In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
Clickable Links: Lupus Resources Lupous.Org Lupus Criteria (4 of 11) Lupus Chapter Locator
I am so very sorry! I will be praying for you. Love ya, Judy
((((barb))), Life sucks and than ya get sicker. I'm sorry I wasn't any help or comfort to you yesterday. I guess I'm kind of wrapped up in this appt today. I'm glad you decided to come here and talk to folks who at least to some degree understand what you are going through. Don't you just want to go down to the lake and pick up some rocks and skip them accrossed the water so hard and long until you are so sore and tired you just collapse? I guess that's just how I get when I feeel like I have to fight a battle with my hands tied behind my back. I do feel your frustration. I'll call ya tonight when I get home.
You're in my thoughts and prayers too. I was just told by my primary that my red blood cells are too big also. He's checking me for a vitamin B12 deficiency. I guess there are a lot of reasons why the cells can be big, right?
It sounds like your doctors are really looking after you well and staying on top of things. What a blessing. Let us know how you're doing okay...
Clickable: LUPUS INFORMATION & LUPUS RESOURCES.
Co-Moderator: Lupus and CFS Forums
I am new and can't say much, because I don't know much. I am really sorry though that these things are so bad for you, and I apologize for taking so long to respond.
Many prayers sent your way
Lynnwood, Co-Moderator: Lupus ForumSLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, ValtrexLinks: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions
(((Hugs)))! I had no idea that you were feeling this poorly. When we spoke I guess you were sugar coating it so I wouldn't worry about you along with everything else. How are things now? Any word on your red blood cells? I will phone you over the weekend. Take care my friend, and please stop worrying about everyone else and focus on yourself and getting well.
I understand how you feel right now. I am not feeling very hot myself. I will say this, as I recall you have at least one child- my brain doesn't work right so you may not or may have more- and a husband who love and need you. For their sakes you need to fight as long as you can. I know with cancer at some point you either need a remission or permission to let go but you asked to be reminded why you need to keep going so that is what I plan to do here. Having you around, no matter how sick is infinately better for your loved ones than you being gone. I know from experience. My grandpa died from cancer and for his sake I was relieved but the truth is had he been able to fight for longer I would have been more than happy. He decided to give up after 6 months of treatment. It destroyed me, he was the closest thing I had to a father and his dying was a huge blow. His wife took it hard too. We all wished he had been strong enough metally to keep fighting.
Now I know darned good and well that despite your down days you are very strong mentally. So fight as long as you can and as long as there is reason to. If the doctors ever say that fighting is no longer something you should do from a medical stand point- as in we want to make you as comfortable as possible for what time you have left kind of talk then you can consider packing the medication in. Until that day comes and you decide to lay down and give up then you have to keep fighting. Your family will be greatful when the time comes that they do lose you for every second your fighting buys them with you.
I hope this helps.