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okie
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Date Joined Dec 2006
Total Posts : 2818
   Posted 9/28/2008 11:58 AM (GMT -7)   
'm having my pet scan for my lungs in the morning please keep me in your prayers that they don't find anything serious. I have to say I have been fighting depression this weekend.
Has any one had this done? what do they do and how long does it take? Also how long does it take to get the results back? thank you.
Hope everyone is having a comfortable weekend
hugs
carol
 
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 Did you ever know that your my hero?
 
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 9/28/2008 1:53 PM (GMT -7)   
(((((((((( Carol ))))))

I know its painless . . . but I don't know how long you need to lay still for the images.

Unfortunately the speed of information/results will be totally dependent on the "guy" reading the scan . . . and then his staff getting info to your doc. . . etc. BUT. . . I've heard of more and more people getting info "on the spot". I hope they can give you some encouraging news.

Keep us posted!!!

Prayers, hugs, and . . .

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 9/28/2008 4:21 PM (GMT -7)   
(((((Carol)))))) You will be in my prayers tomorrow. I hope you don't have to wait too long to get some news.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



mygrljes
Regular Member


Date Joined Mar 2008
Total Posts : 110
   Posted 9/28/2008 4:30 PM (GMT -7)   
I wish you the best of luck Carol, and I will keep you in my prayers. (((hugs)))
Robin
 
dix: lupus sle Jan. '99, hypo-thyroid Mar. '06
rx: pred. 5mg/day, plaquenil 200mg/day, levothyroxine .112mg/day, premarin .45mg/day, methotrexate 7.5mg/week, folic acid 1mg/day
 
 
Also a wife and mother of three.


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 9/28/2008 7:19 PM (GMT -7)   
Hey Carol,
 
I've heard it's pretty easy too.  Just have to lay really still.  I'll be praying for you too!  Let us know how it goes, okay,
 
Love
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 669
   Posted 9/28/2008 9:41 PM (GMT -7)   
Just wanted to tell you I'll be adding my prayers to all the others. Peace and blessings -
Lucy
diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; CEBV 2005; UCTD (dx limbo) 2007
meds:  occasional low dose xanax for sleep, artificial tears w/ ointment at night, ibuprophin (none of which manages the problems very well!)
 
We cannot avoid the birds of sadness flying over our heads, but we need not let them make nests in our hair. 
       ~~ Chinese saying as quoted by Helen Nearing


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 9/29/2008 7:11 AM (GMT -7)   
Carol, I hope today is not too stressful and you know that I'm real anxious to hear the results. I hope your weekend went well.

((((Hugs))))

Pat
SLE, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis, gluten intolerance.

prednisone, cellcept, plaquenil, celebrex, neurontin, synthroid, triamterene, ultram, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 9/29/2008 6:13 PM (GMT -7)   
((((((((((Carol)))))))))))))))
I am praying for you. Judy

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 9/29/2008 7:10 PM (GMT -7)   
(((((( Carol ))))) Warm thoughts . . . was just peeking in to see if you had your scan today. Wondering if they shared any info with you.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 9/30/2008 9:18 AM (GMT -7)   
Hi Carol,
 
Just checking in with you.  Hope you slept well last night.  You're in my thoughts and prayers sister!!
 
Love ya,
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 9/30/2008 9:49 AM (GMT -7)   
okie said...
'm having my pet scan for my lungs in the morning please keep me in your prayers that they don't find anything serious. I have to say I have been fighting depression this weekend.
Has any one had this done? what do they do and how long does it take? Also how long does it take to get the results back? thank you.
Hope everyone is having a comfortable weekend
hugs
carol

I have had the pet scan, but thought it was the full body scan that I took.  They put the dye into your veins, and you have an IV line. and then you roll to a certain place and the machine does the rest.  They tell you to hold your breath at certain places, and that was hard for me.  Supposed to be for thirty seconds, but seemed longer to me.  smilewinkgrin they only require you to do your best however.
 
Will look for your post tomorrow to find out how it went.  I am pretty sure that I took my xrays with me, the same day I was tested, and took them to the doctor that requested the test.
 
Will pray for this to be nothing at all.  that it will be just a precautionary test.
 
Hester
Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 9/30/2008 4:01 PM (GMT -7)   

Hi everyone, thank you all for your thoughts and prayers. I'm sorry I didn't respond before now. I have been to so many appt: and other stuffs that When I had a little time I spent it relaxing or sleeping.

Anyway, my pet scan went well if you don't think about them putting radiation in your veins to light up your insides. The hospital is a fairly decent size hospital but they took me outside in a huge semi tracker trailor. With chairs that kick back to relax. They won't even let you read a book for 45 mins. because they don't want your brain to function and have the tracers in the radiation/sugar water go to your brain. Weird huh? Good thing I was tired I took a little snooze while kicking back.

The test was a breeze but the tech blew out 1 of my veins trying to put in the radiation. My veins are shot and it was in my hand. redface OUCH.

 I got this paper afterwards that said if you are a parent and grandparent don't let  a child set on your lap for the rest of the day or be close to them if at all possible. Than it said flush the pot twice when you use it. turn .

I was scared my little 6 week old kitty would get sick so I wouldn't hold her. confused So it's been over 24 hours the dr. office said that when it came back they would give me a call. I'm thinking no news is good news. So with all you guys on my side I just know it will all be good.

Anyway sorry I didn't get back to you sooner. but thank you all again. I will let you know as soon as I know.

love ya

carol


 
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 Did you ever know that your my hero?
 
 


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 10/1/2008 6:45 AM (GMT -7)   

 The hospital is a fairly decent size hospital but they took me outside in a huge semi tracker trailor.

Hey Okie,

They have the same thing here.  I am glad that it went well for you, except for the blown vein.  I wonder why they have the tractor trailer rig.  Have never asked them.  I guess they could use it on site anywhere if they needed to do so.

I know what you mean about going to appointments and getting tests done.  It is exhausting.  Hopefully you will get some answers soon.

Take care

Hester


Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/1/2008 7:05 AM (GMT -7)   
(((((((( Carol )))))))

Sorry about your vein! that sounds painful.

Yes! Good thing you thought about kitty! Hmmmmm . . . when you said you have to flush twice, I wonder how much of this stuff ends up in our water? Ha haaa!! We'll all glow in the dark!!

Funny about the 45 minutes with nothing in your head . . . ummmmm. . . . my brain is always going a mile a minute . . . I wonder how that affects the test???

Will be watching for your results.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 10/1/2008 3:31 PM (GMT -7)   
Carol, I just wanted to let you know you've been in my thoughts and prayers.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 10/1/2008 8:29 PM (GMT -7)   

Hester you don't live in oklahoma do ya? I don't know about the semi. I thought it was because the equipment is so expensive but maybe it has to do with the radiation confused

Rosie have you ever seen my scores on trivia? Not having anything in my head is not the unusually tongue If your brain is always on the move you would probably look like an alien with glowing green eyes or somthing lol. scool shocked .

Hey ya Hippi, how r u feeling hun? Did you get over your weekend trip yet? I know you have been feeling pretty sick.

I'm sorry I'm not on top of my game with what everyone is going through. I guess I've been kind of selfish thinking about me me me the last few days. Hopfully I'll have results tomorrow and I can breath again. They told me they would expect them tomorrow.

thanks for your response

love ya guys

carol


 
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 Did you ever know that your my hero?
 
 


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 10/1/2008 8:53 PM (GMT -7)   
Carol,
Glad you made it through okay. Those scans are really informative, like they will find all kinds of things. On one test they did on me they found some metal shot from a rabbit I had one winter. I had a gallium scan, which is a little different, they use a tracer that has the "biohazard" symbol on it and it's in a container like a small nuclear bomb. Then they inject it and I had to come back every day for three days. They watched it go all through my body. The next step was a pet scan, but they are reluctant to do that to me unless it's really necessary. The gallium scan was inconclusive for lymphoma, and I decided that if I got lymphoma type symptoms, I'd follow up because it just could be sjogrens. The PET scan is supposed to be much better.
 
I think you are right about not getting some quick emergent phone call. I know with the gallium scan, the gallium accumulates in tumors and in any inflammed area, so you could have an infection, or you could have a tumor. It is useful in showing where they might biopsy. Mine lit up in so many lymph nodes and my eyes and it wasn't practical to biopsy them all, especially with a pretty good cure rate with later stages of lymphoma, so its a wait and see for me. It's probably just sjogrens or even sarcoidosis type problem in my case. I may get another scan later to see if things have gotten much worse.
 
I don't know how the pet scan works, but what is really nice about these scans is it shows all these places where you had these little aches and pains and you can say "see, I really did hurt here!"  
 
I can't imagine not being able to read or think, I wonder what happens if you have trouble thinking, like the confusion I'm having now. Maybe it just spins around and around in your head!
 
Wow, that would be hard about the kitten. You seem cheerier. I hope the docs are doing right by you.  It sounds like it. I've been praying for you. Sorry I haven't been on, because I've been really dizzy lately. Take care and know I'm thinking of you.
 
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 10/1/2008 9:23 PM (GMT -7)   
Oh Marji, thank you so much for your prayers and getting back to me when you are having such a rough time. Are they doing anything to help you with your dizziness? Is it vertigo?
I'm sorry but you did make me laugh. Buck shot from a rabbit! tongue Who would have thought. Yes the tube they used on me was metal and it looked kind of like a small nuclear bomb too. There were bio hazard signs all over the place. I guess if you wern't sick before you went in you will be afterwards huh? Thanks for all the info now I am really curious what they will find. Maybe I swollowed a peice of gold or a diamond or somthing? That would be cool. I'd demand a biopsy!
You take care of yourself and keep us informed of how you are doing please.
love ya
carol
 
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 Did you ever know that your my hero?
 
 


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1549
   Posted 10/2/2008 6:00 AM (GMT -7)   
Hi Carol. I'm sorry that I haven't been keeping up with your posts. I sure hope everything is okay. I have a friend, Patty, who used to work as a radiation tech. She told me about a man who had to have radiation very close to his private parts. To protect his jewels, Patty was to place an 8 pound hollow lead ball around them. The ball came in 2 pieces. She placed the precious cargo in the bottom half of the heavy lead ball. The top half had to be placed exactly so nothing would be damaged. She carefully set the four pound top half down to secure his package and he screamed. Oh @$#!!! She thought she smashed something and pulled the top off. Then the man said, "Just kidding." Well, just something funny to brighten your day. Love, Donna   

Dx: SLE ('05), depression, diabetes, fibromyalgia, gerd, sleep apnea, hypertension, IBS Tx: CellCept, plaquenil, prednisone, lisinopril, actos, lipitor, nexeum, prozac, seroquel, celebrex, actonel
prn: arthritis tylenol, neurontin, promethazine, ambien.  multi vit, C, flaxseed oil, acupuncture
Donna
 


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 10/2/2008 6:02 PM (GMT -7)   
Donna LOL!!! That poor man!

Carol I'm so glad they are checking you out so thoroughly. These scans are so good, they can really get a grip on things. I'm still dizzy off and on, its the meds, but trying not to be a big complainer. Need to get through it and it's not going to be pretty in my case. Every day is different. Protein weight control smoothies are my savior, much better than ensure or something. More filling too. I swear, no matter what is wrong with me my appetite is switched on. Most people lose a lot of weight on this. I get the liver damage and still gain weight. Probably my pituitary, that might make me a little dizzy too.

I read something on another site where probiotic yogurt is good for your liver and ascites, fluid accumulated with liver disease, so I'm taking that. Good for alot of things I guess, I have probiotics in my Whey Protein weight loss smoothie mix. My favorite is peach and red raspberry frozen fruit mixed with a little bit of V8 tropical smoothie juice (tastes peachy mango), some sugar free raspberry syrup and plain yogurt (since the probiotics and benefiber type stuff are in the whey protein powder mix) with the whey powder mix. Then I mix in the blender. If its too thick and sweet, I add more powder, split into separate tupperwares drink containers and add juice or water before I drink it. I'm so nauseaus this is good. It's hard to find a really good whey powder that is lower sodium and potassium and high protein with all the calcium and vitamins and fiber and probiotics all added. It was formulated by a bariatric MD and is really cheap. You still have to eat some solid food, but when you are really nauseaus, it helps. I like that it has all the calcium and all. I believe its gluten free too. It has a small amount of soy, but not much. I think it was like twenty bucks for a huge coffee can size. I looked at puritan's pride, but this was cheaper, better and more complete because benefiber is expensive and so is probiotic yogurt and calcium and all the vitamins. I don't get so dizzy when I substitute and/or supplement with it.

Take care and much love to you. If you or anyone is interested in this powder, I can let you know what I got. And if you know of anything good like that, let me know.
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn

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