PCP DX Lupus and Fibro, Taking plaquenil, Flexeril,Claritin, Zantac,Ambien,vitamin B-12, multi- vitamin, Lortab. Homeschooling Mom of 2 boys 1 and 6. Symptoms: Fatigue, joint pain, heat/sun sensitivity, mouth and nose sores, malar rash, migranes, awful hives, positive ANA, and RF.
OK - More questions: Bumblebee - anti LA & anti Ro? I've had the following tests besides ANA:
Rheu Factor Qual
All were negative.
I looked on labtestsonline.org and the last three came up as something to do w/ EBV!? I'm guessing the acronyms are just different for some labs....but do you see or recognize what you would expect to see? And to be fair, I looked back at the copies of my records which I obtained recently, in which she states she "discussed the possibility of an UCTD". As I recall, she told me that was the dx for now, based on nothing more definitive in the labwork. The last ANA in May was 1:1280. She offered me Plaq at my initial vist (I just wasn't ready). At the May visit she again really emphasized how safe it was - but I wanted to wait and see what the bloodwork showed. Since the ANA had doubled again I expected the Rx, (and I was ready) but the nurse said she wanted to wait. So I'm confused.
This would be easier if she was in town - the traveling complicates matters. And when I finally get those 15 minutes with her, I have a hard time getting all my symptoms, questions and concerns laid out coherently. Ok - enough already - you've all been there.
I'll need to relate to her my flare in July, and September and I'm hoping for time for 3 major questions: 1) What is it you think I have beyond fibro in the AI dept.? 2) Is it time for Plaquenil - why or why not? and 3) ....well, I can't think of the third. Any ideas?
Thanks - I appreciate all the responses and just wish I'd been "clued in" about this forum long ago.