In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
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I'm so glad you got such good news!
thanks eveyone! Yes I do have a much better attitude today. I must admit I do let the what if's creep in but I'm trying to not let it settle. There are some problems with having autoimmune disease and the meds for it that can eliminate you from the transplant but they are not as stringent as they used to be. Your right Rosie, I need to focus on what I can do not what I have no control over. Plus I got God on my side .
Judy maybe we should do a little on the side transplant encouragment. I know we have to be in good shape besides the obvious problem. So if you want to email me any time to remind me to eat a bran muffin instead of choclate cake I'm all for that. LOL.
Ginny when is your date with the surgeon?
Redrose, how are you feeling girlfriend? I know you have been having a rough time.
Oldhippi, You mean you are suppose to wash them too? I knew I forgot somthing lol.
Chaya and Robin thank you so much! and Mazeltov! back at ya
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Amazed I am again, considering all that is wrong with you and you still remember different names with different problems for each name. I think this is one of the things I have to accept. For whatever reasons my short term memory almost doesn't exist.
I can respond to you however as you send posts to the forum. If I was able I would create a perfect island where all of us could visit sometime, and be free of all pain and all sickness for a few days at a time. where we could jump and run, and give our children birthday parties without it making us so sick and in so much pain.
Hi Carol. I'm so relieved it's not cancer. And you also got good news from the transplant team! I'm sending you lots of postive energy to stay well (and get buff). You're such a great friend to all of us. Love Ya, Butterflake
Hey Ginny,Hippi,Hester,Lucy and Donna!
thanks guys I really appreciate you all. I'm sorry I didn't respond sooner. They gave me a cpap to help my breathing and so far I think I've slept about 20 mins. lol. They gave me the wrong one so they have to send out the right one that only covers my nose. this one cvers my whole face and is uncomfortable.
Hester, I'm sorry you are having such a hard time with your memory. I think a lot of us have suffered with the short term memory problems. Somtimes mine are worse than other times. I think it's my meds more then anything else. They scaned my brain and like my dad would say "they didn't find anything" LOL. The island sounds wonderful. I would love to be able to run and jump again. Plus I could chase all the native men around.
Hey Donna, thank you so much I knew you'd be praying for me.((((Donna)))).Do you use a cpap too? How the heck do you sleep with it!
Lucy, thanks hun, hey I love your quote lol. so true!
Ginny I was thinking about having a bran muffin with ice cream and choclate syrup. It's the only way I can stand them! I hope your fibro gets better soon. Does it hurt worse in the cooler weather? That's one thing I don't have Thank God!
Hey Hippi, I havn't seen you as often as normally. I was thinking your flare was getting the best of you. I hope you are getting some rest. Don't over do it this weekend. Love ya!
Thank you all so much for your love prayers and encouragement
Hey Carol. I'm currently not using my cpap. Every so often I take it out, brush off the webs and strap it on. I have the kind that covers my nose. I have to say that when my breathing is labored I'm glad I have it, but the moment I feel better that puppy is stashed in the closet. I hate filling and cleaning the thing and I'm pretty good at ignoring my docs when they nag me. BTW there are many different styles of masks. Also the rate the air is adjusted makes a big difference. The temperature not so much. My BF was looking over my shoulder one day while I was online and he thought it said "The CRAP Shop." That sums it up, huh? Love Ya Sweetie. (((Hugs))) and prayers, Butterflake