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Leigh1978
Regular Member


Date Joined Sep 2008
Total Posts : 35
   Posted 10/1/2008 8:16 AM (GMT -7)   
For the past 2 weeks, I have been experiencing a strange feeling in my arms/legs (on and off) . It feels like a slight burning sensation, especially at night. When I wake up in the morning, I'm fine? Is this lupus? Like a lot of my other symptoms, this seems to have started right after I started plaquenil. Any connection?

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 10/1/2008 2:46 PM (GMT -7)   
I'm not sure what might be causing some of your new symptoms. You might want to call your doc or even your pharmacist with your list of new symptoms to see if they think it might be related to plaquenil.

I'm not sure if this is the same or not, but I have some burning pain in my extremities (hands & feet) and was diagnosed with peripheral neuropathy which can go along with lupus. I take generic neurontin which helps with that kind of pain and it helps me sleep too.

I hope you can figure out what is causing these new symptoms.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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Leigh1978
Regular Member


Date Joined Sep 2008
Total Posts : 35
   Posted 10/1/2008 3:09 PM (GMT -7)   
My hands and feet seem to be OK. It's mostly in my arms and upper back......its's not exactly painful, just achy and irritating. Are the muscles involved in lupus? So far, I've really only experienced pain in the joints.

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 10/1/2008 3:30 PM (GMT -7)   
Leigh, I would talk to someone about your symptoms. I know that for the most part, plaquenil is very safe, but I do know there are some rare side effects and there are some people who have had a bad reaction to it, so at the very least, it might be a good idea to call your pharmacist or do an internet search for side effects.

I don't know a lot about fibromyalgia but I know that some people have both fibro and lupus and that people with fibro can have muscle pain. Also, for me, I tend to feel flu-ish and hurt all over when I am going into a flare.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



Leigh1978
Regular Member


Date Joined Sep 2008
Total Posts : 35
   Posted 10/1/2008 5:43 PM (GMT -7)   
Hippiemom-

I am going to bring this up next week at my docs appointment. I did a little research about Fibro, and it does seem similar to Lupus, so I'm assuming for the time being that my lupus symptoms are still coming (considering it has only been 2 months since this all started).

For now I feel achy, but not in pain. When the flare came in August, it came out of nowhere so I don't think I had any warning signals.
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