new here-wanting to say hi & question

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New Member

Date Joined Sep 2008
Total Posts : 15
   Posted 9/25/2008 10:58 AM (GMT -6)   
Hi, My name is Denise and I wanted to drop in and say hi. I have both lupus and fibro. I also am a single mom with a 10 year old. I have a question... I have been having severe joint pain in my right elbow and my rheumy told me to up my prednisone, so I went from 9 mg to 14mg. It helped some but not enough. The other day I woke up and it hurt bad so I went on a prednisone dose pack, I am on my 3rd day and now I can slightly feel that joint pain coming back. Has this happened with anyone else? Thank you in advance. :-)

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 9/25/2008 1:02 PM (GMT -6)   
Hi Denise,

Welcome to the forum. I hope some of the other members, more knowledgeable about prednisone, might be able to help you.

Sometimes it takes an aggressive attack on the joint issues to get relief. We like to say "attack the pain, don't chase it" But each of us has to learn how our bodies respond to meds. Some of us can get away with smaller doses and others require a higher taper to get things under control.

If you have fibro and lupus . . . you might find that your fibro will flare if your prednisone dosage goes too high. *sigh*

Glad you found us!!


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 9/25/2008 10:37 PM (GMT -6)   
Hi Denise, welcome to the group! I'm sorry you are hurting and the pred. isn't working for ya. Has the dr. ever suggested giving you a shot in your joint? I had a place on my back that nothing would help and finally my dr. gave me a steroid shot and with in a couple of days it was gone and knock on wood a year later is has never come back.
I hope you can get some releif let us know how it goes
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 Did you ever know that your my hero?

New Member

Date Joined Sep 2008
Total Posts : 15
   Posted 9/26/2008 10:07 AM (GMT -6)   
Hi Carol, Thank you so much, I will call the doctor and see if she can give me a shot. I just got rid of a very long term pain stabbing me in the foot. I thought I was out of the woods for a while lol. Have a great day!

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 9/26/2008 5:12 PM (GMT -6)   
Hello Lilbearsma!
Welcome to the forum!  You might not be in a lupus flare!!!  You do have fibro, and it's difficult to figure out which one is flaring, right?! 
I was having what I thought was joint pain.  All over my body.  I went up on my prednisone and only felt worse, much worse.  the pain was unbearable.  We did a bone scan and some blood tests, and it turned out that my joints were beautiful and perfect, and I had NO inflammation.  My lupus is dead quiet. 
The culprit, was my Fibromyalgia.  It wasn't joint pain, but muscle, tendon and ligament pain that surrounded each joint.  Classic Fibro. 
If going up on your prednisone isn't helping the pain, then it really isn't likely a lupus issue.  If you're feeling the pain or it's getting worse on a higher dose of prednisone, you and your rheumy should consider that it is likely fibro.  Prednisone and fibro don't mix at all.  Like oil and water.
This is just a thought.  Might want to run the possibility past your rheumy!
Let us know okay!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

New Member

Date Joined Sep 2008
Total Posts : 15
   Posted 9/27/2008 9:51 AM (GMT -6)   
Hi Ginny,

Thank you for your information. You are right, it can be very hard to tell if it is lupus or fibro flaring. As the prednisone is decreased, my elbow pain has increased. I don't have a lot of experience figuring this out. How did it finally go away? Did it take long?

lupus 2000, fibromyalgia 2004

Veteran Member

Date Joined Mar 2006
Total Posts : 2570
   Posted 9/27/2008 10:15 AM (GMT -6)   

I've had the same experience as you when I've increased my prednisone. A couple of years ago, when my rheumy increased my dose to 60mg a day, I had energy enough to move the world. For a day. And then as my body slowly adjusted to the new and higher dose, some of the pain and fatigue started to return. I don't know if that's typical, but it has been my experience.

I've had to continue to adjust and add meds to the equation until I've finally found the right mix. It has taken about three years, but I finally feel better than I have since my first bad flare.

In my case, it's a combination of prednisone, plaquenil, cellcept, a gluten-free diet, and finally the addition of celebrex. I can't tell you how much celebrex has helped - it reduces inflammation - and I've notice no side effects from it whatsoever.

I do hope you'll call your rheumy and talk to him or his nurse about what you're experiencing.

And I'm also glad you've found this forum.

SLE, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis, gluten intolerance.

prednisone, cellcept, plaquenil, celebrex, neurontin, synthroid, triamterene, ultram, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin

Regular Member

Date Joined May 2008
Total Posts : 58
   Posted 9/27/2008 3:24 PM (GMT -6)   
Welcome Denise, Sorry to say sometimes nothing works. But hopefully you will feel better very soon.
Fibro since 97, Lupus since 99, neuropathy and other nerve damage.
On to many Meds to list, Finally got a date for SSA of July 1 after to many years of fighting for a hearing.

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