Healthy Diet Changes/Supplements

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jmartin1209
New Member


Date Joined Oct 2008
Total Posts : 5
   Posted 10/20/2008 10:26 AM (GMT -7)   
I read Fran's post with a big smile!  Will you all please share what diet modifications you have made or supplements you have began since being diagnosed w/lupus?  I'm going to try to take a proactive approach to my symptoms & see what happens.  Thanks!

hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 10/21/2008 6:49 AM (GMT -7)   
This is a good topic and one that a lot of us seem to be thinking about lately. I have found a few things that have negatively affected my symptoms, but everyone is different in how their bodies react to things. I have read that nightshade plants can cause problems for lupus - things like cauliflower, etc and also sprouts can cause problems and some people can't tollerate things in the bean family either. One thing I found that made me feel really sick is artificial sweetners and there is more and more out there about how these sweetners are like poison to a lot of people with chronic illnesses. There are people that seem to tollerate it okay though.

I did some reading about this subject yesterday and I looked at several different "lupus diets" that weren't gimmicks and seemed to be based in sound nutrition. I did like Dr. Weil's anti inflammatory diet and the nice thing about it is that you can read everything you need to know about it online, so you don't have to shell out money for a book to find out about it. Everything he says makes sense and there is info about foods that feed inflammation and foods that help reduce inflammation. It's based on eating whole natural foods and making sure you get healthy oils, while avoiding processed foods and sugary foods.  It's a pretty basic approach to a good healthy lifestyle.  Overall, I think its's just important to have a healthy, well balanced diet, which is sometimes easier said than done when dealing with a chrnic illness.


Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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peacesoul
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Date Joined Jan 2007
Total Posts : 2446
   Posted 10/21/2008 11:21 AM (GMT -7)   
Hi Hippi, have you read Dr Weil's book called Spontaneous Healing?

It's a book I had to read for one of my naturopathic courses. It's awesome. If you liked his other book, you would love this one.

As for diet, I think the most important thing in auto immune illness is to omit dairy, caffeine and sugars from the diet. That alone will keep inflammation to a lower level.

I also take Tumeric to lower my inflammation. For me, it works like a charm. I am not on any lupus meds at the moment
The world breaks every one and afterward many are strong in the broken places


peacesoul
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Date Joined Jan 2007
Total Posts : 2446
   Posted 10/21/2008 2:50 PM (GMT -7)   
I agree, hence why I said "IT worked for me"
Everyone is different and like with meds, it's all trial and error.

Turmeric has never given me any stomach upset and I had IBS and mucus colitis for 20 years.
I also need to add here, that turmeric is touted as a remedy for stomach issues.

Dairy is only one of the few foods to give calcium. If that is your only source of calcium and you omit it, then it's imperative to replace it with another source of calcium.
Why didn't your sister give you other calcium options?


The world breaks every one and afterward many are strong in the broken places

Post Edited (peacesoul) : 10/21/2008 8:14:55 PM (GMT-6)


lucysgd
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Date Joined Jun 2008
Total Posts : 669
   Posted 10/21/2008 3:00 PM (GMT -7)   

Hi Canuckgirl - I understand what you're saying - however I take it as a given that not everything that worked for someone else is going to work for me.  There are lots of obvious analogies here....certain people wear the color red and look smashing, but I look terrible in it.....I love pizza but not with mushrooms on it..... a 6AM walk would work great for my morning person friend, but not for nightowl me....

I'm not trying to minimize your point, but nobody is prescribing anything - just talking about what worked for them.  We talk plenty about medications - I don't see the harm in talking about a natural approach.  Either way we are sharing our experiences with managing various aspects of AI disease.  I've learned a lot from people on this forum - and the moderators are great about reminding us to check with our doctors about taking anything, as well as providing full disclosure about the OTCs we  be may taking to our docs/pharmacists,etc.  You mentioned you went against your sister's advice and eliminated dairy, ending up sicker.  That's helpful information as well, as is your warning about turmeric.  It's all part of trying to process our options - and listening to our bodies and instincts as well as what we hear from health care professionals  - be they naturopaths or traditional MDs.

So - I don't think anyone is implying that we can paint everyone with an equal brush - but it is precisely because different strokes work for different folks that this forum is so helpful. 

Lucy 

 


diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; CEBV 2005; UCTD (dx limbo) 2007
meds:  occasional low dose xanax for sleep, artificial tears w/ ointment at night, ibuprophin (none of which manages the problems very well!)
 
We cannot avoid the birds of sadness flying over our heads, but we need not let them make nests in our hair. 
       ~~ Chinese saying as quoted by Helen Nearing


Mariepoms
Regular Member


Date Joined Oct 2007
Total Posts : 61
   Posted 10/21/2008 5:06 PM (GMT -7)   

Hi All,

I hope we can all find a diet and supplement program that works.I think a diet and supplement program that focuses on decreasing inflammation and supports your immune system would be the way to go.I believe most of us with Lupus would benefit from taking Turmeric,Ginger and Omega 3 capsules and also B-complex(100's) EVERYDAY.The diet is something that each individual will have to see what they can or cant tolerate.Some cant tolerate veggies in the cruciferous family(broccoli,cauliflower,brussel sprouts).Turmeric NEVER upset my stomach and i do have a sensitive one.Omitting dairy from my diet helped me TREMENDOUSLY.Not just my Lupus symptoms but with my asthma and allergies.I dont use my rescue inhaler as much as i did when i was eating dairy.I'm NOT calcium deficiant at all because i'm taking calcium supplementation everyday.So for those who do plan on omitting dairy you must find another source of calcium.

Fran


peacesoul
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Date Joined Jan 2007
Total Posts : 2446
   Posted 10/21/2008 5:22 PM (GMT -7)   
almonds are a GREAT source of calcium (equiv mgs to dairy per cup) and are also a wonderful source of fats and protein.
Every cell in our body needs protein to repair and recreate so a high protein diet is a great idea for those with any illness
The world breaks every one and afterward many are strong in the broken places


canuckgirl
Regular Member


Date Joined Jan 2007
Total Posts : 146
   Posted 10/21/2008 10:56 PM (GMT -7)   
It's my sister in law and her and my brother are divorced and she is remarried also a Dr in Bejing and I live in Canada so it took me exhausting every naturopath here for free before I shelled out the money to fly there. I couldn't take tumeric it made me very ill likely for the same reason I can't eat foods made with tumeric. I like to most foods have an allergy to it as well as almonds and most nuts but didn't know until after I had taken it for a month what was doing it. So I took other supplements and things to eliminate my inflammation. I went from being bed ridden on long term disability not being able to push the buttons on the remote with such awful blood work to normal blood work, working full time 40 plus hours and losing 77 lbs through working out 4 days a week with a trainer. I don't have lupus but MCTD with an AnA of 1:2560 for over a year. So I am the last person who will tell you alternative ideas don't work. I don't really get on these boards anymore but wanted to check in to see how Hippi is doing so likely won't respond if you asked me anything further.
MCTD had a high positive ANA of 1:2560 with high positive anti -rnp using antibiotic therapy and now pretty much better. With now a negative ANA and all labs no more RNP antibody or Pain

Post Edited (canuckgirl) : 10/22/2008 7:06:35 AM (GMT-6)


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 10/22/2008 7:26 AM (GMT -7)   
You would have to eat over 6 cups of almonds a day to get anywhere near the daily minimum amount of calcium needed -- I'd suggest a supplement instead!!!

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


peacesoul
Veteran Member


Date Joined Jan 2007
Total Posts : 2446
   Posted 10/22/2008 8:46 AM (GMT -7)   
Goodness!

Almonds can be part of the daily intake for calcium. Foods are a MUCH better way to get calcium, since it's better absorbed through food than a suppliment. Suppliments should be a last resort if foods are an issue.


And I'm not really sure where I said someone should only get their calcium from almonds alone!


The world breaks every one and afterward many are strong in the broken places


peacesoul
Veteran Member


Date Joined Jan 2007
Total Posts : 2446
   Posted 10/22/2008 8:57 AM (GMT -7)   
Here is a great list of foods that are high in calcium for those who cannot or don't want to take dairy.
 
As you can see, there are many OTHER options besides almonds. I suggested almonds as one option
 
http://www.bchealthguide.org/healthfiles/hfile68e.stm
The world breaks every one and afterward many are strong in the broken places


Mariepoms
Regular Member


Date Joined Oct 2007
Total Posts : 61
   Posted 10/22/2008 11:12 AM (GMT -7)   

Hi Peacesoul

i understood what you meant about the almonds.It is one of the many sources of calcium found in food and if people eat several different sources of calcium in a day ;you can meet your daily requirement.I agree with you,it's best to get it from your diet than supplementation. wink

Fran


lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 669
   Posted 10/22/2008 11:34 AM (GMT -7)   

Hi Peacesoul - thanks for the great link for calcium rich foods and info!  I can't eat much dairy at all (strive for none) and do take a supplement - but I also try to get as much as I can from other food sources -- also believing it's the best way to go about it.  

Lucy


diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; CEBV 2005; UCTD (dx limbo) 2007
meds:  occasional low dose xanax for sleep, artificial tears w/ ointment at night, ibuprophin (none of which manages the problems very well!)
 
We cannot avoid the birds of sadness flying over our heads, but we need not let them make nests in our hair. 
       ~~ Chinese saying as quoted by Helen Nearing


canuckgirl
Regular Member


Date Joined Jan 2007
Total Posts : 146
   Posted 10/22/2008 12:27 PM (GMT -7)   
Peacesoul, I see you are in Montreal I am in Saskatchewan but am in Montreal monthly for work. I am curious about your professional knowlege of nautropath teachings I would be interested in taking a class like you had mentioned in a previous post,  the ones I have found online you actually have to be registered in the medical field and had a previous designation or classes? Would you be able to email me where you are getting your formal education in naturopath I would be curious to take the course if I can work my travel for work around it. I do have a relative who is a physician and nauturopath but she is in Bejing so with the time change and both our busy working schedules I hate to keep trying to track her down via email when she can't actually see me or run tests.

Thanks


MCTD had a high positive ANA of 1:2560 with high positive anti -rnp using antibiotic therapy and now pretty much better. With now a negative ANA and all labs no more RNP antibody or Pain


peacesoul
Veteran Member


Date Joined Jan 2007
Total Posts : 2446
   Posted 10/22/2008 1:13 PM (GMT -7)   
canuckgirl said...
Peacesoul, I see you are in Montreal I am in Saskatchewan but am in Montreal monthly for work. I am curious about your professional knowlege of nautropath teachings I would be interested in taking a class like you had mentioned in a previous post,  the ones I have found online you actually have to be registered in the medical field and had a previous designation or classes? Would you be able to email me where you are getting your formal education in naturopath I would be curious to take the course if I can work my travel for work around it. I do have a relative who is a physician and nauturopath but she is in Bejing so with the time change and both our busy working schedules I hate to keep trying to track her down via email when she can't actually see me or run tests.

Thanks

I don't have a prof knowledge of natuopathic teaching since I am not teaching. Nor am I a professional, yet.
I am in school taking courses to get my degree as a naturopathic practitioner.
To be an ND (naturopathic Doctor), you need to have a bach degree (medical background) to get admitted and the schooling is equiv. to a doctrine in allopathic medicine.
I don't have 7 yrs to spare to go to medical school nor do I want to be an ND. I want to be a practitioner.
 
I take classes here
 
 
The courses here are once or twice a week and there are no classes you can take just once a month.
 
If you're interested in taking courses in the natural field, why not take some on line courses. They offer the exact equiv. of in class courses (more expensive) and tougher, but most of these school offer private tutors who are actual NDs
 


The world breaks every one and afterward many are strong in the broken places


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 10/22/2008 6:15 PM (GMT -7)   
Good grief, lighten up! Just 'cause I was eating almonds and happened to notice how many it would take for min daily req doesn't mean I was advocating everyone eat almonds or that anyone said that's all we should eat. I could have just as easily said it takes x ounces of cheese to fill the req, but didn't happen to have a cheese label at the computer with me that moment.

Everyone please note that when you adjust your diets to contain more (or less) immune supportive foods (and or supplements) it is important to let your doctors know what you are doing. We've had discussions on nutrition etc previously and several of us have found that since these kinds of changes in intake do affect our AI disorders, it is important that our doctors are able to verify any meds we are taking that are also affecting the AI system. IE, if we suddenly eat lots of something that turns us red, the dr would need to know as s/he might want to cut back on meds that are doing the same thing.

Also keep in mind that no one, regardless of experiance or real-world qualification, is dispensing actual medical advice on HealingWell forums. HW always recommends that you check with your health care professionals that know ALL about your situation before taking action.

And no, I'm not saying anyone said or implied anything different, this is not an attack or a judgment, just a reminder.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


peacesoul
Veteran Member


Date Joined Jan 2007
Total Posts : 2446
   Posted 10/23/2008 8:48 AM (GMT -7)   
Hey Lucy or Fran, if you get a chance. Shoot me an email. I would love to hear more about your healing :-)

Jen
The world breaks every one and afterward many are strong in the broken places


peacesoul
Veteran Member


Date Joined Jan 2007
Total Posts : 2446
   Posted 10/23/2008 9:19 AM (GMT -7)   
Everyone please note. I was not advising anyone to change their diet nor was I dispensing medical advice, I was just simply saying how/where I get my calcium from.

It's also important to adivse your dr if you are going to add calcium suppliments
The world breaks every one and afterward many are strong in the broken places


oldhippyrebel
Regular Member


Date Joined May 2008
Total Posts : 58
   Posted 10/23/2008 8:02 PM (GMT -7)   
Peacesoul, are you refering to a book by Dr Andrew Weil? I don't think I've heard of the book Spontaneous Healing? Is it a new one? I bought his 8 Week to Optimum Health but haven't had a chance to read it yet.
 
I'm at a point that I'm really looking at other things to try to help. I love to get massages when ever I can afford it. and today I tried Reiki (sp)? Has any one else tried it? The massages I think really help and I've been soaking in the tub of hot water and epson salt
 
Have anyone tried that  type of stuff?? Did it work for you???


Fibro since 97, Lupus since 99, neuropathy and other nerve damage.
On to many Meds to list, Finally got a date for SSA of July 1 after to many years of fighting for a hearing.

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