PCP DX Lupus and Fibro, Taking plaquenil, Cymbalta, Flexeril,Claritin, Zantac,Ambien,vitamin B-12, multi- vitamin, Darvocet. Homeschooling Mom of 2 boys 1 and 6. Symptoms: Fatigue, joint pain, heat/sun sensitivity, mouth and nose sores, malar rash, migranes, awful hives, positive ANA, and RF.
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
Clickable Links: Lupus Resources Lupous.Org Lupus Criteria (4 of 11) Lupus Chapter Locator
PCP DX Lupus and Fibro, Taking plaquenil, Flexeril,Claritin, Zantac,Ambien,vitamin B-12, multi- vitamin, Lortab. Homeschooling Mom of 2 boys 1 and 6. Symptoms: Fatigue, joint pain, heat/sun sensitivity, mouth and nose sores, malar rash, migranes, awful hives, positive ANA, and RF.
Post Edited (oldhippyrebel) : 10/12/2008 9:04:47 PM (GMT-6)
Clickable: LUPUS INFORMATION & LUPUS RESOURCES.
Co-Moderator: Lupus and CFS Forums
I forget sometimes that those who encourage the most, to the rest of us, are still battling the desire to do more than we are capable of doing. It makes so much sense to stop doing too much just because we are not deathly sick one day out of seven.
Also it was surprising to me that we might have an actual good day even though we are still in a major flare. I too have those days when it is really hard just to get out of bed, when it seems like I have physically forgotten how to get out of bed, or up out of a chair, or off the sofa.
I cleaned the kitchen and mopped the floor. I need to maybe rest the rest of the day. It was just so dirty. I have been doing things for my children, and letting my kitchen go unattended. I need to tell my grandson and my housemate, who live here, that the days I have to do things for my kids, that I cannot do anything else that day. they will have to wash thier own dishes those days.
My youngest daughter is a single mom raising her three sons without a husband or partner. I am all she has when emergencies arise. I have to pick up her kids sometimes. Just the way it is. and have to sit in the sun at the middle school. So that will be all I do that day.
Many thanks to all of you in so many ways. Knowing this forum is here is all I need sometimes. I can just read other people's posts, and it reflects what I am experiencing myself.