elev. liver enzymes and flare

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lucysgd
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Date Joined Jun 2008
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   Posted 10/16/2008 7:40 PM (GMT -7)   

 
hippimom2 said...
I get high liver enzymes sometimes too and they seem to correspond to times when I feeling pretty rough and then they go back to normal. My rheumy says there is probably some inflammation there and if my numbers ever stayed elevated for too long, I'd have to see a specialist. Luckily that hasn't happened yet.
 Hi Hippi!
 Do you get a fever with your "rough times" when the liver enzymes become elevated?  I have somewhat fluctuating liver enzymes that also seem to correspond to flarish times -and then when I've had an all out flare with fever and all the trimmings, they get really high. 
 
I've wondered if this is a separate issue - as in "autoimmune liver something or other" as opposed to being a part of the lupus/CTD.  I had a flare in July that had my liver enzymes in the 100's and CRP through the roof, as well as a lowered white cell count.  Sed rate was nl.  Had bloodwork every 2 weeks and they were all back in the good range after 4 wks.
 
I'm glad your numbers come down, too - but what does it mean?  Does the flare cause the elev. liver enzymes - or do the elev. liver enzymes cause the flare?    
Lucy
 
 

diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; CEBV 2005; UCTD (dx limbo) 2007
meds:  occasional low dose xanax for sleep, artificial tears w/ ointment at night, ibuprophin (none of which manages the problems very well!)
 
We cannot avoid the birds of sadness flying over our heads, but we need not let them make nests in our hair. 
       ~~ Chinese saying as quoted by Helen Nearing


cured4real?
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Date Joined Dec 2005
Total Posts : 1944
   Posted 10/16/2008 10:00 PM (GMT -7)   
Hi Lucy--
I have liver disease and my autoimmne disease presented with sky high liver enzymes. I strongly urge anyone with high liver enzymes to have a hepatitis panel run. Helpatitis of all kinds can wax and wane (called chronic hepatitis). Believe me that you don't want to mess around with that. I would check with your rheumie to find out if he or she ran a hepatitis panel on you. You can get tested for free or low cost at te health depts in the US. It is suspected that many more people have hepatitis than are reported. You can have it andnot know it and it can cause autoimmune conditions.

Your rheumatoogist would be the right person to run the AMA anti Mitochrondrial autoantibodies test for PBC but thatis not always conclusive. There is another liver disease Primary Sclerosing Cholangitis (or something like that) which is also strongly associated with autoimmune disease.

Metabolic Syndrome, also known as "Pre-diabetes" is a very real condition associated with Non-Alcoholic Fatty Liver Disease, which is what I have, and it is one of the primary reasons forliver transplants now. It causes off and on rises in liver enzymes and can result in cirrhosis and even death if untreated. Prediabetes is a very serious condition as, in some people, the prolem may be less a problem with thepancreas than the liver, as in my case. Actually, I'm told my endocrine problems triggered my "prediabetes" and sudden acute liver disease.

If you take prednisone during flares or simply crave a lotof sugar and eat it (or carbs) you may want to get a blood sugar meter from any pharmacy--they are cheap-- and monitor your sugar. The booklet gives a normal range, and if you fall below and above, during the day, you need to let your doctor know.

An A1C is not a good predictor of prediabetes due to insulin resistance or hyperinsulinemia. A simple blood test of insulin will show hyperinsulinemia--prediabetes. Dietary modifications and certain diabetes pills (I take metfomin--as does my dad, it is hereditary for us) are thing that can be very helpful in preserving your liver, keeping from gaining gobs of weight and help me feel better. There is treatment for this oondidition, which is very common.

It is thought that insulin resistance (prediabetes) comes from our excess consumption of carbohydrates to the point that the cells become resistant to the excess of insulin produced. Over time, the pancrease burnsout from producing toomuch insulin all the time and insulin dependent diabetes develops (where you have totake shots of insulin). The disease has really become a problem since the proliferation of complex carbs and junk foods.

Since prednisone raises the blood sugar, it stresses your liver, which plays a role in metabolizing sugars. My condition is called a glycogen storage disease and is common in people with endocrine problems.

I hope this helps. I would get checked for the hepatitis (get your labs) and see if they will run theblood insulin test for prediabetes (Non Alcoholic Fatty Liver Disease--NAFLD). I know several people who would be dead if it weren't for glucophage from this condition and one is me and another my father. Also, a simple ultrasound of the abdomen and liver can show alot, but you would probably have to see a GI or hepatologist about it.

I wouldn't assume its lupus until I know its not. You are right tobe concerned and if you can, you might just want to get copies of your elevated liver labs and on your own see a gi or hepatologist for a consult and testing. Also, Ibuprofin is a bigno no if you have elevated liver function tests. They need toput you on someting easier on the liver.

Another thing to know is that when liver tests are low, they are alsobad. Liver enzymes are produced by the liver as a response to injury, but when the liver is damaged with fibrosis or cirrhosis, it can't produce liver enzymes, so they become useless in cases of liver damage. They may not be elevated in some forms of liver disease.

Fat around the rib cage, swelling of the stomach that comes and goes, pressure under the rib cage and diaphragm and pain in the right shoulder even through to back, right upper quadrant pain are typical of liver problems. Jaundice can be difficult to see if you are tanned or have dark skin so whites of eyes and under the tongue are areas to look at.

I hope you get checked out soon. I worry about it since I became so ill so suddenly. I also became very disfigured. Its not pleasant.

Take care and I will be praying that everything is okay.
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn


hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 10/17/2008 7:33 AM (GMT -7)   
Lucy, the liver thing is still a little bit of a mystery to me. Like Marji said, make sure you get a hepatitis panel done and that it includes the test for lupus of the liver. There are also some other tests that probably should be run too.

For me, it seems like my flare caused the liver enzymes to be high and one of my docs saud it was most likely inflammation of my liver from my flare since my hepatitis panel came back negative. I do usually get a fever with my flares and with the elevated liver enzymes. THankfully my labs usually go back to the normal range and I haven't had to see a specialist yet. It's weird how labs can fluctuate so much.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

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lucysgd
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Date Joined Jun 2008
Total Posts : 669
   Posted 10/17/2008 2:36 PM (GMT -7)   

Marji - wow - I'm still digesting all that  information - thank you!  I probably do lean towards the metabolic syndrome - my genetics have blessed me with chronic badly elevated cholesterol no matter what I do with diet, etc., and I can't seem to take the statins safely.  I did have a heart cath done in 2005 and it was all clear - which was a relief, but not a guarantee.   And I have always craved sugar sugar sugar (preferably chocolate).  I'm better at managing it now - but it's hard.  The rest of my diet is very healthy.  Fasting glucose tests are always fine, but I don't suppose it would hurt to monitor once just to see what happens with the blood sugar meter if it isn't too expensive. 

I've had hepatitis panels done - initially in '97 and again in 2005 with the fever/flare business.  They were always negative except for one strange thing....in '97 the doc told me I obviously had had Hep B vaccine because I had antibodies, but I never had.  She said I must have been exposed at some time, then - but I really never had symptoms - so it's a mystery.  

Anyway - if it wasn't causing the problems then, I doubt it is the problem now - but you've convinced me to check into it some more with the docs.  I see the rheumie in 3 weeks.

Hippi - what is the test you are referring to, to make sure I don't have "lupus of the liver" - and what is that exactly?  My LE's always go back into a good range as well. Do you have a CRP done when you are in that kind of flare and are testing the LE's? 

I know there is plain old "fatty liver" that can cause the fluctuation as well - and all one can do for that is weight loss, basically.  Also - I've been getting acupuncture treatments and was told that a glass of water with the juice of at least half a lemon  in the morning is a great natural and mild liver cleanse.  I'm going to start trying that. (along with weight loss - I've managed about 10 lbs this summer - 30 to go!)

Thanks for the help!

Lucy

 


diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; CEBV 2005; UCTD (dx limbo) 2007
meds:  occasional low dose xanax for sleep, artificial tears w/ ointment at night, ibuprophin (none of which manages the problems very well!)
 
We cannot avoid the birds of sadness flying over our heads, but we need not let them make nests in our hair. 
       ~~ Chinese saying as quoted by Helen Nearing


hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 10/17/2008 4:27 PM (GMT -7)   
The medical term for lupus of the liver is autoimmune hepatitis or lupus hepatitis. I'm not sure what the specific test for it is, but I bet it can be included in the hepatitis panel. Usually when I am in a flare, my rheumy tests several things including my CRP, my LE's, my sed rate, a CBC and my urine and sometimes some other stuff that I can't think of now. It's worth talking to your rheumy about it.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



cured4real?
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Date Joined Dec 2005
Total Posts : 1944
   Posted 10/21/2008 8:50 PM (GMT -7)   
Lucy--
There is something that can be done for fatty liver--glucophage (metformin), which is a diabetes drug. It causes the liver to stop storing sugars as fat in and around the liver and helps to increase sensitivity to liver. I would strongly urge you to get a blood "insulin" test, you may have low blood sugar, most diabetics have that for years before it goes high, and then you can have highs and lows. Since you have antibodies to hepatitis B, I would see a hepatologist at least once for a consult. Your rheumie shouldn't have a problem with that. There are also other forms of liver disease that mimic lupus really well or run with lupus, like Primary Biliary Cirrhosis and Primary Sclerosing Cholangitis. I will find links and post. When you see the criteria for the disease, it reads almost the same as that for lupus. Distinguishing between the two seems pretty difficult. So many people I have know have symptoms of liver disease and conflicts with diagnosis. Hepatologists are really good docs, and they can do a few special tests that will shed a lot of light on things. And help you determine if you have fatty liver.

If your doc tells you all they can do for fatty liver is for you to lose weight--which is impossible with fatty liver--then you need a new doc. Glucophage saved my dad's life and mine. It is the only thing that has kept me alive from the liver standpoint--I would have progressed to cirrhosis and end stage liver disease long ago. My dad has cirrhosis from fatty liver but on glucophage, he runs five miles and is extremely active and alert and overall, very very good health otherwise. So it makes a huge difference.

You might ask the hepatologist you go see, if you go, if they treat fatty liver with with glucophage, not because you need it, but it is a sign they are up to date on their knowledge. Take care and I hope everything works out alright.

Here are the links
For Primary Biliary Cirrhosis
http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=2266722

Score yourself (like the lupus criteria) for incidence of Autoimmune Hepatitis (liver disease) and "overlap syndromes" like lupus and sjogren's, etc.
http://www.uscap.org/newindex.htm?94th/shorth37-3.htm

I hope this helps. Take care and let me know what you think. Like many things in medicine, the patient's diagnosis seems to rely in part on what type of doc is doing the diagnosing. That's why we seem to see so many specialists, I guess. to get a whole picture.



Difference between AIH1 and 2 and PBC by bloodwork:
http://www.questdiagnostics.com/hcp/intguide/jsp/showintguidepage.jsp?fn=Immuno/TS_AIH.htm
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn


lucysgd
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Date Joined Jun 2008
Total Posts : 669
   Posted 10/22/2008 10:35 AM (GMT -7)   

Hey Marji,

I really appreciate all the information you've provided.  It's  a bit daunting and scary while reading through the links you sent, to think of yet another source of problems, but I think you're right- it's something that needs to be investigated.  My Pcp did tell me that exercise and weight loss were the only things to do about the fatty liver if that is what causes the fluctuations in the LE's.   And I think because while I've been his patient the LE's only jumped to triple the nl's one time during the last flare in July - he hasn't been very alarmed by the 2-5 points over the top of the normal range seen occasionally on other tests.  He is concerned about the elevated cholesterol - for which I can't seem to tolerate the statins, and is a genetic thing in my family along w/ heart disease on my dad's side.  He also defers to the rheumie, who tells me to have my pcp monitor the liver......aaacchhh!  You know how this goes.....

I see the rheumie in 2 weeks.  I plan to talk to her about all this.  Like I said - I have had hepatic panels run - but nothing shows up that evokes further testing in that area. Probably the hardest part will be finding a good hepatologist.  I don't know of any in my immediate area - but I have to travel to the rheumie as well.   I'll keep you posted, Marji - wish me luck getting all my questions answered at the rheumie appt!  I really do appreciate all your help!

Lucy


diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; CEBV 2005; UCTD (dx limbo) 2007
meds:  occasional low dose xanax for sleep, artificial tears w/ ointment at night, ibuprophin (none of which manages the problems very well!)
 
We cannot avoid the birds of sadness flying over our heads, but we need not let them make nests in our hair. 
       ~~ Chinese saying as quoted by Helen Nearing


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 10/24/2008 9:26 PM (GMT -7)   
Hi Lucy--
Most hepatologists are pretty good, though I did get one really bad horrible one. Because the procedures they do in some forms of liver disease can kill a person, they have to be really good. Not saying you need those things. Heck, I don't need them. Just know they have to be really good. The fatty liver causing your raise in liver enzymes is called steatohepatitis and I strongly disagree with your PCP. Any consistent elevation in your liver enzymes needs to be evaluated by at least a GI, if not a hepatologist. I prefer hepatologists. I have known people having to get liver transplants because they were not treated properly for steatohepatitis. It may take a while for one's liver to get bad, but it will as long as the enzymes keep rising, even if they go up and down, and steatohepatitis, which is more severe than fatty liver because your liver enzymes are elevated, indicating inflammation, will cause one to become very obese and pregnant looking, develop worse neuropathy, and possibly full-blown diabetes.

Basically, your pcp doesn't know what is wrong with your liver, is not qualified to review and diagnose properly from bloodwork and a liver ultrasound--which is required to diagnose fatty liver. Also, with the hep B antibodies, you remain a risk to your family and those you are close to should you have blood to blood contact. Just because the hepB virus is not active at the time of your last test doesn't mean that it can't come out of remission, especially on immunosuppressants and steroids for lupus. In fact, you might google viral hepatitis and lupus and you will see that lupus can be a consequence or occur with viral hepatitis commonly.

The possibility that you have two liver diseases and elevated enzymes would send me running to a hepatologist. Doctors did not take my steatohepatitis seriously, called it "fatty liver" and told me to exercise for twelve years before a good hepatologist did the right thing and put me on glucophage, an approved treatment for steatohepatitis. I am now being seen four times a year at a transplant center because the disease progressed as far as it possibly could before becoming End Stage Liver disease--which means you are terminal--dying. Most of my docs agree I will likely die of liver disease.

Some things you can look forward to dying of liver disease:
Stinking bad because your liver can no longer process toxins and you can't wear deodorant or perfume because the chemicals will put you into liver failure and kill you
Lots of gas, loud and embarassing
Lots of water weight, causing you to look odd
Very bad skin and nail changes that are permanent
Huge blood vessels showing through your skin
Yellow tint, pigment changes, lots of red patches, liver spots, even open sores
Lots of very serious GI problems
Restrictions on food, moving to soft diet, liquid diet, very low sodium, potassium, sugar
Severe, severe fatigue
Kidney problems
Inability to take many meds, especially pain meds, though you are in pain
Inability to tolerate surgeries due to anesthesia, no pain meds during procedures
Spinal and joint problems
Tremors
Dementia--sometimes severe--severe mood changes
Itching, really bad sometimes

This is just a partial list, but it is bad enough. This stuff happens over years in some cases. You might not even notice you are having some problems until they get bad and you have irreversible damage.

I'm trying to help you so you don't end up like me. I've been told I'm dying, slowly, but the next five years will be critical for me to try to turn things around. If something bad happens, called "oxidative stress", I progress to cirrhosis and could get very sick very fast. It's funny a benign drug like glucophage can help so many people avoid death and my doc told me there may be a possibility of reversalin some cases, but it is not likely for me because I have other diseases. Please, learn from my misfortune and find a good hepatologist and don't give up until they fully diagnose and TREAT with medication your condition(s). I don't mean to sound harsh, I just care and I'm in your same boat, with HCV antibodies and steatohepatitis (fatty liver with inflammation--the most severe form of fatty liver disease). There is no way a pcp should be trying to manage this.
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn


lucysgd
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Date Joined Jun 2008
Total Posts : 669
   Posted 10/25/2008 11:19 AM (GMT -7)   

Marji, I am sorry that you've been through so much with your liver problems.  It sounds pretty awful.  And I appreciate your strong warning not to ignore signs and symptoms, or to be brushed off by my pcp.  I promise you I won't.  But I feel I need to reassure you a little bit....I don't have persistant elevated liver enzymes - they are generally related to flare increases and go up a little bit....and then go back down into an excellent range.  I've had 3 occasions (over the last 11 years) in which they got a good bit higher - but these were during incapacitating flares that included fever, headache, joint pain, yada yada - that lasted about a week - and within 3-4 weeks the LEs were back to normal, along with everything else.  They are not consistently elevated. 

Also - I was told in '97 that I had Hep B antibodies - which would indicate that I'd either had the vaccine or had developed antibodies on my own, possibly from an unknown exposure.  But it was of no concern to the doctor because I did not test positive for antigens - which meant, she said that I had no sign of active Hep B virus.   And when I had another hepatic panel done in 2005 - since the surface antigens were all negative again  for hepatitis A,B,C - the lab canceled the test for antibodies, indicating that without antigens - the presence of antibodies was immaterial.....which aligns with what the doc said in '97.

I did a little researching on Lupus and elevated LE's.  One of the things that came up was this: "Liver enzyme elevations often occur early in the illness in the absence of therapy.  Aspirin treatments may induce such elevations.  Chronic hepatitis is only occasionally observed in patients with SLE."   Because my LE's seem to raise most specifically when I also have significant fever I've been controlling with Advil/Tylenol - this does seem to apply to me, too. 

That said, I still fully intend to discuss this with both my rheumie and my pcp, and make sure we are monitoring it closely.  I do (now)  understand the dangers of PBC - and how it can manifest "under the radar" - and I don't actually have a lupus diagnosis yet - so again, Marji - I appreciate you sharing your concerns and experience.  One gets very tired of figuring all of the AI stuff out - it's so hard to pin down with so many overlapping symptoms and to deal with so many doctors who are not alert to the various possibilities.

I hope and pray you will reach a turning around point and see great improvement in the next 5 years, rather than progression.  I don't mean to sound trite - but I hope you are focusing on the positive things in your life.  It's easy to get down with all that pulls in that direction and while I don't think "positive thinking" is the answer to everything - I do believe we can choose to focus on the "half full" rather than "half empty".  Please forgive me if I'm sounding preachy - I don't mean to - it's just that I'm working on this myself, trying to focus on doing all that I can do, observing and being conscious of the pleasures that are available to me each and every day (especially the little ones) .... and finding room to accept the limitations that are also a part of my life, without projecting too much down the road.  Fear is a huge joy and energy zapper. 

Thanks for the insight - I am paying attention, and I'll keep you posted!

Blessings,

Lucy

 

 


diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; CEBV 2005; UCTD (dx limbo) 2007
meds:  occasional low dose xanax for sleep, artificial tears w/ ointment at night, ibuprophin (none of which manages the problems very well!)
 
We cannot avoid the birds of sadness flying over our heads, but we need not let them make nests in our hair. 
       ~~ Chinese saying as quoted by Helen Nearing


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 10/27/2008 10:42 PM (GMT -7)   
Hi lucy,
I didn't mean to bum you out. I just see a bit of myself in you is all. I made some silly mistakes about my health by not taking them seriously and getting to the right and competent docs.

I'm sure you'll get to the doc. I'm with you, I like to believe I'm cured. But I also see a hepatologist per THEIR recommendations four times a year (used to be two). I just care is all. Sorry to be so motherly.
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn

Post Edited (cured4real?) : 10/28/2008 12:39:43 AM (GMT-6)


lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 669
   Posted 10/28/2008 4:03 PM (GMT -7)   
Hey Marji - please don't apologize, I truly appreciate your concern!  yeah I see my rheumie a week from today - and your input has helped me see the importance of the liver issue - so I will be working on that w/  her and my Pcp for starters.   I'll let you know what comes of it - I do value your opinion/experience!
Take care -
Lucy
diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; CEBV 2005; UCTD (dx limbo) 2007
meds:  occasional low dose xanax for sleep, artificial tears w/ ointment at night, ibuprophin (none of which manages the problems very well!)
 
We cannot avoid the birds of sadness flying over our heads, but we need not let them make nests in our hair. 
       ~~ Chinese saying as quoted by Helen Nearing


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 10/31/2008 9:48 PM (GMT -7)   

I'm so glad, Lucy.  Here are some gentle non-liver crushing ((((hugs)))).  I guess I see a little of myself and what I went through in you and what you are going through and just don't want anyone to get brushed off like I got brushed off and since so many people can't get to really great hepatology centers, to lt you know how glucophage has saved both me and my father's lives literally, and how I was literally dying before I found a doctor wise enough to test and prescribe it. Hopefully soon, it will be standardized enough that all docs know and don't hesitate to treat fatty liver with medication as well as trying to get us to lose weight, which is hard with fatty liver since its a metabolic problem. There are dietary things too, special diets that help alot too.

Take care and I hope everything goes alright. I'm a fine one to be urging someone to mention something to a doctor, I have a list as long as my arm right now and its so long I'm afraid to mention any of it for fear the doc will run out on me! Heck,I would!  Take care and know I care and let me know how things go. You know fifteen years with severe liver disease and other problems and I have pushed for better testing and even with the right bloodwork indicators and beind seen at atransplant center I'm having trouble getting the tests done that I've been fighting for for fifteen years. So I understand. If I had superpowers I'd send them your way. I hope all goes well for you Lucy and I'll pray that you get red carpet treatment.


Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn

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