It's never Lupus.

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meowese
Regular Member


Date Joined Jan 2008
Total Posts : 121
   Posted 9/20/2008 11:44 AM (GMT -7)   
I don't know if this is appropriate here, so I apologize if it isn't. Just some entertainment.

My closest friends in real life are always saying to me 'It's never Lupus.' I found this video of a running gag on the show House MD (one of my favs) about Lupus. I'm sort of shocked how many of my friends know about Lupus from this show!

http://www.youtube.com/watch?v=1YUvo7YxqwM

I'm also watching Discovery Health right now... whenever they don't know the appropriate dx, I swear they put in some autoimmune condition. I've counted 2x Lupus and 3x IBS and that's never the final diagnosis! Or they blame it on the patient and their mental state (which makes me want to kick the screen). Oh! How I wish they knew more about autoimmune diseases.
Crohn's (diagnosed in 2006 and currently in remission), severe migraines, Seborrheic Derm., Hemolytic Uremic Syndrome (1994), chronic pain, ulcers/GERD and possibly Lupus. Medications: Nexium, Pentasa, Percocet and Vicodin as needed, Flintstone Vitamins (my favorite part!), calcium and magnesium supplements, vitamin D once weekly. I follow a low fiber, low residue diet.

Post Edited (meowese) : 9/20/2008 12:48:19 PM (GMT-6)


jojo711
Regular Member


Date Joined Aug 2008
Total Posts : 46
   Posted 9/20/2008 1:12 PM (GMT -7)   
oh yea i love that show, i just watched your link, cute. i see shirts sometimes with house on them and it says "its not lupus. Sick humor, but its ok. i laughed thanks for brightening my day tongue

Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 9/20/2008 3:42 PM (GMT -7)   

I watch House too, but have never seen the show with lupus on it.  but they seem to be having a little marathon of House on certain days.  Will make sure I see them.  It seems to me that "It is never lupus", is how some doctors really do respond to Lupus.  My good friend nearly died before they admitted she had Lupus.  She was 13 years old and in the hospital when she was diagnosed.

Hester

 


Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin daily, multivitamin daily, Arthrotec 50mg twice daily, Meclazine 25 mg, as needed 4x daily, Hydoxychloroquine (plaquinil) 200mg twice a day, Metoclopomide 10 mg, 4x daily, Doxepin 50 mg one cap 4x day, Metoprolol 100 mg daily, Levothyroxine (synthroid) 50 daily, Amlodipine 5mg daily, Crestor 10 mg one tab daily, Lisinopril 40 mg, one tab daily, Omeprazole (prilosec) 40 mg daily, Plavix 75mg daily, promethazine 25mg x4 daily, Restasis one drop in each eye every 12 hours
 


meowese
Regular Member


Date Joined Jan 2008
Total Posts : 121
   Posted 9/20/2008 4:35 PM (GMT -7)   
Hester, I'm sorry about your friend and very happy that she finally received the life-saving diagnosis! I think it shows just how the disease can mimic so many other conditions and be very hard to diagnose.
Crohn's (diagnosed in 2006 and currently in remission), severe migraines, Seborrheic Derm., Hemolytic Uremic Syndrome (1994), chronic pain, ulcers/GERD and possibly Lupus. Medications: Nexium, Pentasa, Percocet and Vicodin as needed, Flintstone Vitamins (my favorite part!), calcium and magnesium supplements, vitamin D once weekly. I follow a low fiber, low residue diet.


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 9/21/2008 11:47 AM (GMT -7)   

your post reminded me again that I have forgotten my multivitamin stuff.  this one has folic acid, calcium ,magnesium and potassium.  I want to remember to do this, so went straight and got them out of the cabinet and dumped them on my bed.  I won't forget if I have them by my bed.  thank you for reminding me yeah

your signature thing is what reminded me.  I read all of those to see how similar our medications are.  I didn't realize that chron's disease could also go into remission.   I think I went into remission one time.  I had been real sick due to lupus when dr. marlowe was alive and he put me on prednisone and plaquenil.  did not tell me to stay out of the sun however.  nono I got to the place where I could once again clean my house in one day.  cut my own grass with a push mower. yeah I would be happy today if I could just clean my house in two days.

thank all of you for being just as you are

Hester

 


Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin daily, multivitamin daily, Arthrotec 50mg twice daily, Meclazine 25 mg, as needed 4x daily, Hydoxychloroquine (plaquinil) 200mg twice a day, Metoclopomide 10 mg, 4x daily, Doxepin 50 mg one cap 4x day, Metoprolol 100 mg daily, Levothyroxine (synthroid) 50 daily, Amlodipine 5mg daily, Crestor 10 mg one tab daily, Lisinopril 40 mg, one tab daily, Omeprazole (prilosec) 40 mg daily, Plavix 75mg daily, promethazine 25mg x4 daily, Restasis one drop in each eye every 12 hours
 


meowese
Regular Member


Date Joined Jan 2008
Total Posts : 121
   Posted 9/21/2008 12:19 PM (GMT -7)   
Hi Hester, glad I could be of service.

Perhaps I am too hasty to say my Crohn's is in remission, but it's just saying that I haven't been experiencing bad primary symptoms or flares.

Be strong Hester! You've been through a lot.
Crohn's (diagnosed in 2006 and currently in remission), severe migraines, Seborrheic Derm., Hemolytic Uremic Syndrome (1994), chronic pain, ulcers/GERD and possibly Lupus. Medications: Nexium, Pentasa, Percocet and Vicodin as needed, Flintstone Vitamins (my favorite part!), calcium and magnesium supplements, vitamin D once weekly. I follow a low fiber, low residue diet.


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 9/21/2008 12:54 PM (GMT -7)   

you are very welcome meowese

It will take lots of reading for me and my memory to get myself educated due to this list.  But I remember chron's and what it does, and so thankful I don't have it.  the constant uncontrollable diarrhea has stopped.  hopefully it was just the side effects of plaquenil.  but I learned even from this.  Learned that wearing depends is not the worst thing in the world;)  having no control over diarrhea was  worse than wearing depends. 

Hester


Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin daily, multivitamin daily, Arthrotec 50mg twice daily, Meclazine 25 mg, as needed 4x daily, Hydoxychloroquine (plaquinil) 200mg twice a day, Metoclopomide 10 mg, 4x daily, Doxepin 50 mg one cap 4x day, Metoprolol 100 mg daily, Levothyroxine (synthroid) 50 daily, Amlodipine 5mg daily, Crestor 10 mg one tab daily, Lisinopril 40 mg, one tab daily, Omeprazole (prilosec) 40 mg daily, Plavix 75mg daily, promethazine 25mg x4 daily, Restasis one drop in each eye every 12 hours
 


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1551
   Posted 9/22/2008 4:49 AM (GMT -7)   
Hi Meow. I'm a big fan of House also. They had an episode in which the diagnosis was lupus- a thirty something male magician. Several lupies I know (myself included) emailed the producer of House thanking him for increasing lupus awareness. Even if it's not lupus, just bringing up the subject makes people think. I want to buy a House, It's never lupus shirt; just haven't decided which to buy. My favorite shirt, which made my rheumy LOL, shows the handicap wheelchair symbol and says: I'm just in it for the parking. devil   Love, Butterflake

Dx: SLE ('05), depression, diabetes, fibromyalgia, gerd, sleep apnea, hypertension, IBS Tx: CellCept, plaquenil, prednisone, lisinopril, actos, lipitor, nexeum, prozac, seroquel, celebrex, actonel
prn: arthritis tylenol, neurontin, promethazine, ambien.  multi vit, C, flaxseed oil, acupuncture
Donna
 


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 9/22/2008 9:25 AM (GMT -7)   

I would like to have that House shirts myself.  yeah I have put off and put off getting one of those handicap tags, and it may be time to get it.  Especially for Walmart parking, and doctors offices too I guess.

Thanks for the laughter
Hester
Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin daily, multivitamin daily, Arthrotec 50mg twice daily, Meclazine 25 mg, as needed 4x daily, Hydoxychloroquine (plaquinil) 200mg twice a day, Metoclopomide 10 mg, 4x daily, Doxepin 50 mg one cap 4x day, Metoprolol 100 mg daily, Levothyroxine (synthroid) 50 daily, Amlodipine 5mg daily, Crestor 10 mg one tab daily, Lisinopril 40 mg, one tab daily, Omeprazole (prilosec) 40 mg daily, Plavix 75mg daily, promethazine 25mg x4 daily, Restasis one drop in each eye every 12 hours
 


SFnative82
Regular Member


Date Joined Mar 2008
Total Posts : 39
   Posted 9/29/2008 10:54 PM (GMT -7)   
"Its never Lupus, except when it's Lupus"
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<FONT color=#800080>**daily Rx- Plaquenil 400mg , Claritin Hives10mg ,Alavert 10mg, Pepcid 20mg, Zyrtec 10mg, oxycodone 10mg**


puccini914
Regular Member


Date Joined Jun 2008
Total Posts : 363
   Posted 10/21/2008 7:53 AM (GMT -7)   
Meowese, you've done it now, I am totally hooked on House, MD.  The crazy thing is that as much as he is arrogant, rude and addicted to pain pills, I wish he was real and living in Georgia.  He could take one look at me and finally say "It's Lupus", and he would have some kind of brillant treatment that would leave me feeling like running marathons.  What I love about the show, besides House himself, is that it shows how medicine is such a "hit and miss" field.  If you're not a completely insane diagnostic genius, you're just playing a guessing game. Thanks for the laugh and the new favorite show.


Jennifer

PCP DX Lupus and Fibro, Taking plaquenil,  Flexeril,Claritin, Zantac,Ambien,vitamin B-12, multi- vitamin, Lortab.  Homeschooling Mom of 2 boys 1 and 6.  Symptoms: Fatigue, joint pain, heat/sun sensitivity, mouth and nose sores, malar rash, migranes, awful hives, positive ANA, and RF.

 

 

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