need to look at both symptms and labs together. I'll be interested to see how your labs turn out.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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