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puccini914
Regular Member


Date Joined Jun 2008
Total Posts : 363
   Posted 10/8/2008 1:53 PM (GMT -7)   
What a weekend.  My son's 6 th B-Day party was Sunday, my mom came up from Miami for it, we have a new dog.  I spent all of Saturday cleaning, even cleaned the carpets.  My DH has been very little help.  Now I'm in full blown flare, the baby has a virus with a fever of 102, the 6 year old is in post b-day acting up blues, mom is still here and in a marathon rush to see how many dishes she can use in a day, DH is working out of town for five days and is moping because I asked not to got to open mike night tonite with his buddy.  all I can say is AAAAAGGGGHHHHHH!!!!!  I'm about to pull out my last reamianing hair.  Hope everyone else is doing better then me.  Thanks for the rant, I'm off to go take a pain pill and lie down with the baby because "he" needs a nap devil .  Pray for my family that they survive the rest of this week.  LOL.  God Bless.

Jennifer

PCP DX Lupus and Fibro, Taking plaquenil, Cymbalta, Flexeril,Claritin, Zantac,Ambien,vitamin B-12, multi- vitamin, Darvocet.  Homeschooling Mom of 2 boys 1 and 6.  Symptoms: Fatigue, joint pain, heat/sun sensitivity, mouth and nose sores, malar rash, migranes, awful hives, positive ANA, and RF.

 

 


FW
Regular Member


Date Joined May 2007
Total Posts : 477
   Posted 10/8/2008 2:12 PM (GMT -7)   
((((Jennifer)))

Sending good thoughts your way. Hope things are starting to calm down a little bit for you.
Take care,
Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Prilosec, Nasacort, Prozac, Ambien CR.
Daily Supplements: Multi-vitamin, Calcium, B-100 Complex.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.


Chaya
Regular Member


Date Joined Mar 2007
Total Posts : 194
   Posted 10/8/2008 2:22 PM (GMT -7)   
I hope this is going to come across the way I mean for it to . As much as we love our children and want to do the best for them sometimes the best isnt the biggest. I do not take upon myself what I know is going to kick my butt. I cant handle entertaining on any level . The most I will take on is someone being here for dinner thats been ordered in. I just have no reserves. If mom is a pain in your a@@ then limit her as well or create rules she needs to follow by. Your children need you to feel well and reduce the amount of flares and ill health you suffer with. Next time dont have a party do something smaller. I for instance make it a day for going to do things my child likes , movie they want to see ( my daughter loved Horton Hears a Who ) , they get to pick a place to go eat, they want to go build a bear at the mall , on and on. Its something you can dictate how long it lasts and you dont have to have people over which means cleaning and yada yada. Wishing you some rest........... smilewinkgrin

okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 10/8/2008 2:33 PM (GMT -7)   
Hi Jennifer, Send your mom for paper plates, have her put the dog on the leash and walk to the store!, tell your husband he can go if he takes the 6 year old with him so everyone can sing happy birthday to him for open mic night, I can't think of any ideas for the baby. Can't really force them to do much lol. Try to get some rest and next time get someone else to clean the carpets!
I hope you get feeling better soon.
hugs
carol
 
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 Did you ever know that your my hero?
 
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/8/2008 3:01 PM (GMT -7)   
Jennifer,

*sighhhhhhhh* sorry . . . I can just picture the whole mess.

First . . . give the birthday boy some protein. Cheese, peanut butter, milk, nuts, or meat. It calms them after the party food. (simple . . . but it often helps noticeably).

As far as your mom . . . your on your own!! But make sure you ask for help when you need it. You sound like me, and I rarely ask for help . . . but I am working on developing the technique of asking.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


puccini914
Regular Member


Date Joined Jun 2008
Total Posts : 363
   Posted 10/8/2008 3:34 PM (GMT -7)   
Thanks sooo much to everyone!!! Mom is 84 so I really don't ask for much, but she is having a pretend adventure with the kids right now, Hubby didn't go to open mike night, but he's asleep on the couch because he stayed up until 3am practicing. I hate to get in the way of his music because he is truly gifted and is finally writning songs that are just incredible. Well, I'm off to cook dinner, but it's a simple one so it won't be much. If no one else does the dishes they'll have to look at em in the morn, because after dinner, I'm done. Thanks so much for the support, sometimes all it takes is a freindly understaning voice to help give you that second wind. God Bless you all!!!!

Jennifer

PCP DX Lupus and Fibro, Taking plaquenil, Cymbalta, Flexeril,Claritin, Zantac,Ambien,vitamin B-12, multi- vitamin, Darvocet.  Homeschooling Mom of 2 boys 1 and 6.  Symptoms: Fatigue, joint pain, heat/sun sensitivity, mouth and nose sores, malar rash, migranes, awful hives, positive ANA, and RF.

 

 


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 10/8/2008 4:52 PM (GMT -7)   
(((((((Jennifer))))))) It's so hard to slow down at all when you have young kids. I can barely catch my breath these days with all that's going on with my two kids, so I can relate to what you are going through. It sounds like you really really need a break and your fever is a big red flag that you are heading into a flare.

I hope you are in bed now sleeping. Your mom, hubby and son can fend for themselves for a while. I hope you don't go into too bad of a flare.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1551
   Posted 10/9/2008 6:35 AM (GMT -7)   
Hi Jennifer. I hope things have slowed for you. I agree with Chaya and Carol that we take on too much and need to take it easy. I'm having a tough time being strong with my 23 y/o daughter, forcing her to handle her own problems. I sure hope I catch on soon. Taking care of a sick baby while you're flaring must really suck. Then tack on the elderly parent, DH who doesn't help and B-day boy bouncing off the walls. Whew! Get some rest sweetie. (((Hugs))) Love, Butterflake

Dx: SLE ('05), depression, diabetes, fibromyalgia, gerd, sleep apnea, hypertension, IBS Tx: CellCept, plaquenil, prednisone, lisinopril, actos, lipitor, nexeum, prozac, seroquel, celebrex, actonel
prn: arthritis tylenol, neurontin, promethazine, ambien.  multi vit, C, flaxseed oil, acupuncture
Donna
 


puccini914
Regular Member


Date Joined Jun 2008
Total Posts : 363
   Posted 10/9/2008 8:17 AM (GMT -7)   
Thanks so much to everyone, I'm starting to feel a little better today. I started a medrol dose pack yesterday and it's starting to kick in. I've found that if I take it at the begining of a flare I can lessen the flares intenisity significantly. Thanks again to everyone who replied, your support helps so much.

Jennifer

PCP DX Lupus and Fibro, Taking plaquenil, Cymbalta, Flexeril,Claritin, Zantac,Ambien,vitamin B-12, multi- vitamin, Darvocet.  Homeschooling Mom of 2 boys 1 and 6.  Symptoms: Fatigue, joint pain, heat/sun sensitivity, mouth and nose sores, malar rash, migranes, awful hives, positive ANA, and RF.

 

 


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 10/9/2008 8:52 AM (GMT -7)   

I apologize Jennifer for being so late in responding to your situation.  I can't imagine being in your situation, but have pictures of when I was younger, doing the same thing.  I know I can't do it today.  too bad we can't have those mothers they show on tv, who want to visit and clean the house and wash every dish in sight. yeah

Hope you are feeling better this day

hester


Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  


puccini914
Regular Member


Date Joined Jun 2008
Total Posts : 363
   Posted 10/9/2008 4:41 PM (GMT -7)   
Thanks Hester! I must say I have one of those mom's but that's my Mother-in-Law. She's absolutely fantastic!!! She's a saint. She plays with the kids, cleans up without asking me a million questions, and is just as sweet as can be. I just wish she could move in with us, she's that great. So I have to count my blessings. DH just left to take Mom to the airport, now I just have to get the kids to bed and then I'm taking a week off. While hubby is out of town, I will not cook or clean at all, except what the kids eat. We'll have cuddle up days and watch movies and snuggle. So the mad rush is over, I can finally rest. God bless you all and thanks for being here.

Jennifer

PCP DX Lupus and Fibro, Taking plaquenil, Cymbalta, Flexeril,Claritin, Zantac,Ambien,vitamin B-12, multi- vitamin, Darvocet.  Homeschooling Mom of 2 boys 1 and 6.  Symptoms: Fatigue, joint pain, heat/sun sensitivity, mouth and nose sores, malar rash, migranes, awful hives, positive ANA, and RF.

 

 


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 10/11/2008 9:31 AM (GMT -7)   
I will not cook or clean at all, except what the kids eat. We'll have cuddle up days and watch movies and snuggle. So the mad rush is over, I can finally rest.
 
It is not good that one finds one's self being glad when your mother is gone.  Mothers should be better mothers than this.  but your rest time sounds good.  cuddle up with the kids and rest as much as you can.  You deserve it. I can imagine it now.
 
When I was babysitting my grandchildren and they were small, and I was sick, I got sheets and brought them to the livingroom.  they made all sorts of intricate tents and houses out of the tents.  they were where I could see them and I could rest and watch tv.  this is a good thing you have reminded me of.  my grandchildren are all teenagers and adults now, and I am no longer able to tend to babies.  Have three great grandbabies, but can't babysit them.  So those days for me are no more.  but it is a blessing to be reminded of them.
 
Hester
Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/11/2008 1:22 PM (GMT -7)   
Oh Hester . . . you brought back memories of when my kids were young. YUP! good old sheets! Two kitchen chairs brought into the living room and spaced apart a bit will make a great start for the sheet-tent. A card table is even better. Lots of fun in those tents!!

Thanks for the memory!!


Jennifer . . . have a restfull week!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 10/11/2008 6:41 PM (GMT -7)   

That is what they did.  Used two kitchen chairs and books on the livingroom chairs to hold the sheet in place on them.

It is good isn't it to remember them when they were so little and so easy to please, way back when. 

I never thought of using the table.  that would have made a better tent I think.

Hester

AlwaysRosie said...
Oh Hester . . . you brought back memories of when my kids were young. YUP! good old sheets! Two kitchen chairs brought into the living room and spaced apart a bit will make a great start for the sheet-tent. A card table is even better. Lots of fun in those tents!!

Thanks for the memory!!


Jennifer . . . have a restfull week!!

Blessings!


Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/11/2008 7:23 PM (GMT -7)   
Ha haaa haaaaa . . . at one point, when my two oldest were very little (3 and newborn), I was alone in a house with no heat. I was trying to make do on my own . . . and I would make a tent in the middle of the living room and we would all sit inside the tent, where our body heat kept it warm enough to manage. I made popcorn for me and my daughter and that is one of her favorite memories. *sigh* I slept the baby in a dresser drawer with a blanket wrapped over most of the drawer to hold his heat in. I was just 23 at the time and I felt so empowered by figuring out how to feed us for days at a time with a big pot of soup and how to keep us warm w/o heat. I made her a little coat by cutting up a large woman's coat that was given to me.

Lots of big and little blessings brought us through those tough times. But I actually have more good memories than bad. The tent just really brought me way back. Thanks again.

Jennifer . . . thanks again for sharing your topic. I hope your little ones play peacefully so you can rest sis. If they are old enough that they don't put things in their mouths, you can give them a tin of buttons, or stones, or pennies and have one lay on the floor and the other one can place the buttons all around the one laying on the floor, carefully making an outline of the first child. It is amazing how much time they'll spend 'tracing' each other and then trying to get up w/o destroying the outline. We also did lots of Cheerio's necklaces (using curling ribbon or new shoe laces).

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


puccini914
Regular Member


Date Joined Jun 2008
Total Posts : 363
   Posted 10/11/2008 7:34 PM (GMT -7)   
Actually, I took the sofa and the love seat and pushed them together (they slide easily on wood floors) with the coffee table wedged behind one. This made a giant cushy soft playpen that I filled with pillows and blankets. We all snuggled together and watched Happy Feet. Would've of been a great night if the baby had gone to sleep before midnight. But, tonight it's 10:30 and both kids are asleep, DH is out of town and I'm hitting the hay early!!! Yeah!!!! Sleep!!! Glad to have brought back some happy memories for you guys. Have a restful night. May God bless us all with His Peace.

Jennifer

PCP DX Lupus and Fibro, Taking plaquenil, Cymbalta, Flexeril,Claritin, Zantac,Ambien,vitamin B-12, multi- vitamin, Darvocet.  Homeschooling Mom of 2 boys 1 and 6.  Symptoms: Fatigue, joint pain, heat/sun sensitivity, mouth and nose sores, malar rash, migranes, awful hives, positive ANA, and RF.

 

 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/11/2008 7:40 PM (GMT -7)   
Sounds like a great little clubhouse you created!! Sweet dreams sis!! Thanks for the blessing!!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

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