Questions about Lyrica

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Regular Member

Date Joined Mar 2008
Total Posts : 72
   Posted 9/26/2008 11:05 PM (GMT -6)   
So i saw my pcp today to get my ana retested because the last time in came up inconclusive. I have been experiencing terrible joint pain,rib pain and low grade fever. I have never had the rib pain before so it kind of scared me. It felt like all the connective tissue in between my ribs were on fire and putting on a shirt made the pain worse. it was like my entire body was on fire and I couldn't stand for anything to touch my skin. I just wanted to know if anyone else has ever experinced anything  like that?  My pcp put me on tramadol and lyrica because he thinks that because i have an inconclusive ana i must be suffering from fibromyalgia. eyes   Whenever doctors don't have the answers to your pain it must be fibromyalgia even though in feburary I had a positive ANA. I also informed my doctor that there are many people out there who don't have a positive ana and are diagnosed with lupus!! Then he told me that because I've never experinced the mylar rash and don't have some of the other classic signs of lupus it is less likely that I have it. I don't know anything else out there that can deplete your energy and leave your joints and entire body racked with pain and make your knucles swell up and cause you to have mouth sores!!! I finally see my rheumy on oct 13th. I am hoping maybe he can shed some light on this. Meanwhile I have to wait until tuesday to get my ana results. I've been on tramadol before and It's good for some of the pain, the rib pain isn't as bad as it was but it's still there. I took the Lyrica but didn't really notice a difference unless it has to build up in your system. Has anyone ever been on Lyrica before?? Does it help at all?? Also does plaquenil help more than lyrica or tramadol??
Thanks, Natalie

Veteran Member

Date Joined Jan 2007
Total Posts : 607
   Posted 9/27/2008 4:50 AM (GMT -6)   
I am sorry to hear about your pain. Lyrica in UK comes in 75 mg and 150 mg. I was in severe nerve pain and the neurologist prescribed this to me, and it worked a miracle. The pain stopped within a day, but the pills made me drowsy. For me, this Lyrica (pregabalin) is better than Tramdol or Gabapentin which I had taken before also. As far as I know, Lyrica is used to relax the nerve so the pain gets better (if the pain is caused by the nerve problems).
DX SLE 1988; Pred 10mg, Verapmil 40 mg bd (for migraine headaches), Omerprazole 40 mg,  Calcium + Vitamin D 1200mg, Folic Acid 5 mg

Regular Member

Date Joined Oct 2005
Total Posts : 315
   Posted 9/27/2008 7:02 PM (GMT -6)   
Hi, Lyrica can take up to a week to reach it's full effects and for you to notice any difference, if any. I've been taking it since February. I had alot of low back pain, muscle spasms & cramps, and nerve pains (though I do have lumbar spine problems aside from lupus). My Rheum was the first one to prescribe it for me but he told me it would "help my muscles feel better". Well, my muscles were not aching.. he had diagnosed me years ago with Fibro also, so that's probably what he was thinking when he prescribed me the Lyrica. Well, it does absolutely nothing for my muscle cramps or spasms, nor does it help any of the deep achiness I have in my lumbar spine, hips, sacral area, and pelvic girdle. But the Lyrica did help my nerve pains somewhat, even at 50mg per day. In my opinion, I think the deep aches and some of the cramp-like feelings I have are due to my spine (I had severe spinal stenosis & had surgery; I have alot of scar tissue in there; I have spinal arthritis that is diagnosed by x-ray's, MRI's, etc...) My spine surgeon thinks my hips are now causing me alot of my pain so I don't know. I cannot get any more imaging done now as I have no insurance coverage for it. But thankfully I went back to Pain Management and among other things, they now prescribe me Lyrica at higher doses and it does help alot with my nerve pains & symptoms. I still get them but not as much.
I've also been on Plaquenil for...I don't even know now, it's at least 3 years, probably more. I've taken 400 mg per day since the get go, though I did have to take oral prednisone at the same time for 8 months to get a flare under control. Since taking Plaquenil, I've not really had much of that severe fatigue, where you just can't move and want to sleep all the time. My hair also stopped falling out and I wasn't getting any rashes up until last summer. So something is going now with my rashes, but I don't know what. I mean, Plaquenil is pretty good to control mild Lupus, but one can still get flares. I've gotten some, but they were no where near as bad as before. (well, with the exception of when I get steroid injections into my spine....when those steroids wear off, then I get hit by a freight train).

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 10/1/2008 11:13 AM (GMT -6)   
Hi Natalie,

Was wondering how you are feeling by now?

The plaquenil can take up to 6 months to build in your system. It is a really important med, but doesn't give fast results for most of us. Are you taking it?

I'm glad your pcp hasn't referred you to a rheumatologist . . . I think you have enough going on that you should have a specialist (the swollen knuckles, mouth sores, and +ANA). Fibro does not cause swelling and is very painful, but doesn't damage joints.

Your skin hurting to be touched does sound like Fibro. But plenty of the members here have lupus and fibro. Some have RA too or Crohn's. And lots of us have Sjogrens and or Raynauds. The rheumatologist is trained to do the detective work required to deal with all of this. It would be great if you visited the fibro board so you could see what symptoms might be more like fibro and which are more like Lupus.

I hope your appointment on the 13th goes well. Don't except much in the way of answers. But your second appointment will likely bring more information.

Keep us posted!


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UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

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