Chemical free living does it help lupus?

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domanique
Regular Member


Date Joined May 2008
Total Posts : 156
   Posted 9/19/2008 9:28 PM (GMT -7)   
I have been having alot of breathing problems and it seems to be worse when I'm around chemicals, hairsprays, cleaners, even newspaper print gets to me.  I read that people with lupus can be over sensitive to these things.  I want to do something to change, like use more natural and chemical free things to clean ect.. Have any of you changed those things and did it help at all?  Also if you did try things what products work for you? 

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 9/20/2008 7:38 AM (GMT -7)   
I changed by having someone else do the cleaning so I don't get close to the fumes nor do I have to have any cleaners on my skin. My cleaning people use 'green' products which are supposed to be easier on the home as well as on people. My only problem now is that the house doesn't smell as clean -- I guess we learn that some of these chemical smells are the smell of 'clean', which probably isn't true. Sorry I don't know what they use... I hope others have some more tangible suggestions for you.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 9/20/2008 7:49 AM (GMT -7)   
Like Lynnwood, someone else does my cleaning so I don't have to breathe in the fumes. I haven't switched to green products but should. I have gone organic in my choice of foods. I find that when I eat natural foods, mostly fresh fruits and vegetables, I start to feel much better. When I switched to a gluten-free, sugar-free, natural foods diet, within a week I felt like a new person -- less joint pain, less fatigue. I have read for years that there is some thinking that hair dye can cause lupus so I stopped coloring my hair.

So now it's time for me to bite the bullet and start purchasing the green cleaning agents. I did try some geen dryer fluffs and they were worse than using nothing at all. Thank goodness green products are somewhat easier to find.

Domanique, this is a great topic and I'm glad you brought it up.

Pat
Lupus, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


domanique
Regular Member


Date Joined May 2008
Total Posts : 156
   Posted 9/20/2008 8:37 PM (GMT -7)   
Thanks. I don't have the money to have my house cleaned. I have 3 daughters who help out with chores but I even hate them breathing that stuff in. And even just being in the house with it gets to me. My 16 yr old loves perfume, powders, and hairsprays so thats another problem I deal with. She is a typical teen and when I tell her how that bothers me she rolls her eyes at me. I'm hoping to try to change atleast her hairspray to a more natural kind if there is such a thing. I want to go more organic with foods as well. I just feel like I have to do what I can to improve things and not just try to depend on meds for it all. Thanks again.

Tá mé breá
Regular Member


Date Joined Aug 2008
Total Posts : 140
   Posted 9/20/2008 9:01 PM (GMT -7)   
I, well, we - use only vinegar and baking soda for cleaning. I mop all surfaces with vinegar and any scrubbing with baking soda. I have a friend who used baking soda to wash her hair and vinegar to rinse. I've never tried it but she has beautiful hair. Also - vinegar makes a great fabric softener. I buy a gallon jug of vinegar for the laundry room and add vanilla or another oil - just a few drops. as soon as vinegar dries all the vinegar odor is gone.
43 yr old mother of 6 grandmother of 1 going on 2!
dx 2006 - autoimmune issues, arthritis, 01/2008 - myelofibrosis. as of 08/08 testing continues signs point to Lupus. (family history - mother RA/Lupus).

symptoms - malar rash, mouth soars (in and out), joint pain, extreme fatigue, migraines, heart pounding on light activity.

rx-cymbalta, propranolol, clonazapam, prednisone, progesterone cream, supplements - b6, b12, flaxseed oil, c.

"All we have to decide, is what to do with the time we are given" ~ Gandalf


domanique
Regular Member


Date Joined May 2008
Total Posts : 156
   Posted 9/20/2008 10:40 PM (GMT -7)   
Thanks those are great ideas. I just started using vinegar for my counters and things. Do you know what to do for toilets, it seems that I heard something about vinegar and soda together. Another one I wonder about is disinfectant, as I used to use lysol alot at flu time.

Tá mé breá
Regular Member


Date Joined Aug 2008
Total Posts : 140
   Posted 9/21/2008 4:30 AM (GMT -7)   
"White distilled vinegar is a popular household cleanser, effective for killing most mold, bacteria, and germs, due to its level of acidity. Cleaning with white distilled vinegar is a smart way to avoid using harsh chemicals. You’ll also be glad to know that it is environmentally friendly and very economical. "

this is from a web page on vinegar and its uses

http://www.vinegartips.com

hope it helps. I started using it because it is sooooo cheap!
idea
43 yr old mother of 6 grandmother of 1 going on 2!
dx 2006 - autoimmune issues, arthritis, 01/2008 - myelofibrosis. as of 08/08 testing continues signs point to Lupus. (family history - mother RA/Lupus).

symptoms - malar rash, mouth soars (in and out), joint pain, extreme fatigue, migraines, heart pounding on light activity.

rx-cymbalta, propranolol, clonazapam, prednisone, progesterone cream, supplements - b6, b12, flaxseed oil, c.

"All we have to decide, is what to do with the time we are given" ~ Gandalf


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 9/21/2008 9:18 AM (GMT -7)   
Thanks for the tip spinningmawmaw! I'm going to give it a try.
Lupus, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin

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