I'm 38 years old now.I'm also a Registered Nurse.The diet and lifestyle changes have helped me a lot.As crazy as this sounds i feel Lupus came into my life for a reason.I wanted to make changes for such a long time due to my family history of hypertension,heart disease,cancer and diabetes.The diagnosis of Lupus pushed me to make changes in my life NOW and not wait until i become more symptomatic or sicker.....I still take the Plaquenil 200mg twice a day but i dont think the meds alone helped me get to where i am now.I dont like taking medications at all and was VERY resistant to taking the Plaquenil when it was prescribed to me.So far,i have not had any negative side effects to the Plaquenil.Knock wood...
I do get protein from Fish(salmon and/or flounder) and i also have organic eggs from time to time.If you can tolerate beans then beans are a good source of protein and when combined with either rice or pasta the protein is more ''complete''.Though according to Dr.Weil people with Autoimmune diseases should have a LOW protein diet.Go to his website www.drweil.com and check out his food pyramid.You can eat chocolate but let it be DARK chocolate with at least 70% cocoa.When i crave sweets;i dont deprive myself but i wont overindulge either.Once in a while we need to treat ourselves.
Lucy look into some antinflammatory diets and supplements.They do help BUT take time to see results and LOTS of self discipline to adhere to the dietary restrictions.I take a bunch of supplements throughout the course of the day and my co-workers look at my bag of pills and just say ''how do you take all of that everyday??'' or even say ''how do you remember to take all of that''.I just make it part of my daily routine and feeling good makes me stick to it..As a matter of fact,it's time for my morning supplements now.
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I checked out Dr. Weil's site and food pyramid - and plan to get "re-started". I've been getting acupuncture treatments and was told my system was too acidic and I needed to stop sugar, dairy, raw foods and cold beverages, including water (ice water being my beverage of choice) and to try and focus on eating low acid producing foods or alkaline producing. After a couple of weeks of doing so - my blood pressure dropped pretty dramatically (I was borderline hypertensive) and I lost some weight. I did go into a flare while on vacation and got discouraged and re-introduced sugar into my life - so I know that the discipline thing is important, mainly because once you "get there" it's easier to stay there, than go back and forth.
The acupuncture took awhile as well - about 4-5 visits before I noticed some appreciable and consistent help with pain - especially back pain. In fact, I was getting close to giving up on it until the latter part of September. But it is about making inroads, however small at first, and emphasizing them, mentally and physically. In the spring, I had a hard time walking to the corner, now I can walk 20-30 min. without much pain at all. I wish I could walk further and longer now....but I at least believe I will at some point.
I want to try the turmeric and the ginger (I love ginger tea). I don't like having to take meds or much of anything - having so many sensitivities - but I do get that if something is working for you, finding a way to fit it into your routine and schedule is a small price to pay!
Anyway, thanks again for all the good info and advice! I've printed out Dr. Weil's food pyramid info and posted it on the fridge to help trigger my thinking when shopping or eating. And if it turns out that I need to start on some Plaquenil - I'll thinkof you!
Wishing you continued wellness!
Hippi- Since you're going to be doing some researching, I wanted to tell you I also have had some positive results with the EAT RIGHT FOR YOUR TYPE diet by D'Adamo. It's based on individual blood types pre-disposing your body to various positives and negatives that result from the foods you eat. It sounds kind of "out there" -but what he says makes good sense and actually lines up with many of Dr. Weil's recommendations and just my own experience with my body.
For all the blood types -all foods are listed as Highly Beneficial, Neutral and To Be Avoided. In the vegetable category, for example, for a Type O the avoidance list includes cabbage, corn, cauliflower, sprouts, red & white potatoes, mushrooms, etc. (But sweet potatoes are good for the "O".) He also speaks to health predispositions for certain blood types (like autoimmune problems). As a Type O - so many things lined up for me. When I really stuck to that diet I lost weight and felt better within two weeks. That wheat and most grains are on the "Avoid" list is what makes it so difficult to sustain.
Anyway - I'm running on here - I think the information in that book about health and diet as relating to your individaul blood type is very useful, and certainly coordinates with the acid/alkaline balance thinking, as well as Dr. Weil's plan. Wish I could loan you my copy - but I know the libraries carry it. Also you can find various lists online relating to the acid/alkaline forming aspects of foods. When you think about it - our diets and the quality/quantity of so many foods we consume, have changed drastically over the last couple decades.
Good luck with the weight loss thing - I struggle with that, too. It's mainly a sugar problem for me. I'm making some headway, though.....slowly...but I'll take the baby steps over standing still!
Sorry the link doesnt work.I think if you do a Google search you will find it....you know what is interesting?? The foods in the Nightshade family are considered alkaline but they also can cause inflammation...go figure!!
I know...and I love green, red & yellow bell peppers - they're a major vegie staple for me - and I only just found out recently they are part of the nightshade family. Another surprising one was lemon juice actually promoting an alkaline response in the body - despite it's acidic base. I eat Ezekiel bread as a rule - but am beginning to question the sprouts....do you know anything about that?
Be careful with certain sprouts.I forget which one it is but there is a particular sprout that is particularly BAD for inflammatory conditons.If i find the name of it i will send it to you.There are sprouts that are good for us such as broccoli sprouts but again they may not be tolerated well in some people with Lupus.They are said to be HIGH in anticancer,anti-inflammatory properties and also support the immune system.I never tried them though.BTW...what is Ezekiel bread? Never heard of it.
BTW....i stopped taking my blood pressure medication two days ago and my B/P is still controlled right now.This morning it is 119/78.I will continue to monitor it day and night to see if it stays down.If i can at least discontinue one medication i will be THRILLED.Though i dont want to get too excited yet.
Ezekiel Bread is a flourless low glycemic bread. It's made from sprouted grains such as wheat, barley, lentils, soybean and spelt. I started using it when I was trying to follow the Blood Type Diet (no wheat). It has more protein and fiber than regular wheat bread, and no sugar. It's kind of an acquired taste - but it works for me as toast in the morning w/ some almond butter or toasted with various sandwich fillings. It requires refrigeration. Dr Weil also approves of Ezekiel bread. Check the freezer section of the health food store or natural foods section of the grocery store if you're interested in trying it. I believe it is alfalfa sprouts that are not good for folks with Lupus. I think I read that on the Lupus foundation site - and it got me wondering about the other sprouts. I've been eating that bread for a couple years - not exclusively, but nearly so and daily.
Hope your BP has stabilized and you can stay off your med!