I need answers to my Questions PLEASE

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Tomas Tejada
New Member


Date Joined Sep 2008
Total Posts : 1
   Posted 9/17/2008 7:43 AM (GMT -7)   
Im a college student of the age of 19 my mother was diagnosed with LUPUS when giving birth to me she is a bit stable but as must of you know the medication is extremely expense and we dont have much financial stability right now. We recently moved to Miami, Florida so i can continue my college studies and she still hasn't been able to find a specialized doctor for LUPUS in spanish so she keeps on going back to Dominican Republic to were we are from.

What are the resource that can help my mother obtain medical help , medication and basically everything that she needs to keep her alive ?

Any information would be highly appreciated, i been doing my research in regards of the disease but there is much i can do and read to end up in the same conclusion of being ignorant to the subject.

Thank You for your time.

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 9/17/2008 8:32 AM (GMT -7)   
Tomas,

I am so sorry that your mom has Lupus and is having trouble finding a doctor in Miami with whom she can communicate. As you know, Miami has more Spanish speaking people than just about any city in the U.S., and though most are from Cuba, you speak the same language.

I googled spanish speaking rheumatologists in Miami and at the top of the list was the following site:

Lupus Foundation of America, Inc. - Southeast Florida Chapter
Arthritis & Rheumatology P. O. Box 016960 Miami, Florida 33101 ACCEPTS MEDICAID. Angel F. Vidal, MD (Spanish Speaking), 305-552-7020 11880 SW 40th Street, ...
www.lupusfl.org/dade_md.htm

The Lupus Foundation of America is to Lupus what the American Heart Association is to Heart Disease, so you know you're in the right place there.

They also have sites in Spanish so that you and your mom can read the information they provide about lupus. That also might be of great benefit to both of you in terms of getting a better understanding of her disease.

Y aqui hay informacion en espanol:

www.lupus.org/webmodules/webarticlesnet/templates/new_aboutlanguages.aspx?articleid=415&zoneid=21 (edited: this site doesn't come up. I have to leave, but will look for it later and will post it for you.)

Si no encuentras un doctor en Miami, llame al Lupus Foundation of American en Washington, 202-349-1155, y diles tu problema y pidales ayuda. Si despues de todo esto no logras encontrar un doctor en Miami que habla espanol y quien pueda ayudar a tu mami, veo como te puedo ayudar.

Muy buena suerte. Tu mama tiene la fortunidad de tener un hijo que la quiere mucho.

Me interesa saber lo que sucede.

Pat
Lupus, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin

Post Edited (PattyLatty) : 9/17/2008 9:36:14 AM (GMT-6)


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 9/17/2008 8:42 AM (GMT -7)   

Medicaid was the first thing that came to my mind, but different states has different medicaid packages.  If you were under the age of 19 she could get medicaid for you and herself.

I do not wish to sound like I am supporting fraud, but I worked in this field and I used to tell my clients the same thing.  she needs to see a doctor here, and reveal to him what her symptoms are, and how disabled she is.  If he will sign a form stating that your mother is disabled, she will be eligible for medicaid.

The people here have this wonderful idea that works really well for me.  Make a list of her symptoms as they happen on a daily basis.

What is your status in the United States?  Often refugees can get a different kind of medicaid even if they do not have a dependent child.  She can get it just for herself, because she is refugee status. 

I am not up to date on this subject anymore.  the regulations governing medicaid change so often, it is hard to keep up.

In some states one can google, "Medicaid for the disabled in Florida." This gives you a rough idea about her eligibility.  But since there are so many exceptions to so many rules and regulation, you still should talk to a medicaid worker, and get a more up to date report.  Most states are divided up by counties.  And I do not know what county you are in, but it would also be good to google just for that county.

Please come back and let us know what you have learned from the google search and talking to a medicaid worker.  Don't give up, even if the worker tells you your mother is not eligible.  As I said, there is always exceptions that can make her eligible.

I am really impressed with the daughters at this forum taking care of their mothers.  I took care of my mama too, for 6 1/2 years after she had a massive stroke.  she was a pistol.  One day she was doing cartwheels across the front yard, and the next day she was completely paralyzed and had to learn how to eat again and how to speak.

I commend you for helping your mom.

Hester


Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin daily, multivitamin daily, Arthrotec 50mg twice daily, Meclazine 25 mg, as needed 4x daily, Hydoxychloroquine (plaquinil) 200mg twice a day, Metoclopomide 10 mg, 4x daily, Doxepin 50 mg one cap 4x day, Metoprolol 100 mg daily, Levothyroxine (synthroid) 50 daily, Amlodipine 5mg daily, Crestor 10 mg one tab daily, Lisinopril 40 mg, one tab daily, Omeprazole (prilosec) 40 mg daily, Plavix 75mg daily, promethazine 25mg x4 daily, Restasis one drop in each eye every 12 hours
 


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 9/17/2008 8:44 AM (GMT -7)   
You'll have to copy this url and paste it into your browser:

http://www.lupus.org/webmodules/webarticlesnet/templates/new_aboutlanguages.aspx?articleid=415&zoneid=21

from time to time this website inserts <b> and other characters into a link & won't let us edit them out -- that makes it impossible to make them active. Sorry.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

Post Edited (Lynnwood) : 9/17/2008 9:47:45 AM (GMT-6)


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 9/17/2008 10:50 AM (GMT -7)   
Very thoughtful PattyLatty finding a site for her in spanish. [img]/community/emoticons/yeah.gif[/img]

Hester

Post Edited By Moderator (Lynnwood) : 9/17/2008 1:20:45 PM (GMT-6)


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 9/17/2008 4:59 PM (GMT -7)   
 
Hi Tomas,
 
Welcome to the forum.
 
The above and more info available in the links at the end of my signature.
 
I hope this helps.
 
Blessings!
 

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

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