Heart problems

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NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 533
   Posted 10/2/2008 3:46 PM (GMT -7)   
Hi Everyone,
 
I haven't posted in a while, basically because I had been feeling pretty good and we bought another house.  We closed and started moving in on Sept.4th.  Now we own two homes.  OUr son and daughter in law and 4 grandsons are renting our old home from us so it worked out great.  Problem now is after we started moving in I started having my old problems with my hear, skipped beats, low pulse, chest pain.  In the past whenever I had this the cardiologist told me it was okay and I wouldn't die from it.  Well, on Monday I woke up and thought I was in the worst flare I have ever been in.  Didn't go to work, just slept all day.  Tuesday called rheumy (who hasn't called back, yet) and worked a half day came home and slept.  Yesterday, same thing.  Today I went to the cardiologist and they did an EKG.  The doctor said that my heartbeat was normal on the EKG only too slow.  Now, he says I may need a pacemaker.  I have to have some more tests before we decide for sure.  But the way he was talking he was pretty sure they would do the surgery.  He said I may be flaring but with my heart rate in the 40's and 50's I have every right to be exhausted.
 
I am so scared and totally blown away.  I have complained about these symptoms for years and they have never seen the slow heartbeat in any tests they have done so I think they have basically said it was okay.  Either that or they expected them to go away.  I have also lost 75 pounds in the past year (Weight Watchers!! Whoo Hoo).  I think they thought maybe that would help too but it hasn't.
 
Anyway, off to search what I can find out about pacemakers. 
 
Take care everyone...
Mary Ann
 
** MCTD,Fibromyalgia,Raynaud's June 2005
**Pulmonary stenosis, High blood pressure, IBS, degenerative disc disease, vertigo
**Meds:  Plaquenil, MTX, Lyrica, Folic Acid, Metoprolol, Lotrel, Vicodin
 "No matter what happens, God is in control.  He is God, I am not, what a relief!"


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 10/2/2008 5:09 PM (GMT -7)   
((((((Mary Ann)))))) I'm really sorry to hear about your flare and your heart. I don't blame you for being blown away - I know I'd be freaked out. On the positive side, my grandpa had a pacemaker put in at 97 years of age for low heart rate, and the proceedure went very smooth and he's still going strong now at 99yrs old.

Please keep us posted on how you are doing and what the doc says about a pacemaker. Congrats on the amazing weight loss.

Take care of yourself.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 10/4/2008 7:02 AM (GMT -7)   
I wanted to bump this up for other people to hopefully see it.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

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AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/4/2008 7:27 AM (GMT -7)   
Thanks Hippi . . . I somehow missed this one.

(((((((((((( Mary Ann )))))))))) WOW! That was sudden! (or not, if your doc has actually been watching it for so long). We never know what tomorrow (or this afternoon) will bring! I hope you'll keep us posted on the updates and dr. visits.

Congratulations on the weight loss!!! WOWZA!! I hope to join you at 75 lbs some day. I've lost 50, but I've done it v-e-r-y slowly and have changed many eating habits, one at a time.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 533
   Posted 10/4/2008 9:56 AM (GMT -7)   

Thanks, Hippi and Rosie.  I will keep you posted.  I'm taking it easy this weekend.  Just resting, enjoying my new home.  The grandkids are coming over this evening so that will help take my mind off things.

Take care all.

Mary Ann


 
** MCTD,Fibromyalgia,Raynaud's June 2005
**Pulmonary stenosis, High blood pressure, IBS, degenerative disc disease, vertigo
**Meds:  Plaquenil, MTX, Lyrica, Folic Acid, Metoprolol, Lotrel, Vicodin
 "No matter what happens, God is in control.  He is God, I am not, what a relief!"


Tá mé breá
Regular Member


Date Joined Aug 2008
Total Posts : 140
   Posted 10/4/2008 12:56 PM (GMT -7)   
well at least they are on to it now. I always hope and pray when ever I have a test that it will show what it needs to show so they can treat me. you know when something is not right, and when the tests don't show anything I get more worried not less.

my best to you.
Marie-43 yr old mother of 6 grandmother of 1 going on 2!
dx 2008 - myelofibrosis - possibly autoimmune, osteoarthritis in spine, testing for possible MS or CNS lupus / vasculitis. family history - mother RA/Lupus maternal gma - lupus.
rx-cymbalta, propranolol, clonazapam, prednisone, progesterone cream, b6, b12, flaxseed oil, C.

"All we have to decide, is what to do with the time we are given" ~ Gandalf


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 10/6/2008 7:17 PM (GMT -7)   
I wanted to let you know. I had a pacemaker put in at age 34. (two years ago) It's really not a major surgery. I was only given light sedation, not put to sleep. I went home the next day. My pulse had gotten down, at it's lowest point, to 16. My arm had to be immobilized for 2 weeks to make sure nothing moved until it had time to heal. I felt alot better after the pacer brought my rate up. I was totally exhausted before. Good luck and keep us posted. Judy
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