Prednisone and feeling better

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domanique
Regular Member


Date Joined May 2008
Total Posts : 156
   Posted 9/19/2008 7:06 PM (GMT -7)   
I was put on prednisone 20 mg 3x aday for 5 days, 20mg 2x aday for 5 days and then 20mg once a day.  I was put on this med for breathing problems I was having.  I can say that today I feel better then I have in so long.  Not just my breathing but I actually felt pretty good.  I haven't bben dx with lupus but am wondering why this med has made me feel so different.  I'm almost scared to go off  of it.  I was on it a few weeks ago for breathing problems but they had me on 50mg for 5 days and during those 5 days I felt better, could breathe better, everything.  I went off of it and a day or so later started feeling like dirt again.  I know that I've read that they treat Lupus with prdnisone.  I also know that I may go into my rhumy in Oct to get my results back and be told once again that my results were all normal.
 
I guess if that happens why would this med make me feel so much better?

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 9/19/2008 8:26 PM (GMT -7)   
Hi Dominique,
 
That is really good to hear!  I"m so glad that you're feeling better. Prednisone is an amazing medication.  It works quickly which is so needed for most of us. 
 
The fact that you feel so much better and can breath easier, etc, is a pretty clear sign that you have inflammation going on, and your adrenal glands aren't producing enough natural cortisol to take care of the inflammation.  The extra boost of prednisone is helping you! 
 
When you do go see your rheumy in October, if you've been on prednisone for a while, your blood test results could very well come back normal.  That's because the prednisone is doing it's job.  It's getting rid of the inflammation.  So don't be surprised if your results are normal. 
 
If the prednisone is making such a big difference for you, I would stay on it!  Stick with taking that 20mg a day until you see your rheumy in October. Tell your rheumy how excellent it is for you, and keep a diary of your ups and downs during the next few weeks.   I'm an advocate for prednisone.  Even though I would love to be off it, I know how great I feel when I'm on it, and that's what counts! 
 
Have a good rest tonight!
Ginny 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


domanique
Regular Member


Date Joined May 2008
Total Posts : 156
   Posted 9/19/2008 9:24 PM (GMT -7)   
Thanks for the feedback. One thing I have noticed and did wonder if it could be a side effect of the prednisone is that my feet and hands feel swollen, like I have edema. I don't usually have this unless we drive back to MI to visit family which is about a 5 hr drive. For the past week I have noticed I have this mainly in the evening. Is this a reaction to the prednisone?

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 9/20/2008 5:39 PM (GMT -7)   
Oh yes.  Prednisone can make us retain a lot of water and give us that swollen/bloated feeling.  To combat that, try drinking more water.  The body is holding onto extra fluids. If you replace that with water intake, it can help.  But prednisone will cause that too.  I feel bloated everywhere a lot of the time. My rheumy has told me it's the pred.  I'm worse in the evenings too. 
 
Definitely run this past your rheumy though.  Sometimes an edema type swelling can mean kidney issues.  It's important to rule that out.
 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

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