Pain meds?! OTC?

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Lynnwood
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Date Joined May 2005
Total Posts : 7019
   Posted 9/27/2008 6:10 PM (GMT -7)   
I'm having joint & muscle pain everywhere...it's been ramping up over the past week and I'd stupidly not done anything about it and now it's the weekend.

It's not an ER pain level, just pretty darn annoying -- any tips on a good over the counter pain reliever and/or muscle relaxer? My pharmacist couldn't come up with anything but ibuprofen -- but I bet you guys have other tricks!!!

Using ice/heat, ibuprofen, and just found some xanax that helps a bit...and all my regular meds -- plus a rub-on arthritis/sore muscle product....

Suggestions welcomed, thanks

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


jhmom
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Date Joined Oct 2004
Total Posts : 2244
   Posted 9/27/2008 6:18 PM (GMT -7)   
(((( Lynn )))) if we lived closer I could give you some darvocet. It sounds like you are doing all the right things. I hope you get some relief soon. Take care and try a nice hot bath.
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Darvocet (as needed) and magic mouthwash (for mouth sores)


AUBGIRL
Regular Member


Date Joined May 2008
Total Posts : 30
   Posted 9/27/2008 6:21 PM (GMT -7)   
Hi Lynnwood.  I don't usually post because I have not officially been diagnosed with lupus. But I have been diaganosed with fibromyalgia.  I do have moderate joint and muscle pain when I am flaring.  I have found that Percogesic works very well for me.  It is over the counter and you can get it at Walgreens or CVS.  It is a souped up Tylenol, but the pharmacist says it works like a mild muscle relaxer. It usually eases the pain to a point that I can deal with it.  If I am really bad, I alternate it with ibuprofen.
 
 I hope this helps and I hope you feel better real soon.
 
Donna

PattyLatty
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Date Joined Mar 2006
Total Posts : 2570
   Posted 9/27/2008 6:30 PM (GMT -7)   
Lynnwood, sorry you're having such bad pain. I seem to remember my kids' doctor years ago suggesting that they alternate extra strength tylenol and ibuprophen every 2 hours, so you're only taking the tylenol every 4 hours and the ibuprofen every 4 hours. Check with your pharmacist to make sure I have that right.

It sounds like you're doing everything else right. The best heat for my joints is a bathtub full of hot water (& plenty of bubbles & soft music). After that I put ice bags on my joints.

I hope you won't suffer too much, Lynnwood because you could probably get enough pain relievers from the ER doctor to get you through the next few days. This probably isn't the place to bring this up, but this is where medical marijuana could really help you.

I hope you get some relief real soon.

Pat
SLE, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis, gluten intolerance.

prednisone, cellcept, plaquenil, celebrex, neurontin, synthroid, triamterene, ultram, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


okie
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Date Joined Dec 2006
Total Posts : 2818
   Posted 9/27/2008 7:23 PM (GMT -7)   

I'm sorry you're hurting. Yes I have noticed that xanax does help the muscles relax some. Don't laugh but I have gotten some releif from the roll on type absorbine jr. I have also used vicks vapo rub on muscles and then used the warm corn bags that rosie sent me.That and rest at least held me over the weekend. 

good luck


 
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 Did you ever know that your my hero?
 
 


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 9/27/2008 8:42 PM (GMT -7)   
Hi Lynnwood . . . so sorry you are in pain.

I have found that sneaking in a tylenol with the ibuprofen ramps it up enough to be noticeably more effective. This can also be enhanced with caffeine if you can tolerate it. *sigh* I hope you feel better soon. Hot bath time??? Usually too much effort when you feel so bad.

I hope you sleep well tonight.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


redrose77
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Date Joined Sep 2005
Total Posts : 2573
   Posted 9/27/2008 9:16 PM (GMT -7)   
I found no otc that ever really did me any good alone. But combine the tylonol arthritis with what I have in scripts and it does wonders but I can only do it 1x or I get a rebound headache. My migraine's have odd triggers. Might call your on call doctor and ask for 2-3 days of pain meds called in just to get you through the weekend. They often will if you ask for just enough till the office opens and you can be seen by your regular doctor
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements


Bsime
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Date Joined Apr 2006
Total Posts : 1298
   Posted 9/28/2008 7:29 AM (GMT -7)   
Lynn,
 
I had joint and muscle pain that was very bad in the first six months after onset.  Have mctd so the muscle pain was probably related to polymyositis.  My docs concentrated on controlling my immune system and once that was done with prednisone and then ivig and imuran the joint and muscle pains went away.  Except for the fact that I had severe muscle loss (40lbs) which caused a whole other set of problems and pains.  My joints were no longer being held in place by normally strong muscles and any movement I made strained my pathetically weak muscles.
 
Today I have some joint pain but it seems to be the osteoarthritis I had before getting sick.  I am only on 5mg of pred and 50mg of imuran and do occasionally take NSAIDs.  Had an old prescription of celebrex and that works wonders but I need a new prescription and have to discuss the benefits of taking it with my rheumy.  Advil helps but is not anywhere near as effective as celebrex for joint pain.
 
In my opinion you seem to having a flare and your current meds are not sufficient to counteract it.  You are on a low dose of pred and plaquinel is used for mild cases.  Maybe your controlling meds are just not enough.  Was there a reason you stopped cellcept? 
 
Just some thoughts.  I always prefer treatment of the underlying condition instead of treating symptoms if possible.
 
Bill
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
 
Meds: prednisone 5mg, 50mg imuran, Lotrel 40/5mg, maxide 37.5/25mg, folic acid, potassium, aciphex 20mg, multi vitamins.
 
Maintain your optimism and you can beat the odds.
 
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller
 
 


hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 9/28/2008 7:39 AM (GMT -7)   
I agree with Bill that it sounds like you might be heading into a flare and that your lupus isn't under control right now. I don't have any other ideas other than the ones already suggested. I wasn't aware of the percogesic available at the pharmacy. I might have to check into that. I hope you find something that helps. Being in pain with no relief is hard on your body. I know for me, if I don't get my pain under control, my body goes into a downward spiral. Take care of yourself.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

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Lynnwood
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Date Joined May 2005
Total Posts : 7019
   Posted 9/28/2008 9:11 AM (GMT -7)   
Hi everyone, thanks for your suggestions.

about the time I posted, I thought of taking some Xanax - it helped a lot and most of the pain is gone (so far) today with the exception of my lower back -- which I think is a partial injury from assembling a new dining room table last Monday.

In the interests of full disclosure --

I didn't hit the ER as most of my body was only a 5 pain level yesterday -- it was the duration that was getting me down (and each day a level was added!). I don't know that I have an "on call" doctor -- partially as I have *never* had to take pain medication before, so there was no established protocol for a 'new' doctor to follow.

As with many of you, I have to take several pills each day. I count them out 6 weeks at a time, and each time I count them it seems like I have to come to terms with having a chronic illness all over again. So sometimes it's just too hard, and they don't get counted for 4-5 days (and I don't take them if they aren't counted). So I hadn't taken my meds since Tues or Wednesday. (Yeah, I finally counted yesterday, and am back on schedule today.)

While it may be or may not be a flare, this pain is certainly different - mostly as I haven't had much pain previously. It matches more with fibromyalgia symptoms than lupus...it's only 2 weeks till my regular rheumy appointment, and I'm going to talk with him then about maybe getting a standby pain medication to have on hand.

As for the "Why did you stop Cellcept?" question -- I was taking Cellcept in a wild attempt to stop some serious cognitive issues that were increasing rapidly -- not what it was intended for at all. It is actually a big-guns immuno-suppressant used in transplant cases. Once the cognitive issues begin to improve, we stopped the Cellcept. Unless *required* by a transplant, it is strong enough that it is not supposed to be used more than 1.5-2 years. We stopped mine at about 18 mths, and that was well over a year ago.

Meanwhile, the suggestions for Percogesic and alternating acetaminophen/ ibuprofen make sense -- although I am curious why doubling my normal dose of Piroxicam didn't seem to have any effect.

I'm so glad for the quick responses -- if I'd woken up today feeling like I did last evening I'd be out roaming the drugstore isles again today! (Last night I went out & got an additional heating pad & a new kind of topical analgesic.)

Thanks everyone,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 9/28/2008 10:20 AM (GMT -7)   
I'm happy to hear that you're feeling a little better today, Linnwood. Your description of counting out pills hit home. I can never manage to get more than a month's worth of meds and they don't all refill at the same time, so if I'm lucky, I can count out two weeks at a time. But at least they help!
SLE, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis, gluten intolerance.

prednisone, cellcept, plaquenil, celebrex, neurontin, synthroid, triamterene, ultram, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 9/28/2008 10:39 AM (GMT -7)   
It took about a year of wrangling, but I eventually worked it out so that my dr prescribes for 3 month refills (my insurance likes that, too) and they all come up at the same time. It was tricky, and I had to really concentrate on what my end-goal was, but well worth the effort -- managed to get dr & pharmacist to help me. I'd go crazy if I had all the prescriptions renewing at different times.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 9/28/2008 4:39 PM (GMT -7)   
Lynwood, I use Extra Strength Tylenol for my aches and pains. It doesn't work great but it helps take the edge off the headaches. I am interested to hear what others use as well.
 
Hope you are getting some releif as the weekend goes on.
 
Connie
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.Thyroid Disease ,RA
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 9/28/2008 5:11 PM (GMT -7)   
I just found out that my wonderful rheumatolgist that had to give up his practice last fall passed away yesterday. Those of you who know me know what a wonder doctor and wonderful man I thought he was. He really was one of the most inspiring people I've ever known, and I've never said that about anyone else.

It crossed my mind that maybe my pain yesterday was tied to Dr. Sam Schatten, may he rest in peace.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 9/28/2008 7:10 PM (GMT -7)   
Hi Lynnwood,
 
I'm jumping on your thread a bit late here.... I was actually thinking about your Fibro, when I read that you were thinking it might be that too..... I've had my share of Fibro related garbage the past 8 months, and like you said, nothing works to combat the pain.  I didn't want to resort to any analgesics or narcotics, but I gave Tramacet a try.  It's the little sister of Tramadol. It's an analgesic, more potent than Tylenol 3's, but not a narcotic.  It did a fairly good job for my pain (but not perfect).  I still had a lot of issues with my lower back, neck and feet.  Took the edge off for sure, and made me insanely drowsy - so I had to stop taking it.  I have kept the meds in case I'm desperate!!  It does require a prescription though :(
 
But I know what it's like to not have any relief from the pain.  I sure hope you do feel better tomorrow too. Pain is so draining.... 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


MJLD
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Date Joined Jul 2007
Total Posts : 1048
   Posted 9/29/2008 6:23 PM (GMT -7)   
Lynnwood,
I am sorry you've been in pain and I am really sorry about your doctor. I feel much the same about my nephrologist and would be really sad if something happened to her. God Bless your heart, Judy

Tá mé breá
Regular Member


Date Joined Aug 2008
Total Posts : 140
   Posted 9/29/2008 8:27 PM (GMT -7)   
I don't know if you can find it where you are, but the barnes & Noble here has these teas. one of them is called yellow & blue I think. anyway it is lavender and chamomile. I swear I drank a large (2 tea bags steeped for 10 min) and If I'd have relaxed anymore I'd have wet the bed! it's worth a shot. I went back the next day and bought the whole tin!
Marie-43 yr old mother of 6 grandmother of 1 going on 2!
dx 2008 - myelofibrosis - possibly autoimmune, osteoarthritis in spine, testing for possible MS or CNS lupus / vasculitis. family history - mother RA/Lupus maternal gma - lupus.
rx-cymbalta, propranolol, clonazapam, prednisone, progesterone cream, b6, b12, flaxseed oil, C.

"All we have to decide, is what to do with the time we are given" ~ Gandalf


hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 9/30/2008 7:24 AM (GMT -7)   
Lynnwood, I'm really sorry to hear about the death of your old rheumy - I know how much you thought of him as a person and a doctor. We need more docs like the kind of doc he was.

I hope you are getting some relief. I'm glad to hear the xanax helped some with the pain. Take care.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 9/30/2008 10:00 AM (GMT -7)   
Pain seems to have wandered off to bother someone else for the time being. I'll be asked my doctor about something to have on hand in the future.

Thanks for the responses!

And thanks for the comments re my rheumy -- he was president of the largest Jewish community in Atlanta (had worked part time so he could fill that volunteer position), very active in the local lupus chapter, active in a variety of medical research collaborations, assisted in mental evaluations of incoming med students at Emory, very active in fragile-x research & funding (3 of his 4 boys are afflicted in a "high-functioning autistic" manner), created and lobbied for national funding to get defibrillator's in elementary, middle, & high schools (See CLEAR coalition), sweet, smart, funny...and a wonderful healer and an optimistic inspiration -- he said "we can make you feel better" and it was the best, most believable and sincere comment I've ever heard! I miss him every day.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


redrose77
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Date Joined Sep 2005
Total Posts : 2573
   Posted 9/30/2008 11:13 AM (GMT -7)   
I am sorry about your rheumy. I wish there were more like him out there. My rheumy would cure everyone if she could but since she can't she does her best to make life more comfortable.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements


oldhippyrebel
Regular Member


Date Joined May 2008
Total Posts : 58
   Posted 9/30/2008 12:21 PM (GMT -7)   
I hate taking any pain meds so what I've found sometimes is just to fill the tub with hot water and soak in it. Plus find someone very good at giving massages. Nothing less than an hour. I've found a girl here that is good and sometimes I even go to the hour and a half. yeah yeah yeah
 
I'm hoping to get one real soon. Afterwards it is like I'm in heaven. I hate getting up off the table.
Fibro since 97, Lupus since 99, neuropathy and other nerve damage.
On to many Meds to list, Finally got a date for SSA of July 1 after to many years of fighting for a hearing.


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 9/30/2008 12:50 PM (GMT -7)   
Oh Lyn . . . I'm SO sorry to hear that your sweet doctor passed. *sigh*

What a huge loss. I hope he passed his caring touch on to some of his colleagues. Some things you just can't learn in medical school. I really believe that the confidence we have (don't have) in our doctors sets the tone for how well our treatment plan will work. Everything just feels better when we know we've been heard.

Thinking of you Lyn.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

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