SMALL VESSEL DISEASE

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hondo123
New Member


Date Joined Feb 2005
Total Posts : 19
   Posted 10/8/2008 5:01 PM (GMT -7)   
HEY, MALE 37, LONG TIME LUPUS, ...DOC SAYS I AM EXPERIENCING A SMALL VESSEL DISEASE WHERE THE SMALL BLOOD VESSELS IN MY BODY ARE IMPARED...SPECIFICALLY CAUSING PAIN IN EXTREMITIES, LEGS, AND LOW BLOOD FLOW TO THE PENIS( CAUSING LOTS OF SEXUAL PROBLEMS)....ANY HELP OUT THERE, SIMILAR EXPERIENCES, ANY GUYS W LUPUS HERE AT ALL ( NO OFFFENSE LADIES I LOVE U ALL) TKS

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 10/8/2008 6:01 PM (GMT -7)   
Hey Hondo,
 
We ladies don't take any offense!  There is one man that pops into mind. Bsmie (Bill).  Hopefully he'll see your posting. 
 
Did you get a name for the small vessel disease? Is it a type of vasculitis?
 
Ginny 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 10/9/2008 9:03 AM (GMT -7)   

Hello Hondo,

I was thinking of Bill too, and that he will see your post.

I assumed that there was only two men in the forum, but apparently there may be more men and they just don't post yet.

You are still so young to be having this lack of blood flow.  I hope others with more experience than me will respond to your  post.

Hester


Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  


Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1299
   Posted 10/9/2008 9:03 AM (GMT -7)   
Hondo,
 
I am the token guy with lupus and other AI diseases.  The only circulatory disease I have is raynauds which is common with lupus.  It mainly affects the capillaries in fingers and toes but can be much more serious in some cases.  Mine is a secondary condition not a primary case of raynauds.
 
Male sexual dysfunction is a complicated issue (I am not an expert on the subject) depending on age and many other factors.  Nothing in my list of diseases has been a direct cause of problems although my general condition probably has.  I have a disease called polymyositis which is a muscle disease and lost 40 lbs of muscle in a week.  Hard for anything to work properly when your body is so weakened with many side conditions.  Also had internal organ involvment so nothing in my body is exactly right anymore even though I have made a miraculous recovery over the past 3 years.  Was a quadriplegic in Jan 2006 and now can play golf, ski and hike...not that well but I can do it.
 
You should discuss your problems with your doctor and perhaps see a specialist.  Keep in mind that lupus is a systemic disease and can affect many more things than you realize.  I am still trying to get a handle on everything that lupus, scleroderma and PM has done to my body.  Did your doctor identify your circulatory condition?  What is your age?  What meds are you taking?  Some of the meds to treat lupus can cause sexual dysfunction.
 
Of all the things that lupus can do to you sexual dysfunction is not high on the worry list.  Most cases can be treated in time or go away on their own as you get the disease under control or adjust your meds.  I am old and you might be younger and this is a bigger issue but you should focus on treating lupus and then treating the secondary conditions.  Sexual dysfucntion is not life threatening but lupus can be.
 
Hope you can get some answers and if you need to talk off line I can provide my email address.
 
Bill
 
 
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
 
Meds: prednisone 5mg, 50mg imuran, Lotrel 40/5mg, maxide 37.5/25mg, folic acid, potassium, aciphex 20mg, multi vitamins.
 
Maintain your optimism and you can beat the odds.
 
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller
 
 


hondo123
New Member


Date Joined Feb 2005
Total Posts : 19
   Posted 10/9/2008 6:03 PM (GMT -7)   
bill, i would greatly appreciate ur e mail adress, thanks.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 10/9/2008 6:22 PM (GMT -7)   
You can email to Bill by clicking the little envelope picture under his name on the left side of his post.

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1299
   Posted 10/9/2008 8:14 PM (GMT -7)   
Just click on my name in any of my posts and you will find my email address.
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
 
Meds: prednisone 5mg, 50mg imuran, Lotrel 40/5mg, maxide 37.5/25mg, folic acid, potassium, aciphex 20mg, multi vitamins.
 
Maintain your optimism and you can beat the odds.
 
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller
 
 

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