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New Member

Date Joined Oct 2008
Total Posts : 3
   Posted 10/24/2008 2:14 PM (GMT -6)   
Hello my name is Beatris and i was diagnosed with lupus feb.of 2007. been about alittle over a month i had a pain on my shoulder doctor said its inflamation  my sed rate was 90 she wants me to repeat blood work in 2 weeks she gave me some methylprednisolone for 6 days dont feel much of a difference its my 4th day on the med i  also take plquenil @ night.

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 10/24/2008 9:48 PM (GMT -6)   
Hi Beatris !!

Welcome to the forum.

If the methylpred pak was going to work, I would think it would have helped noticeably by now. You are far enough down on the taper that it is likely working less now. Your sed rate was pretty high though . . . so it may not have been enough med for your flare. The plaquenil takes several months to build in your system. Have you been taking it since your dx?? Are you taking 400 mg?

I would call her and let her know that you aren't getting much relief. She may up the dose or start your on a prednisone taper. Just a thought

Keep us posted.


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted Yesterday 12:26 PM (GMT -6)   
Hi misbea, welcome to the group. Glad to have ya! Ouch that sounds painful. Not much you can do that doesn't take using your shoulder. It kind of like trying to get around with a broken foot. I agree with Rosie, that presidone should be working by now. Maybe the doc needs to give you a shot or somthing. and yes the sed rate seems awfully high. I hope you come back often and let us get to know you. I love everyone here. They are great people.
I hope you can reach your doctor and get some help.
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 Did you ever know that your my hero?

Regular Member

Date Joined May 2008
Total Posts : 58
   Posted Yesterday 4:42 PM (GMT -6)   
Welcome missbea, I don't post very often but the folks on here have been very very nice to me when I have. I'm sure they will make you feel like your at home here.
Fibro since 97, Lupus since 99, neuropathy and other nerve damage.
On to many Meds to list, Finally got a date for SSA of July 1 after to many years of fighting for a hearing.

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted Yesterday 4:51 PM (GMT -6)   
welcome. I have no been as active since my son was born in May but I agree with Rosie I would call the doctor and ask for antiinflammatories or a shot of steroids. I am on prednisone and hate it but it helps.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, now cellcept

New Member

Date Joined Oct 2008
Total Posts : 3
   Posted 10/28/2008 2:20 PM (GMT -6)   
Hi and thank u for all the replies.my doctors there on mondays and fridays and I forgot to call yesterday beside she his hard to get on the phone so now I have to wait till friday if I don't forget that's and issue with me I forget things.but the shoulder still hurts if I move it a certain way. The meds worked slightly but now a whole bunch.again thnx for ur responses
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