need someone to talk to about new lupus diagnosis

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chedi
New Member


Date Joined Sep 2008
Total Posts : 2
   Posted 9/27/2008 6:33 PM (GMT -7)   
Hello,
My name is Chedi and I have recently been diagnosed with lupus (2mths). I am still leArning about this disease and would love if I could meet some online friends who have experienced the same disease as this would help me to know that I am not alone. I usually experience joint/muscle pain, i am very sensitive to sunlight, found that sometimes I know get shortness of breath and mild chest pain, and recently my appetite has decreased.My email address is <edited for your own safety>.

Thank you!

<Edited: For your own protection, it is best to add your email address to your own profile (then it will show up in the little envelope to the left beside your name) - click on Control Panel & follow the directions - this keeps online software from scanning this site & collecting your name.>

Post Edited By Moderator (Lynnwood) : 9/28/2008 10:19:40 AM (GMT-6)


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 9/27/2008 7:31 PM (GMT -7)   
Hi Chedi, welcome to the group. I'm sorry you have to deal with this disease. You will make lots of friends you will love to chat with you about what you are going thru. I did want to suggest somthing to you though. You might want to go to the control panel at the top and click on it. scroll down to where it says show my email address. That way only people that belong to the group can see your email addy. Otherwise anyone who comes to this site can get it.
I just wanted to say welcome to the group and I look forward to getting to know you
carol
 
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 Did you ever know that your my hero?
 
 


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 9/27/2008 8:14 PM (GMT -7)   
welcome, if I were feeling better I would say more but know you found a good group of people who are really supportive.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 9/27/2008 8:39 PM (GMT -7)   
Welcome to the forum Chedi,

I hope you will ask any questions you might have. The folks here are great to help with questions. . . we do most of our sharing right here because when folks ask questions and members post answers . . . we all learn.

Meanwhile, there are some links at the end of my signature that might be helpful.

Blessings!!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 9/28/2008 7:42 AM (GMT -7)   
Hi Chedi and welcome. I'm sorry to hear about your lupus diagnosis - it's a hard disease to deal with. I know how overwhelming it can be after getting diagnosed and you have come to a great place to ask questions and get support. We are here for you and I'm glad you joined us.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 9/28/2008 8:19 AM (GMT -7)   
Hi Chedi, and welcome to the forum. If you'd be comfortable sharing your story with us, we'd love to know more about you, your symptoms, and what you've been going through. There are people here of all different ages, from different backgrounds, and with different health problem, but we all come together to help one another. I believe the easiest way to get acquainted is to tell us about yourself, and we'd love to hear from you.

Pat
SLE, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis, gluten intolerance.

prednisone, cellcept, plaquenil, celebrex, neurontin, synthroid, triamterene, ultram, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 9/28/2008 9:21 AM (GMT -7)   
Welcome, Chedi -

The others are right on target & I just want to add my welcome to theirs.

Also wanted to let you know that I have removed your email address from your post -- For your own protection, it is best to add your email address to your profile (then it will show up in the little envelope to the left beside your name) - click on Control Panel & follow the directions - this keeps online software from scanning this site & collecting your name.

Cheers,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 9/28/2008 2:30 PM (GMT -7)   
chedi said...
Hello,
My name is Chedi and I have recently been diagnosed with lupus (2mths). I am still leArning about this disease and would love if I could meet some online friends who have experienced the same disease as this would help me to know that I am not alone. I usually experience joint/muscle pain, i am very sensitive to sunlight, found that sometimes I know get shortness of breath and mild chest pain, and recently my appetite has decreased.My email address is <edited for your own safety>.

Thank you!

<Edited: For your own protection, it is best to add your email address to your own profile (then it will show up in the little envelope to the left beside your name) - click on Control Panel & follow the directions - this keeps online software from scanning this site & collecting your name.>
Shortness of breath is definitely a symptom of Heart problems.  I had been having shortness of breath and chest pains in 97 and 98.  and in 98 I had a bypass.  I would pay that shortness of breath some attention, because it does not go away, it only got worse for me.  Now after a heart attack last year, I get out of breath walking to the kitchen from my bedroom, or holding my arms up to twist my hair up.  But I think some of that is due to pain in my arms and shoulder.
What they told me to do is if I feel the shortness of breath and/or the pain in my chest, to stop whatever I am doing and sit down, or lay down if possible.+
Glad to have you here, for as a wise Seneca Indian once said, "one stick standing alone is easiy broken, but if you add many sticks to that one, it is harder to break all of them."  Not his exact words, but close enough.
Got to lay back down,  the dizziness and nausea, weakness and diarrhea has returned.
Hester
 

Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  


smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 9/28/2008 4:35 PM (GMT -7)   
HI Chedi and welcome to the group. You will find lots of kind caring people here who will help you out anyway they can. You will soon fit right in. And I'm sorry you have Lupus, it really sucks, but there is life after Lupus, remember it could always be worse.
 
Connie
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.Thyroid Disease ,RA
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 9/28/2008 4:42 PM (GMT -7)   
smokeyswife said...
HI Chedi and welcome to the group. You will find lots of kind caring people here who will help you out anyway they can. You will soon fit right in. And I'm sorry you have Lupus, it really sucks, but there is life after Lupus, remember it could always be worse.
 
Connie

Sorry Chedie, I got so caught up in your other symptoms, I forgot to welcome you to the group. yeah
 
I look forward to hearing more from you and the way you are coping with your symptoms, other people, doctors, etc.  Hopefully a rheumatologist will get your confusion, and not knowing what to do straightened out to some degree.  Please do write back as often as  you can.
 
Hester
Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  


chedi
New Member


Date Joined Sep 2008
Total Posts : 2
   Posted 9/28/2008 9:33 PM (GMT -7)   
Thany you guys for the support, I appreciate it. I can feel the love already! I appreciate it
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