Anti Ro/la Antibodies

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Leigh1978
Regular Member


Date Joined Sep 2008
Total Posts : 35
   Posted 10/7/2008 7:35 AM (GMT -7)   
Has anyone heard if there is a connection between anti-ro antibodies and vasculitis? I read about it online and I tested positive for that antibody (I don't think I have sjogrens), so I wasn't sure if that meant I had a higher risk for vasculitis.

Chaya
Regular Member


Date Joined Mar 2007
Total Posts : 194
   Posted 10/7/2008 7:48 AM (GMT -7)   
Hi Leigh,
 
   I had some of the highest Ro/La my Dr. had ever seen. I believe it is most associated with Sjogrens which I do not have but also an indicator of sun sensitivity for Lupus. They are also a great diagnostic tool for Lupus patients that are pregnant as it correlates directly to neonates. I will also add that my Dr. told me that while I do not have Sjogrens today with titers like mine it is highly likely that in my 40's I will develope it. My daughter has Lupus as well and she is 13 and has a more vascular disease process than I do. I do not recall any of her Dr.'s mentioning anything about her Ro/La in conjuction with it. They look more at her Anticardiolipins and other clotting factors.

Leigh1978
Regular Member


Date Joined Sep 2008
Total Posts : 35
   Posted 10/7/2008 8:09 AM (GMT -7)   
Chaya-

Thank you for your response. My doc said I was highly positive for that antibody. I didn't know that high anti-ro antibodies were a sign of sun sensitivity. That actually explains a lot considering I experience nausea and mild rashes from fluorescent lighting. Do you experience that as well?

I'm sorry that both you and your daughter have to deal with this disease.

Chaya
Regular Member


Date Joined Mar 2007
Total Posts : 194
   Posted 10/7/2008 6:07 PM (GMT -7)   
I went to see my first Rheumy and he was a complete horses a@@. He listened to me with total condescension and told me I looked good and therefore he had a hard time believing I was sick. I told him if he was wrong I would come and hunt him down which made him pause and decide to run labs. He called me back at 730 AM a few mornings later and told me to get to the pharmacy as early as I could and to start a host of medications. It was a whirl wind kind of emotion and I asked why? He says well hello you have Lupus. Nice ey? He told me Ro/La were very very high and indicated extreme sun sensitivity and to stay out of the sun as much as possible. I have noticed alot of people on HW have problems with flourescent lights but I never have cause to sit under them so I dont know. I am unable to work as I have had 1 sick child with severe autoimmune problems for 4 years and recently my 13 year old was dx with Lupus. I myself have CD and Lupus . I have nausea though and its a touch one because its so non specific for the Dr.'s to understand it exactly. I use Zofran if it gets too bad. Nice to " meet " you Leigh!

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 10/7/2008 8:16 PM (GMT -7)   
Ha! Wanna' check out the light issue? Go hang around in a big store with lots of lights - WalMart, Target, and all the related cousins come to mind. I get under those lights, even with dark sunglasses, and feel like an elephant sat on e after about 45 minutes.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


Chaya
Regular Member


Date Joined Mar 2007
Total Posts : 194
   Posted 10/8/2008 6:07 AM (GMT -7)   
lol Lynnwood, I ABHOR shopping. I find when I walk in stores it aggravates my joints and makes them hurt from, I have always assumed ,being on my feet too long.In addition I have been told walking on their cement type floors is hard on the joints. I do not get a rash from walking through Target. I have never given it much thought but thanks for the tip! Do you get a rash from the lights? I only get a rash when I spent time out in the sun.
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