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redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 10/13/2008 11:40 AM (GMT -7)   
I knew this was coming but at the same time hoped we could just up my prednisone. Unfortunately given my bones upping the prednisone will only be tried if cellcept fails and before we try cytotoxin.
 
Can anyone offer advice or information on what cellcept is like? How long does it take to know if it is working? What kind of side effects doe people usually experience? How easy do you get sick? I will be taking 250mg twice a day along with 100mg imuran and 20mg prednisone as well as my other meds. I drop down on the imuran tonight. I begin cellcept tonight as well. I want to cry.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 10/13/2008 11:58 AM (GMT -7)   
Cellcept did not present any issues at all for me --
except near the end of the 18 months I was on it my head hair begin to thin some.

It greatly reduced the cognitive issues I was having, and increased my energy level.

I didn't have any side effects -- I took it AM & PM - 6x 500mg tablets each time, for a daily total of 6000mg.

I used Cellcept after we'd tried the Imuran - the Imuran did nothing for me.

Hope that helps,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 10/13/2008 12:02 PM (GMT -7)   
Thanks so much Lynnwood. We are trying a low dose and I am not sure anything short of radiation or chemo would do anything more to my hair since it is falling out in large quantities already.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements


catlady04240
New Member


Date Joined Oct 2008
Total Posts : 17
   Posted 10/20/2008 4:47 PM (GMT -7)   
hi I have been taking cellcept sincecoming of my 5 or 6 cycle od cytoxan as my kidneys almost shut down on me and they did like 6 months od cytoxan then i started at 500mg twice a day but now i am at 1500mg twice a day but that its helping the last time i went to the kidney dr he told me that my kidney funtion was the best its been since i started there so that is good since i moved up to this area about 4 years ago and i know that my kidneys i will have to keep an eye onthem buti know that the cellcept is working and i wouldnt want to go back to cytoxan that stuff just made me sick for 2 days after wards and couldnt do much but it worked for awhile but I now that the

Dx : Lupus may 1995 with nephritis 1995.
tx Cellcept,lopressor,prednisone , baby aspirin,. prozac,protonix, tyenol for the pain that i have daily but doesnt touch it. vitamins, calcium
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