Post Edited (meowese) : 9/19/2008 4:41:13 PM (GMT-6)
Hi Meowese, I know it can be pretty frustrating.I think it's a good idea to get copies of all your tests. That way if you see a different dr. you can just take them with you. Plus you will know how things change from time to time. As far as your titers go I really think it depends on which dr. you talk to. I had a titer of 1:2560 and my rheumy said it was nothing to be concerned about. There are people on here that don't even have a possitive titer and still have lupus or some other type of auto immune disease. So I guess I'm saying that it's one signal that there could be a problem but by itself it's not really anything you can go by. Just one peice of a great big puzzle. Most dr. beleive that anything over 1:80 is pretty normal. anything over that is a possitive. I think it's good idea to see another rheumy and get another opinion.
let us know
Oh no hun! I didn't mean it to sound like it wasn't important because some titers are higher. I'm just saying regardless of what it is that's just one of many tests. As for spaming the board lol hey somthing is wrong and you want answers. You have every right to ask questions and find out as much as you can. In my opinion somtimes with these autoimmune disease I think we are the best one to find patterns. I think the rheumy's are a long way from having the answers. If they did we would be cured by now. Being a hypocondriac is somthing we all feel like from time to time. Just think of it as another symptom. You continue searching and asking questions. I've been here about 2 years now and I still have tons of questions That is so cool that your appt go moved up. It doesn't happen often. Make sure you have all your questions written down so you don't forget anything. and let us know how it goes!