In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
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Thank you so much for your info -- a personal experience is exactly what I was looking for. I'm sorry you've had to go through so much. I understand that Rituxan is used widely for different forms of leukemia, I hope you're able to get some benefit from the infusions you got.
I'm hearing more and more about rituxan/rituximab/mabthera in the news. We wouldn't have noticed the articles otherwise. I suppose you recognize the headlines more when you're trying to find out everything you can about a topic. Anyway, my daughter decided not to go forward with the infusions, partly because she couldn't get answers on coverage, partly because she needed info on what to expect, it's a big decision.
We may be quiet on this forum but we read it all the time and we've learned so much, thanks to contributors like you!