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New Member

Date Joined Sep 2008
Total Posts : 1
   Posted 9/25/2008 9:54 PM (GMT -6)   
I've seen a couple of different docs, had lots of tests and so far, nothing conclusive about what my problem is. My ANA is positive, my titer is 1:64, my pattern is Homogeneous and Speckled. My ANTI-TPO is 117, my thyroglobulin ab is 75, and my CRP is 11.63 as of 9/18/08. All the other tests I had ran all came back within normal limits. Even the sed rate was a lowly 17. I had been taking Celebrex, Levothyroxine, Tylenol and Zyrtec since mid August. My TSH levels as well as T3, T4, etc... are all within normal limits. I don't understand what's going on and I'm confused. I have been told I definitely have allergies and psoriasis. I have other appointments. with other docs but not until Nov. of this year. Any insight as to what my results all mean would be so greatly appreciated as I would love to start reading books to help me learn more about what I have or don't have. My symptoms seem to be mostly fatigue, muscular aches---back, limbs. I feel stiff a lot, I have trouble swallowing when eating many different solid foods, so I stick to soft foods. I am 32 and also just had to get glasses for the first time ever. In the summer my symptoms started out with about a 10 day episode of moderate to severe Vertigo which was helped with Meclizine and avoiding fluorescent lighting at my desk at work. I feel like I am just being bounced around to different doctors and no one is willing to go out on a limb and say what my diagnosis really is, they just want to refer me to someone else. I have been to ER docs, family doc, and a Rheumatologist. I need some help, some advice. Any help would be appreciated. Thank-you.

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 9/25/2008 10:17 PM (GMT -6)   
Hi JG, first of all I'm not sure if you are a man or woman not that it matters except I wouldn't want to say anything silly if your and man. Anyway the first thing I suggest you do is take a deep breath. Let it out slowly. ok
Now to answer your question I can tell you one thing for sure. No one can answer your question. Because no one knows. The doctors probably don't know and that is why you are getting moved around so much. A lot of times the only thing they can do is treat the symptoms so you will find a lot of people here that see different people for different symptoms. You may have Lupus or some other autoimmune disease. You tests show that there is a good possibility that somthing is going on. It could litterally take months to years for enough symptoms to manifest for a doctor to come to a conclusion. It is the most frustrating disease I can think of. Some people have possitive ana's and not have lupus some people have neg. ana's and have it. it's only one of many tests. It's good that you want to read up on this stuff but I have been at it for 2 years and I still don't know have of what some of the people here know. That's why the group is so good. Someone here will have the same symptom and be able to give you some insight. I know one of our moderators suffers from vertigo and I'm sure she can help you with that. Your sed rate can go up and down like a yoyo. All that means is you either have some type of infection at the time your blood was taken or you don't. Mines gone from 68 to 7 in a matter of a few weeks because I started on meds. I think you should really keep pushing for the rheumy and if the one is of no help find another. They should at minimum give you something for your symptoms. You should not have to suffer just because they aren't prepared to come up with a DX. There are drugs out there that are pretty safe such as plaquanil which is one of thefirst drugs they give when they suspect many diferent autoimmune diseases. You may ask about it. It takes a long time to help but in most cases it does help. also even though it's a crumby drug possibly a small dose of predisone would be helpful for your muscle aches. I'm not trying to prescribe anything I'm just throwing out a few drugs that most of us take that seem to be a life saver in many cases.
Anyway I'm sure others will be around to help out and more important than that I want to give you a huge WELCOME TO THE GROUP!
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 Did you ever know that your my hero?

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 9/26/2008 1:18 AM (GMT -6)   
Lynnwood said...
More specific info on what your ANA test might mean:

The homogeneous (smooth) pattern is found in a variety of connective tissue diseases as well as in patients taking particular drugs such as certain anti-arrhythmics, anti-convulsants or anti-hypertensives. This pattern is also the pattern that is most commonly seen in healthy individuals who have positive ANA tests.

The speckled pattern is found in SLE and other connective tissue diseases, while the peripheral (or rim) pattern is found almost exclusively in SLE. The nucleolar pattern is found primarily in patients who have scleroderma.

Welcome to the forum JG !

I'm sorry you are having so much trouble with a dx. It often takes a long time to diagnose autoimmune issues. The above quote is from "Lupus Resources" . . . link at the end of my signature. There are also some other helpful links if you think you have lupus. One of them, "4 of 11" will give you some guidelines for diagnoses.

A rheumatologist would be the right doctor to see. Your blood work should have come with a set of normal ranges which will help you determine how far off they are . . . but I'm not good at putting it all together.

I hope you find some good info here.


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 9/26/2008 7:59 PM (GMT -6)   
Hi JG and welcome. I don't have much to add to the great information you have already been given. It can be so frustrating to feel sick and to not know what is wrong. Hang in there - a lot of us have had to wait a while to get a diagnosis. In the mean time, feel free to ask any questions you have and know that we are here for you through the rough times.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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