Lynnwood, Co-Moderator: Lupus ForumSLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, ValtrexLinks: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions
I too think that you need to put that guilt aside, and direct yourself toward the outcome of the transplant in a positive way. I would feel terrible if I could have saved my child's life by giving them a kidney, but the child or other relative would not allow the kidney to be given due to guilt.
think of the what if as your continuing life if you allow the kidney to be donated to you. Obviously your family loves you and they do not want to think of ife without you in it. Give them the chance to do this thing that will find you still in thier lives.
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Hi Judy, I wanted to respond right after you wrote this but I wasn't sure what I would say. I do know that you and the donor will be given counseling before anything is done. I am an organ donor if there is anything left that will help someone when I'm gone. You could have my kidney now I doubt you'd want it though. I do kind of know how you might feel. Knowing someone that you love and care about putting their health on the line for you would be very overwhelming. Like these others said it is a gift. One that you can't think negatively about. One that you have to be greatful for.
I've been thinking about my own transplant lately. I invision the holidays are coming. There is a couple trying to decide weather to go to see there family for christmas in texas or wait until next year. The reason they are thinking about that is because they don't know they won't have a holiday next year. Because of some accident or drunk driver or heart attack. Only God knows. They don't realize that this time next year I may be walking around with their lungs keeping me alive. I'm enjoying the holiday because they are gone. I already know that the only way I can survive is because some one else died. It's a very hard thing to actually wrap my mind around. I pray every day that God will heal me and I won't have to have this transplant. But if he chooses not to and I am blessed enough to receive such a gift I will never forget what that person has done for me.
Anyway right now you need to do everything you can to take care of yourself. exercise drop the wait. Don't stress out. No one knows what tomorrow might bring. All we have is today. That is all any of us have is this moment. So live in the moment and Thank God for all the love he has surrounded your life with.
I know what you mean. I do ok during the day but night time gets rough sometimes. My mind starts running away with me. Somtimes I think........What if they won't take me? Other times I think What if they will? I try not to get too excited one way or another. I think I could actually go dancing or somthing and get off all this stuff. Than I think right now I'm at least alive. I could go on like this for a long time. What if I don't make it through the surgery? I could be dead 6 months from now. That's why I just try to give it to God. He is in control. The only problem I have is I give it to him and than I take it back again. Well I guess I'll go make a salad or somthing. I really want somthing fattning but I will stick to the low carb stuff. It's hard to lose weight when you can't breath to exercise. Now it's getting to cold to go out and walk.
take care I'll be praying for ya