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alexb73
Regular Member


Date Joined Apr 2007
Total Posts : 27
   Posted 9/30/2008 1:44 AM (GMT -7)   
i've taken an ana screen and it wa negative.

i know not all AI patients have a positive ANA

but is it worth to keep testing ANA ? or once you get a negative you'll always get a negative?

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 9/30/2008 7:20 AM (GMT -7)   
Your ANA can fluctuate, not only in numbers, but it can fluctuate between positive and negative. My doc told me that once he sees a positive number, he considers a person to have a positive ANA and doesn't see a need to keep re-testing. However, if you've never had a positive ANA and you continue to have symptoms, it would be a good idea to get tested every so often. My son, who has arthritis, fluctuates between a positive and a negative ANA.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 9/30/2008 10:10 AM (GMT -7)   
alexb73 said...
i've taken an ana screen and it wa negative.

i know not all AI patients have a positive ANA

but is it worth to keep testing ANA ? or once you get a negative you'll always get a negative?
I would keep getting the test done too, just to make sure. 
 
Hope the rest of your day is good to you
Hester
Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 9/30/2008 12:53 PM (GMT -7)   
Hi Alex,

They've never caught mine negative at the time of testing either. I've only had it tested about 3-4 times . . . but even our meds can help it go down or negative.

My rheumy said that each blood test is just a small "slice" of things. It only gives a snap-shot . . . not the whole picture. There are several here who are being treated for lupus who have never had a positive ANA.

Is your doctor treating your symptoms??

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 9/30/2008 2:57 PM (GMT -7)   
There are several here who are being treated for lupus who have never had a positive ANA.
 
Hey Rosie,
 
I think this is the most important.  If our symptoms are being treated, and we can feel better, and stay off the bed so much, that has to be the most important Part of our journey with Lupus.
 
Hester
Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  


puccini914
Regular Member


Date Joined Jun 2008
Total Posts : 363
   Posted 10/1/2008 3:54 PM (GMT -7)   
My ANA was really high but I don't know the numbers. I also had a positive RF. My Rheumy kept running the ANA and he kept saying it was "significantly positive" I've been on Plaquenil 400 mg since last November and then he put me on a 3 month trial of Imuran. After being on the Imuran my ANA came back negative, at which point he says" I'm not convinced we're dealing with an inflammatory AI condition", at the same time my hands were swollen, red and hot to the touch. Needless to say, I am no longer seeing that particular Rheumy. From what I hear finding a good doctor is the toughest part of any chronic illness. My PCP is great and addresses each problem with concern as to how it affects my daily life. Thank God I found him. I wish you the best of luck.

Jennifer

PCP DX Lupus and Fibro, Taking plaquenil, Cymbalta, Flexeril,Claritin, Zantac,Ambien,vitamin B-12, multi- vitamin, Darvocet.  Homeschooling Mom of 2 boys 1 and 6.  Symptoms: Fatigue, joint pain, heat/sun sensitivity, mouth and nose sores, malar rash, migranes, awful hives, positive ANA, and RF.

 

 


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 10/2/2008 8:35 AM (GMT -7)   

Thank you Jennifer.  I don't know how much info this doctor would think is enough.  At least you have one good doctor, and maybe he can help to find you a good rheumy too.

Does our blood work show less and less positive results the more meds we take?  If they help us, does that cause the blood work to change, I wonder. 

Hope this day will be good to you

hester


Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 10/2/2008 8:54 AM (GMT -7)   
Hester that is a great question to ask. Yes, once you've started treatment, the meds can mask what is going on. Only because you're starting to get better!!  So, even if you don't have a definitive diagnosis, if the treatment is working and your labs are coming back improved or much better, that is a terrific indicator to you and your doctor that the treatment was neccessary. 
 
I think it's really important for everyone who is waiting on a name for this illness you have, to know that if the name Lupus never gets used or put in your chart, it doesn't mean you don't have it, it might also mean that you have a mixture of inflammatory disorders that overlap each other.  That's called MCTD or mixed connective tissue disease.  I know it's important to have a name for your illness, but when you're dealing with these types of AI diseases, sometimes MCTD or UCTD (undifferentiated connective tissue disease) will be used instead of just Lupus. Regardless of what the name ends up being, the treatment is the same.
 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 10/2/2008 2:56 PM (GMT -7)   
Once a year sometimes twice my rheumy checks my ANA I was dxed with a neg one and only once have we gotten a low positive. But she checks because if we ever get a positive one it will help me when she retires so I can keep getting the treatment I need.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 10/3/2008 4:35 PM (GMT -7)   
thank you ginny for the answer to my question.  It would make sense for this to be true.  And I am guessing maybe the doctor will test me again too.  And if it is a better result, it will mean I am getting better.  And Lord knows I would be most thankful if I could only get better. especially this brain fog. smilewinkgrin

Hester
ginny said...
Hester that is a great question to ask. Yes, once you've started treatment, the meds can mask what is going on. Only because you're starting to get better!!  So, even if you don't have a definitive diagnosis, if the treatment is working and your labs are coming back improved or much better, that is a terrific indicator to you and your doctor that the treatment was neccessary. 
 
I think it's really important for everyone who is waiting on a name for this illness you have, to know that if the name Lupus never gets used or put in your chart, it doesn't mean you don't have it, it might also mean that you have a mixture of inflammatory disorders that overlap each other.  That's called MCTD or mixed connective tissue disease.  I know it's important to have a name for your illness, but when you're dealing with these types of AI diseases, sometimes MCTD or UCTD (undifferentiated connective tissue disease) will be used instead of just Lupus. Regardless of what the name ends up being, the treatment is the same.
 
 


Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  

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