Help reading ana results

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BLUAZURE1818
New Member


Date Joined Sep 2008
Total Posts : 2
   Posted 9/26/2008 9:56 AM (GMT -7)   
I am searching for my diagnoses.  Family doc tested twice for Lyme, one borderline the next negative.  Sent to Rheumatologist, he says maybe Lupus.  My ana is not in the normal ratio form so I am not sure what it means.
 

ANA ELISA SCREEN

SEE IFA CONFIRMATORY TEST RESULT

 -   

 

ANA DILUTION

80

<40-  TITER

H

ANA PATTERN

SPECKLED

 -  PATTERN

 

 

I have compiled a list of symptoms.  I know, there's a lot of them, some may mean nothing, almost all are cyclic, accumulating over last 5 years, and I also think I may have hypothyroidism (still waiting on blood test results).  Any ideas?

 

Neurological Symptoms

  • Disorientation
  • Directionally dyslexic
  • Mood swings
  • Word block
  • Vivid dreams
  • Social phobias
  • Occasional obsessive behavior
  • Involuntary reactions to flickering lights

Head, Face, and Neck

  • Mouth ulcers
  • Frequent headaches (predominantly right side)
  • Occasional migraines
  • Acne
  • Hair loss
  • Severe jaw pain and locking
  • Increased dental problems
  • Frequent sore throats
  • Occasionally difficulty swallowing
  • Occasional swollen lymph nodes (in neck and behind ears, under armpits)

General

  • Weight gain (50 lbs. in 1 year)
  • Bruise easy (like hematoma under skin)
  • Dizziness
  • Hypersomnia
  • Papules on inner thigh
  • Increased allergies
  • Bright red unexplained stretch marks (took a long time to fade)
  • Motion sickness
  • Frequent and long-lasting viruses
  • Severe fatigue
  • Tremor after exercise
  • Dry skin
  • Strange rash on leg
  • Feelings of carpal tunnel
  • Brittle nails and hair

Circulatory

  • Heart flutters
  • Chest pain
  • Sporadic low blood sugars
  • Numbness/tingling in last 3 fingers of hands
  • Frequent night sweats (usually 4 out of 7 nights)
  • Flushed feelings usually with low grade fevers
  • Low body temperature (usually 97.6)
  • Increased sensitivity to cold
  • No ½ moons on nails

Musculoskeletal

  • Migrating Joint pain
    • Hips (extreme pain that radiates into upper thighs)
    • Hands/fingers w/ swelling and stiffness
    • R elbow
    • R shoulder
    • toes
  • Muscle weakness
  • Muscle aches especially in upper thighs
  • Decrease in muscle mass
  • Shooting pains
  • Muscle twitches sometimes in face
  • Neck stiffness, creaks and cracks

Eyes

  • Occasional floaters in eyes
  • Peripheral shadows
  • Spatial difficulties (problems with depth perception)
  • Sensitivity to light

Ears

  • Sensitivity to sounds
  • Ear pain

Psychological

  • Extreme Depression (suicidal tendencies)
  • Bipolar disorder
  • Brain fog
  • Memory loss
  • Loss of concentration

Reproductive

  • Pain during intercourse
  • Clotted menses
  • Lack of sex drive
  • Vaginal dryness
  • Cyclic urinary urgency
  • Vaginal lesions
  • Ultra sensitive skin patches at the same time as lesions (usually on skin of buttock and legs, sometimes on lower arms)
  • Lesions in butt crack
  • Occasional breast tenderness
  • One episode of unexplained lactation
  • Too much testosterone
  • Abdominal pain

Digestive

  • Nausea
  • Extreme acid reflux
  • Constipation/diarrhea

 

Medications

  • Doxycycline 100 mg twice per day for 1 month for suspected Lyme disease
  • Vitamin E 400 IU once per day for hip pain and brittle hair/nails
  • Cymbalta 60 mg once per day for depression
  • Cetirizine HCL (generic Zyrtec) 10 mg once per day for allergies
  • Omeprazole (generic Prilosec) 20 mg once per day for acid reflux
  • Provigil 200 mg once per day (beginning with ½ tablet) for hypersomnia
  • Yasmin 1 daily for birth control/testosterone reduction
  • Clindamyacin topical daily for acne

 


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 9/26/2008 11:27 AM (GMT -7)   
http://www.rapidtest.com/ANA_5102.pdf is about the ANA ELISA SCREEN
but what I am seeing does not fit with ELISA results. I think your results may be similar to 1:80 because of how it is given and the negative level given of 40 as most labs say 1:40 is negative it says dilution level was 80 which means 1 part to 80 parts of the dilution solution. I may not make much sense right now as my neuro issues are really bad now but I suggest calling the lab or your doctor's nurse for an explination if this doesn't help http://www.labtestsonline.org/understanding/analytes/ana/test.html http://autoimmunedisease.suite101.com/article.cfm/anatestpatterns http://www.lupus.org/webmodules/webarticlesnet/templates/new_aboutdiagnosis.aspx?a=364&z=15&page=2 http://www.lupus.org/webmodules/webarticlesnet/templates/new_aboutdiagnosis.aspx?a=364&z=15&page=3

I hope this was helpful. Maybe someone who has more experience with ANA tests will come along. My ANA was only positive once at 1:40 but I have so many of the other criteria I was dxed before it ever did go positive and it has been negative ever since that one positive result.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007,
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 9/26/2008 3:01 PM (GMT -7)   
Hi Bluazure,
 
I'm not sure what your ANA test results mean either. But your symptoms do sound like lupus and/or Fibromyalgia.  You actually have most of the symptoms I have!! I thought I was reading my own medical history smhair .
 
Bright red unexplained stretch marks (took a long time to fade) - that will be from your rapid weight gain.
Severe jaw pain and locking - classic Fibromyalgia symptom.  I had it too.  Very common.
Sporadic low blood sugars - another classic Fibromyalgia problem.  Very common in Fibro.
One episode of unexplained lactation - can be associated with a Pituitary gland issue.
Low body temperature (usually 97.6) - anything between 97 - 99 is considered normal.
 
Your eye symptoms are very familiar to me too.  I get everything you mentioned.  I was diagnosed with something called Amorosis Fugax syndrome - occular migraines.
 
Your symptoms sound a lot like Fibromyalgia and/or lupus.  I have almost everything you have written down!  It's freaky. LOL.  Lupus and Fibro have a lot of the same symptoms.  The one way of differentiating the two is that with Fibromyalgia, all of your blood tests will be normal.  If you get tests done for your joint pain, and they come back negative, or completely fine (no inflammation), then it's not really joint pain, but pain of the muscles, tendons and ligaments that surround each joint.  That will be Fibromyalgia.  I just learned all about this a few weeks ago!  I was having what I thougt was horrible joint pain.  but a bone scan confirmed that my joints were beautiful!!! I had no inflammation going on whatsoever.  So it's my Fibro that is the culprit these days.
 
I'd run this list past the gals in the Fibromyalgia forum. 
 
Ginny 
 
 
 
 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


blushladybug
Regular Member


Date Joined Sep 2008
Total Posts : 32
   Posted 9/27/2008 8:58 AM (GMT -7)   
hi,
I might ask the dr. to test for hypothyroidism (if i were you), as I have all of the symptoms you speak of as well, and so far all we have come up with is low thyroid......and some of the symptoms sound related to a possible systemic yeast infection.....i would try using antifungal creme on the fissures and the lesions down below and try taking acidophilus. just my 2 cents. I know that sounds trite...but some sx could be improved i think.......oh and if you do have hypothyroid....it could explain low body temp, aches, depression, hair loss, painful menses, sore throats, weight gain, FATIGUE.....OK so about 1/4 of the sx you mentioned.....and i mean hypo T MIGHT be the cause....not trying to diagnose you. I have alot of these symptoms and i am being treated with levoxyl, over the past 5 years. Please keep writing......keep us posted
krista
ps if you took risperdol, that can make you lactate....I DID and it freaked me out. nowadays they say my "bipolar" is actually PTSD (suicidal tendencies as well, esp. post partum)

BLUAZURE1818
New Member


Date Joined Sep 2008
Total Posts : 2
   Posted 9/30/2008 6:48 AM (GMT -7)   
Ugh, I am a mess. Yesterday I spent all day in the ER because my jaw locked and i can't open my mouth more that a 1/4 inch. All they ended up telling me is it's a TMJ flare and they can't do anything about it! Very frustrating.

Ginny, I did have x-rays for my bad hip pain and they were clean. Is this the scans you had or was it something more extensive?

Blushladybug, I am currently looking into acidophilus because I am on Doxycycline for 1 month incase it turns out to be LYme disease. So to prevent yeast, I am trying to find a good refridgerated brand. I do think I have hypothyroidism, but my TSH was fine. I just had my T3 and T4 levels tested and am waiting for results. I did not take risperdol, so my unexplained lactation is still unexplained. But this weekend I did speak to someone who has poly cystic ovary syndrome, and this seems to fit too. I also have 2 sisters with this condition, so maybe hypot and/or PCOS and/or Lyme and/or Lupis? I dunno which forum I belong in... Wow, I'm sorry to hear your bipolarism is from PTSD. The only thing I know about mine is it just started over the last 2 or 3 years. Very long cycles so depression seems to be never-ending.

Thanks for your replies, it helps to hear other peoples opinions, because in my opinion, some doctors are just as clueless as us.

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 9/30/2008 9:17 AM (GMT -7)   
Hi Blue,
 
The TMJ thing was brutal for me too.  Mine would lock open!!!  You can imagine how freaky that looked. LOL!  smhair I ended up getting surgery on the left side of the jaw joint.  The right side was fine.  After having tomography scans, MRIs, etc, they found that the cartilage in the joint was all messed up.  It was deformed.  So they went in and reshaped it, then stitched the thing to my ear canal!  I have never had an issue since.  I was 16 when I had that surgery.  I"m 34 now.  But it was a clear sign along with my petalla femoral syndrome (knee cap pain) that should have risen the red flag with my doctors that it was fibromyalgia I had. 
 
If you can talk to your dentist about the TMJ, they can refer you to an oral surgeon. That's the route I took.  At least you could talk to a specialist and get their advice on what to do. They might prescribe some physical therapy, or they might talk to you about surgery.  It's an option for ya.  A direction!
 
I take medicinal quality acidophilus too.  It's amazing.  Good that you're getting the refridgerated kind.  At least 10billion organisms too. I've been taking it for about 4 years now and I'll never go off it!!
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


zshep
New Member


Date Joined Jun 2010
Total Posts : 1
   Posted 6/24/2010 8:02 AM (GMT -7)   
I had all of those symptoms plus some for 3 years and thought I was going crazy and even some of my doctors started to make me believe I was. Then one doctor told me to stop taking Yasmin and see if that helped. Seeing that Yasmin was the only consistent thing in my life since my body started to fall to pieces when I was 25. That night I went home and thought I would see what other women had experienced on Yasmin, and for the first time in 3 years I knew I was not crazy, it was like reading my life. I stopped taking Yasmin in December of 2009 and i am grateful I did. Since I have stopped taking it most of almost all of my issues have subsided. Not all of them have passed but that vast majority of them have. My doctor said it will take some time for my body to repair itself again over time, seeing as it took 3 years to get to this state. I still have bad days here or there but they are so few and far between and after what I use to go through the bad days are a cake walk. It has been one of the hardest journeys of my life but my advise would be find good doctor that will listen to you and help re-balance your hormones. There is so much information that you need to read for yourself seeing as you know your own body and what you are feeling better then anyone else and any doctor out there. Talk to your doctor about it, do your own research on Yasmin and make a choice form there. Good luck and I hope the best for you.

jdrea
Regular Member


Date Joined Aug 2010
Total Posts : 124
   Posted 8/19/2010 12:46 PM (GMT -7)   
Also just to be safe go to a web site and check for drug interactions. You'd be surprised how often drs mess up and give you meds that should be mixed. It sounds like ANA to me too but which one? You have symptoms fron several. It maybe one of the overlapping ones. Good luck, I hope you feel better soon. Just Google for check drug interactions.
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