Pain and joint question

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 10/11/2008 10:25 AM (GMT -7)   
I have a few questions. If one has lupus, does their joints crack everywhere? Also, does one get migratory odd fleeting pains in the joints and some muscles that can kinda pulsate and move to another part of the body?
 
How hard is Lupus do dx?
 
I have odd things going on still(including feet buzzing and non stop muscle twitching) but do not have a dx yet. Have had head mid lower spine MRI (non contrast) clear (get C spine done Mon), a nerve test and blood tests for about everything-all clear...
 
I am feeling helpless...
----------------------------------------------------------------------
33 yr old female
 
GERD dx March 2007
Migraines with Aura
IBS
Currently no dx for:  migratory joint/bone pain, extreme joint cracking, feet buzzing, fatigue and dizzy spells, bumps and indents on nails. New as of Aug-muscle twitching throughout my body. 
New as of Sept- basel cell skin cancer
 
TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH (seems to flucuate alot),T3 -Too many to list -all CLEAR
 
Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
 
 
 
 
 
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/11/2008 1:18 PM (GMT -7)   
Hi King,

Sorry you are still in limbo. I'm not familiar with the joint cracking . . . but in Lupus land we are all so different that I can't speak for the others. Not sure what "feet buzzing" is. Is it like numbness? Tingling? My feet and hands do go numb and tingle. I wonder about the buzzing because I don't know much about MS, but that might be something to ask about on their board because MS affects the nerves.

If I'm achy/sore/stiff in a certain area/areas, then those areas will be problematic for a stretch of time. I did however start with pain in the upper body and upper extremities . . . which finally (years) improved, only to have my feet, legs and hips become a big issue. I also have issues with my spine which may be a totally separate issue. Most of us, on this board, have overlapping conditions so its hard to know which disease or syndrome is causing what . . but most of it is managed in the same way.

If you TSH is fluctuating . . . that really could cause a LOT of problems. If you research low thyroid problems it can really mimic a lot of the lupus issues. Hair, skin, joints, fatigue, etc. So make sure that you stay on top of that one.

I had issues from about your age (I'm 55 now) and doctors each said it was depression. I really dismissed that dx for about 10 years until I understood how depression can really be a chemical imbalance and not necessarily a "mind over matter" issue. I always thought I was level headed, positive thinker and I didn't "feel" depressed. But when I decided after so many years of fatigue and other issues, to try an anti-depressant, I was surprised that I did get much relief. I did try about three different anti-d's to get the right one for me . . . but it was a real blessing.

After another few years, my symptoms progressed to the point where I needed other meds and a rheumatologist. Sometimes you just won't know for a long time what is causing trouble in your body. I know how frustrating it can be trying to figure out what is wrong.

Do keep track of that TSH.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 10/11/2008 2:27 PM (GMT -7)   
Thanks so much> My TSH does flucuate alot, it goes from 2.3 to 3.8 etc but all over levels w my thryoid are fine so far. I have been so depressed thinking I have MS but I dont think the joint cracking fits in there, and my MRI was clear though I get my c spine done Monday.....
 
Thank you so much...
----------------------------------------------------------------------
33 yr old female
 
GERD dx March 2007
Migraines with Aura
IBS
Currently no dx for:  migratory joint/bone pain, extreme joint cracking, feet buzzing, fatigue and dizzy spells, bumps and indents on nails. New as of Aug-muscle twitching throughout my body. 
New as of Sept- basel cell skin cancer
 
TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH (seems to flucuate alot),T3 -Too many to list -all CLEAR
 
Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
 
 
 
 
 
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/11/2008 4:25 PM (GMT -7)   
Oh . . . I 'think' those TSH numbers are fine. Do you have any rashes, mouth sores or sun sensativity (like rashes or flu-like feeling after sun exposure?). That would be another thing that lupus might cause.

I hope your issues disappear. Are you taking supplements or OTC stuff that could be building in your system?? That can cause trouble too. *sigh* Sorry you are in limbo. Not fun.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 10/11/2008 4:36 PM (GMT -7)   
No rashes after the sun..... No OTC just aciphex but have been on that along w BC for awhile.

I am so worried about MS! They did make me feel somewhat btr by stating joint cracking is not a symptom and the pain that jumps around alot would be unusual. I was given a med for my thryoid to bring it down (two dr said its a little odd that it has been so high before--4.3) but I have not taken it yet. I too still wonder maybe anxiety due to the loss of my dad

Thanks for your support........
----------------------------------------------------------------------
33 yr old female
 
GERD dx March 2007
Migraines with Aura
IBS
Currently no dx for:  migratory joint/bone pain, extreme joint cracking, feet buzzing, fatigue and dizzy spells, bumps and indents on nails. New as of Aug-muscle twitching throughout my body. 
New as of Sept- basel cell skin cancer
 
TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH (seems to flucuate alot),T3 -Too many to list -all CLEAR
 
Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
 
 
 
 
 
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/11/2008 4:56 PM (GMT -7)   
(((((( King ))))))))

So sorry about your dad. That is really hard. I lost my dad to Alzheimer's a year and a half ago. Anxiety, stress, nerves, worries, grieving . . . can all cause major body issues. Are you able to do some mild exercise, like walking or something?? You might get some relief if your issues are stress related. I started knitting and crocheting when my dad was really ill and it has turned out to be great therapy. I really enjoy it.

Make sure to keep a symptom journal and keep all those lab reports in a folder so you can refer to them later. If you have any more questions . . . feel free to ask.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 10/12/2008 7:12 AM (GMT -7)   
King, I don't really have anything to add to the great information that Rosie has given you. I just wanted to offer some moral support. I know how hard it is to be in diagnosis limbo and how frustrating it is to know that something is really wrong but the docs can't figure out what it is. Unfortunately so many of these illnesses like lupus and MS can take a long time to get diagnosed.

As far as stress and anxiety go, they can make symptoms of your illness worse or throw you into a flare. I know my body doesn't react to or handle stress the way it used to. I can just feel my physical symptoms getting worse as my stress or anxiety gets worse.

Hang in there and know we are here for you.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1299
   Posted 10/12/2008 8:01 AM (GMT -7)   
King,
 
Lupus does affect the joints and can cause inflammation.  It can also attack muscles and the combination of joint and muscle problems can cause the "cracking".  I have had that my whole life (could never have been a "cat burglar" ) but it got much worse when lupus hit my joints.  I also have polymyositis which is a muscle disease and the combination of the 2 caused muscle weakness, limited range of motion (more like no range of motion) problems.  Even though I have physically recovered substantially my joints still crack a lot.
 
Lupus can be very difficult to diagnose....for some, years.  It has been called the disease with a 1000 faces and often mimics symptoms of other diseases.  It can manifest symptoms or lab results at times and then nothing.  My case was diagnosed within a year based on severe symptoms and positive labs but I believe that I had telltale labs (low plateletes and mild anemia) for at least 15 years before any clinical symptoms.  up to that time I was perfectly healthy.
 
Have you tried to go to a clinic like Mayos? 
 
Bill
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
 
Meds: prednisone 5mg, 50mg imuran, Lotrel 40/5mg, maxide 37.5/25mg, folic acid, potassium, aciphex 20mg, multi vitamins.
 
Maintain your optimism and you can beat the odds.
 
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller
 
 


king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 10/12/2008 10:54 AM (GMT -7)   

Thanks for your advice. All my tests coming back clear, and I have had blood tests for EVERYTHING. I just cant help but worry MS due to the nerve type pains I get, but so far my MRI has been fine to though I get my neck done Monday.

I hear that non stop muscle twitches is not really a sign of MS. What about lupus?

 

 I have not been to Mayo...


----------------------------------------------------------------------
33 yr old female
 
GERD dx March 2007
Migraines with Aura
IBS
Currently no dx for:  migratory joint/bone pain, extreme joint cracking, feet buzzing, fatigue and dizzy spells, bumps and indents on nails. New as of Aug-muscle twitching throughout my body. 
New as of Sept- basel cell skin cancer
 
TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH (seems to flucuate alot),T3 -Too many to list -all CLEAR
 
Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
 
 
 
 
 
 


puccini914
Regular Member


Date Joined Jun 2008
Total Posts : 363
   Posted 10/12/2008 12:40 PM (GMT -7)   
I know that a visual field test is one of the first screening tests for MS. Has anyone discussed possibility of Fibro? I know that nerve pain and muscle pain that moves around can be present with Fibro, along with the buzzing sensation. I'd check out the Fibro boards and see if anything seems to match your symptoms. I have cracking joints, but I also have a very high RA factor, although no signs of joint damage on x-rays(thank God!) and my pain and cracking is limited to my hands, feet and sometimes back. This is such a trying time to be in DX limbo, my thoughts and prayers are with you. God Bless.

Jennifer

PCP DX Lupus and Fibro, Taking plaquenil, Cymbalta, Flexeril,Claritin, Zantac,Ambien,vitamin B-12, multi- vitamin, Darvocet.  Homeschooling Mom of 2 boys 1 and 6.  Symptoms: Fatigue, joint pain, heat/sun sensitivity, mouth and nose sores, malar rash, migranes, awful hives, positive ANA, and RF.

 

 


Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1299
   Posted 10/12/2008 1:21 PM (GMT -7)   
Don't know if muscle twitches are a symptom of lupus...never heard that.
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
 
Meds: prednisone 5mg, 50mg imuran, Lotrel 40/5mg, maxide 37.5/25mg, folic acid, potassium, aciphex 20mg, multi vitamins.
 
Maintain your optimism and you can beat the odds.
 
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller
 
 


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 10/12/2008 2:02 PM (GMT -7)   
Hi King,
 
You have ALL the symptoms of Fibromyalgia.  I'm learning more and more about it because it is now the most aggressive disorder I have going on.  My feet and hands tingle and buzz all the time, non stop. Muscle twitching is constant, fleeting pain that moves around.  With Fibro, the pain feels like it's right in the joints, but it's not.  The pain is from the muscles, ligaments and tendons that surround the joints. 
 
YOu also mentioned bumps and indents on your nails, that is a fibro symptom.  So is the dizziness and fatigue.
 
Fibro causes a metabolic imbalance in the body that can affect the thyroid, adrenal glands, etc.  That metabolic imbalance will cause those fingernail bumps, etc.
 
Your blood work came back normal, which is great!  If you have fibro, your blood work will look perfect.  But you'll feel far from perfect!
 
I'd check in with the gang in the Fibromyalgia forum.  Also mention this to your doctor/rheumy.
 
Good luck,
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 10/12/2008 2:18 PM (GMT -7)   
Gosh thanks so much Ginny. It has eased my mind some. I go in for my c spine MRI tomorrow, though my head was fine, I hear that MS can "live" in the c spine too so I want to get it checked out.
 
I pray its fibro...everything IS coming back perfect so far, I hope that remains in terms of my test tomorrow.

The thing is though, I do not have those fibro "trigger points"? Does that matter?
----------------------------------------------------------------------
33 yr old female
 
GERD dx March 2007
Migraines with Aura
IBS
Currently no dx for:  migratory joint/bone pain, extreme joint cracking, feet buzzing, fatigue and dizzy spells, bumps and indents on nails. New as of Aug-muscle twitching throughout my body. 
New as of Sept- basel cell skin cancer
 
TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH (seems to flucuate alot),T3 -Too many to list -all CLEAR
 
Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
 
 
 
 
 
 


oldhippyrebel
Regular Member


Date Joined May 2008
Total Posts : 58
   Posted 10/12/2008 8:40 PM (GMT -7)   
I'm never sure when I'm having pain how to I tell if it is muscle or joint, sometimes I can't figure out the differance. That of couse unless it is both of them at times.
Fibro since 97, Lupus since 99, neuropathy and other nerve damage.
On to many Meds to list, Finally got a date for SSA of July 1 after to many years of fighting for a hearing.


king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 10/12/2008 10:03 PM (GMT -7)   
Do you ever get nerve type pains too?
 
Also how long does your twitching last? Mine has been daily and  non stopfor a month...
 
Wish meluck on my mri tomorrow!
----------------------------------------------------------------------
33 yr old female
 
GERD dx March 2007
Migraines with Aura
IBS
Currently no dx for:  migratory joint/bone pain, extreme joint cracking, feet buzzing, fatigue and dizzy spells, bumps and indents on nails. New as of Aug-muscle twitching throughout my body. 
New as of Sept- basel cell skin cancer
 
TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH (seems to flucuate alot),T3 -Too many to list -all CLEAR
 
Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
 
 
 
 
 
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 09, 2016 6:49 AM (GMT -7)
There are a total of 2,735,276 posts in 301,288 threads.
View Active Threads


Who's Online
This forum has 151395 registered members. Please welcome our newest member, kaneben66.
299 Guest(s), 11 Registered Member(s) are currently online.  Details
JayMot, imagardener2, Loutucky, Park12, Stanislav, Huddie, Works Out, FL, Traveler, haggis, iPoop


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer