Is it Raynauds?

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Leigh1978
Regular Member


Date Joined Sep 2008
Total Posts : 35
   Posted 9/21/2008 7:23 PM (GMT -7)   
I'm not sure, but I think I may have Raynauds (still have to talk to the doc since it just happened this weekend). Last night my arms had a strange feeling to them and my fingers were ice cold....both my friend and I noticed that both my fingers and toes were a little blue. Once I went back inside it went away....not sure how long it took- anywhere between 5-20 minutes (I was trying not to think about it so I wasn't paying attention to the time)
Is this Raynauds?
I was just dx with lupus a few weeks ago, so I guess I think it's a little strange for this to be happening so fast.

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 9/21/2008 7:43 PM (GMT -7)   
HI Leigh,
 
It definitely could be raynauds.  Your rheumatologist can confirm that for you.  Keep a close eye on your fingers and toes as we approach the colder weather.  If you do have raynauds it's really important to protect those digits...
 
It's not unusual for a bunch of symptoms and new conditions to pop up after a recent diagnosis.  You got your diagnosis because all the puzzle pieces finally came together.  Which means your disease activity is high.  That will bring on all of the lupus cousins. If you can, keep a diary of everything so that when you talk to your rheumy you have it all straight.  A lot can happen between visits.
 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Leigh1978
Regular Member


Date Joined Sep 2008
Total Posts : 35
   Posted 9/23/2008 7:33 PM (GMT -7)   
Hi Ginny-
Thanks so much for replying. Luckily I was able to get a doctors app. for tomorrow so I can ask him about it. The only reasom I find it to be strange is b/c the actual lupus symptoms just started....and came on very quickly (less than 2 months ago). I really have no idea whether I had any symptoms before. At one time I did think I had bursitis in my shoulder, but now I don't know.

Have you ever heard of someone getting hit w/ symptoms all at once? It started with the low fever, weight loss, joint pain/swelling....2 weeks later, sensitivity to flourescent lighting, and now this past week, possibly Raynauds? I keep reading that it took people years, and that wasn' t the case with me. I immediately went to my primary and had blood work done (pos. ANA). He referred me to a Rheumy, I went over my symptoms and had more blood work done (pos. ANA and pos. anti-DNA)...and that was that.
I still am convinced that the Zyban (Wellbutrin) pill triggered this....everything started the first day I took that pill (and stopped it after 4 days)

SSDore9240
Regular Member


Date Joined Aug 2008
Total Posts : 56
   Posted 9/23/2008 7:44 PM (GMT -7)   
Drug induced...that is a possibility, I believe the symptoms should go away though. Im not sure!? Have you been to the Lupus Foundation website yet? I thought my symptoms came on fast...I just didn't know that they were all symptoms!

Good luck!
31 year old mom of 1: SLE, UCTD, FM, Arthritis, Reynalds(?), Migraines, Alopecia, Neuropothy(L:Hand & Foot), Int. Bells Palsey, Costrocondritis(?), a bunch of other stuff I don't remember right now and even more labwork I dont understand! Patient at Johns Hopkins in Baltimore, MD.
 Plaquinil, Trazodone, Lidoderm, Percocet for now...I hate taking the meds!  Refusing any more Prednisone!


Leigh1978
Regular Member


Date Joined Sep 2008
Total Posts : 35
   Posted 9/23/2008 7:48 PM (GMT -7)   
Did your symptoms arrive like mine did? Within a few weeeks?

SSDore9240
Regular Member


Date Joined Aug 2008
Total Posts : 56
   Posted 9/23/2008 8:13 PM (GMT -7)   
I thought they did....most of them were right after an accident...I thought it was stress. Years later I am able to look back and see little tell tale signs that there were issues going on with my immune system.
31 year old mom of 1: SLE, UCTD, FM, Arthritis, Reynalds(?), Migraines, Alopecia, Neuropothy(L:Hand & Foot), Int. Bells Palsey, Costrocondritis(?), a bunch of other stuff I don't remember right now and even more labwork I dont understand! Patient at Johns Hopkins in Baltimore, MD.
 Plaquinil, Trazodone, Lidoderm, Percocet for now...I hate taking the meds!  Refusing any more Prednisone!

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