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redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 10/3/2008 1:15 PM (GMT -7)   
Okay so I am sitting here trying to figure out how we will make it this month until my husband's inheritance comes. The rent has become a fluctuating thing since water is not included but we pay our water bill to the landlord. My water bill has been nearly a year's bill every single month since July. I used to get bills for 30 now it varies 140-240 and we aren't watering our lawn or using more water. We have no leaks inside our place. Under the trailer I am pretty sure we have no leaks. So here we sit with sky high water bills and no way to pay rent this month because our brakes went out. Yep, we had to fix our brakes and so we had to spend rent money to do so. I think I need to apply for emergancy assistance for rent. Maybe we could get approved maybe not. Either way at least we would have help because there is a local church group that if the state says no will help us. Goodness knows we need help now before we lose our home. I am hoping they can help with rent and water since the two are combined here and either one could get us the boot.
 
I really didn't need this stress added to my plate. I still have to go down and get proof of rent and water expenses for the last 6 months PLUS this month. Lucky me. At least the application is filled out except the amount of my water bill for the last 6 months. I am hoping that we can find a way to make life a little easier, specifically that we could get the water bill back to normal. I will stop by the office tomorrow and get all the stuff I have to and talk to the office staff about not kicking us out since we had intended to pay our rent and will find a way to do so no matter what. I don't even mind paying the late fee if they will agree not to evict us. We may require the first stage of eviction notices to get help but whatever it takes we will do. At least the case worker finally fixed my foodstamps case. After 3 years of being screwed out of foodstamps because she wasn't properly deducting the medical insurance premiums- disable people can get medical expenses taken out of their income for food stamps- she finally entered it correctly so we will eat this month, unlike last month when we went short many many times.
 
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 10/3/2008 2:58 PM (GMT -7)   
Hi Redrose,
 
No.  You dont' need this extra stress at all.  I wonder what is up with those water bills??  Is your meter being read incorrectly?  That's a big change isn't it?
 
I'll be thinking good positive thoughts for you all Redrose.  Let us know what find out okay,
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Tá mé breá
Regular Member


Date Joined Aug 2008
Total Posts : 140
   Posted 10/3/2008 3:20 PM (GMT -7)   
call the water company, they will come out at change out the meter if they need to. we had a problem like that one time. they also credited the over payment back.
Marie-43 yr old mother of 6 grandmother of 1 going on 2!
dx 2008 - myelofibrosis - possibly autoimmune, osteoarthritis in spine, testing for possible MS or CNS lupus / vasculitis. family history - mother RA/Lupus maternal gma - lupus.
rx-cymbalta, propranolol, clonazapam, prednisone, progesterone cream, b6, b12, flaxseed oil, C.

"All we have to decide, is what to do with the time we are given" ~ Gandalf


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 10/3/2008 3:21 PM (GMT -7)   
We had them re check our meter 4 times since it is all digital. I am going down to the office tomorrow with my husband and ask for some answers. I am also applying to every assistance program I can find to get help winterizing and fixing this place up. My total gas bill this last 12 months was over 1600 and 90% of that was winter. Our gas bill when we don't run the heat is less than 30 a month. I could cry. My head hurts too which is so uncool. Hubby had to work 2nd shift today as one of the manager's wives is having their baby and hubby is the only one who knows what needs to be done other than the manager. Hubby does a manager's job and doesn't even have a supervisor title. He plans to ask for that at his yearly review. Then next year he can ask to be made manager.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 10/3/2008 4:42 PM (GMT -7)   
(((((redrose))))) I hate that you have all this stress on top of not feeling well lately. I hope you are able to get some help with the rent and water so you don't have to worry about eviction. My thoughts are with you and your family.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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Co-Moderator: Lupus and CFS Forums



Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 10/4/2008 6:58 AM (GMT -7)   

Hey Redrose,

I thought my own income situation was bad, but yours beats mine for certain.  I am glad that you finally got your food stamps straightened out, so that at least you can eat. 

My daughter lives in a neighborhood where the water is furnished by a private company.  The owners changed hands and her water bill went down to a normal level again.

Hope things get better for you real soon.

Hester


Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 10/4/2008 9:27 PM (GMT -7)   
Our income is better than many here, my husband makes michigan minimum wage less our health insurance (450 a month) and we have my SSI and since Alexander came I get the full amount. It is just some things we can't afford.

The thing is we really need some more money cause we have expenses we can't manage normally- like replacing a section of our floor, replacing all the carpet and vinyl, re-doing the kitchen (my sink sits on paint cans), and repair our plumbing. I also could really use a ramp instead of the stairs our porch has as my leg is growing weaker.

I wouldn't mind having a tub I could soak in but that is a pipe dream. I would like to fix the problems that need repair. The carpet and vinyl have to be replaced because the last people had cats and their cats were un-nuetered males I am sure a few of you know what that means.

At least the roof is replaced.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 10/5/2008 7:59 AM (GMT -7)   

You have a really good way of responding to things that you "don't" have.  If you are like me, your meds could run $500+ a month, and that added to your SSI, as it is added to my SSB, can be seen as an increase in income.

Still you are definitely not a whiner or complainer, to find all the good points in your situation.

Hester

redrose77 said...
Our income is better than many here, my husband makes michigan minimum wage less our health insurance (450 a month) and we have my SSI and since Alexander came I get the full amount. It is just some things we can't afford.

The thing is we really need some more money cause we have expenses we can't manage normally- like replacing a section of our floor, replacing all the carpet and vinyl, re-doing the kitchen (my sink sits on paint cans), and repair our plumbing. I also could really use a ramp instead of the stairs our porch has as my leg is growing weaker.

I wouldn't mind having a tub I could soak in but that is a pipe dream. I would like to fix the problems that need repair. The carpet and vinyl have to be replaced because the last people had cats and their cats were un-nuetered males I am sure a few of you know what that means.

At least the roof is replaced.


Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/6/2008 8:55 AM (GMT -7)   
Redrose,

Are you regularly involved in a local church? If so, they may have some great resources for you. If not, there is an internet outreach that may be interesting.

http://www.arkalmighty.org/index.cfm

I don't know how effective the ministry is in your area, but I know that locally it has been helpful to a couple friends of mine. The link I gave you is the spot where you can enter your city and state and see which churches in your area participate. When you select a church, you can enter any skills you may have (anything from babysitting to painting or car repair) and/or you can list a need. The church, then, will match up the needs and the skills. One of my sons has listed his name for car repair and has been matched up to two young, single moms who needed help with their cars. It blessed them and it certainly blessed my son to be able to help.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 10/6/2008 11:38 AM (GMT -7)   
Thank you. I had forgotten about that website. My husband and I are not active in any of the local churches. We live in a rich area and found ourselves extremely uncomfortable because of just how dressy everyone else was able to come to church. We got odd looks and did not really feel welcome. Actually, no one spoke a single word to us. We tried several churches too, I finally said enough and decided until we have more money or can move somewhere that money isn't king we will handle our relationship with God ourselves. It was just too stressful for me.
 
But I do know the local churches like to feel good about themselves by helping the local poor- they make a huge deal out of it but I think I could stand the embarassment if it would mean having some stuff around the house fixed finally. I despise the fact that they will do it but if they help us they will do a write up for the local paper and make a big deal of how much they helped a local family. It disgusts me but I guess it is just one more hoop to jump through. I can do it I just need to let go of the fact I would prefer they help quietly and not advertise their good deads like they need everyone to know, especially since they always give the name of the family they help.
 
I put my husband's computer skills on the site since he enjoys helping people with computer problems. I wish we could afford to just have a general contractor come in and do all the repairs at once. But the money we expect after all is said and done will buy about half the repair materials we need and will leave no money for paying someone to do the work.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/6/2008 4:40 PM (GMT -7)   
I'm sorry you've been "outed" by your helpers. We really try to maintain confidentiality when our church is assisting folks. I've been involved with several groups from the giving side of things and they have usually operated on a confidential basis.

I'm so sorry you have had a negative experience when folks are trying to help.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 10/6/2008 4:50 PM (GMT -7)   
Hey, I don't have Lupus but your post caught my eye. First off, why are you having to pay for ANY home repairs when you are renting? That is the landlords job. Things like fixing flooring and sinks is all in their job description, not the tennants. Review your lease and make them repair what needs repairing. Now about the water...you should first request that your landlord send you a copy of your bill to review. Make sure they aren't padding it at all. Next, call the water company and ask for an audit. I know they do this with electricity. I can't imagine why they wouldn't do it for water too.

I hope you find the assistance you need soon!
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 10/6/2008 5:03 PM (GMT -7)   

We rent the lot our trailer is on. I am going to ask for a new meter tomorrow. I think it is broken. But the trailerpark manages our water and they add $3 each month for managing it. They send a simple bill listing water and sewer charges and their administrative fee as well as taxes.

 

Rosie, I haven't personally been outed but a friend has been and so has everyone else who has gotten any more than food for a few days from the local groups. It seems that they all like to brag about how wonderful they are.


Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements


mygrljes
Regular Member


Date Joined Mar 2008
Total Posts : 110
   Posted 10/6/2008 5:10 PM (GMT -7)   
redrose,

Have you checked to make sure you don't have any little leaks anywhere? I agree with Fitzy, you need to be able to see an actual bill detailing your water usage. If the park won't give you a detailed one, ask the city to provide one to you, they are the ones who do the meter readings.
Robin
 
dix: lupus sle Jan. '99, hypo-thyroid Mar. '06
rx: pred. 5mg/day, plaquenil 200mg/day, levothyroxine .112mg/day, premarin .45mg/day, methotrexate 7.5mg/week, folic acid 1mg/day
 
 
Also a wife and mother of three.


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 10/6/2008 7:03 PM (GMT -7)   
Redrose,
I am so sorry you guys are struggling so much right now. I really wish you could find a church you are comfortable with. It's not about what you wear, it's about worshipping God! I can't stand when churches are stuffy and clickish! I also agree that they shouldn't be publishing their good deeds. That is directly opposite of what the Bible teaches! I pray that you will find a spot where you feel welcome and at home. I wish you were near me! You'd love my congregation! I am praying for you girl! Judy

cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 10/6/2008 10:00 PM (GMT -7)   
Redrose,
I"m sorry you are having money troubles, I know what that's like. Michigan is a hard state to live in. I moved south and am glad Idid. At least there's no freezing in the winter.

My bf replaces water meters all the time and it cold be a leak in the pipe going to your trailer, underground, or the meter. Both things break and leak. You might ask the water company who put in the meters in the park, them or the landlord. It may be the landlord's leak. It would be hard to use that much water.

Have you contacted Habitat for Humanity and gotten on the list? They only take names certain times of the year, but it may be something to think about. My bf used to do houses and repairs for them too.

In my mom's trailer park in south Florida about twenty miles from the beach, with bus service, in a nice area, the lot rent is 400 a month but people are giving away their doublewides and one guy was going to pay someone a hundred bucks to take their doublewide, I almost bought one, but I pay that for my house and I own the land because I live where I do, nowheresville.

I hope you can get things fixed up before winter comes. The water company should come out to at least check the meter and maybe the guy will bedecent enough to check around some.

I'll be sending prayers and good thoughts your way. We are gonna be eating alot of handout deer meat this winter, I'm afraid. Unfortunately, I'm not supposed to eat it with the isoniazid I'm on. I wish you were closer, I"d give you a hand. I like puttering around on my good days!
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 10/7/2008 4:31 AM (GMT -7)   

I am not a Christian myelf, but my mama was.  there are at least two kinds of christians, those who seek to do good and end up doing well, and those who seek to do good.  A church helped me one time when my youngest child was a baby.  She is 39 now.  But this church and its pastor was special.  There was a poor family went to his church one time, and the congregation made fun of how they were dressed.  torn and tattered over alls on the boys and the dad, and well used dresses on the girls and the mother.  This was at a time here in this area, that it was still considered a sin for women to wear a man's clothes, slacks.

One Sunday the preacher, a young man, came to church and he was dressed like the man in this little family, tattered and torn overalls.  and the whole sermon was about do unto others as you would have them do unto you.  After that sermon, I no longer felt shame about the things this church did to help me and my kids.

It is really hard to accept charity even in the best of ways that it is given.

I have a commanche brother who lives in Florida, and his business is slowing down because of the economy and the threat of the bail out and what it can do to the country.  It will pick back up.  It always does.  but until it does, even he, a general contractor, must do without some of the things he is so proud to give to his family.

Sometimes it just seems there is many kinds of pain all around us, and not enough to go around when things are needed so badly.

There is a Baptist association here that gives food to the poor.  but they talk to you like you are a dog, or something else beneath thier feet,  before they let you have it.

It is really hard to have children and accept charity.  One time my mama gave some of my dresses away and gave me strict instructions not to mention it to this little girl at school.  She wanted me to tell no one about this little girl wearing my dresses.  and I never told.  At the other end of this was me and my mama sometimes finding ourselves homeless.  there was no name for it back in the fifties, but that is what we were, homeless.
 
I think the matching up of skills is a good way to do charity.  Maybe the poor family, like mine was in the sixties, could do something for the person who is helping.  this way it is not charity but a swapping of skills.  I don't know what I could have done.  I really had no skills at that time.  But the very best way is to give and not advertise it, if one is a good christian person.
 
I wish I could do more to help than just support you on this forum RedRose.  There are so many people in such terrible ways that they have to live with thier children.  Shame is a horrible thing to have to live with.
 
Prayer works I believe.  And I can pray for you.  I truly believe Great Spirit, (God) listens.
 
Hester
Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  

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