How much sleep do you need?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 10/25/2008 10:35 AM (GMT -7)   
Or if you feel you need more but because of responsibilities you can't get it. Can you give me an estimate of how much you need? Do you ever feel recooperated. Do you think it's the disease or depression. (which could be 1 in the same). There are days in a row where I could sleep for 20 out of 24 hours. In that 4 hours I'm watching t.v. or eating or somthing really worthless like that. Since I'm single and no kids at home and no job I don't really have a reason to be forced to be up unless of course I have to go shopping or the dr or somthing. Even when my health care worker comes over I have a hard time staying awake. She came over last week and colored my hair and trimmed it. than I took a shower and had to go to bed. sad
thanks
 
 
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 Did you ever know that your my hero?
 
 


oldhippyrebel
Regular Member


Date Joined May 2008
Total Posts : 58
   Posted 10/25/2008 2:15 PM (GMT -7)   
I'm on the other end of it even though I have some meds that are suppose to knock me out, they don't. It is getting worse, I think it is good when I can get 6 hours. Sometimes I still awake at 1 or 2 in the morning & I've taken meds that should knock me out at 9PM Sometimes I will fall asleep for about 15 min. about 5:30pm I maybe weak and not able to do much but I still don't sleep much.
Fibro since 97, Lupus since 99, neuropathy and other nerve damage.
On to many Meds to list, Finally got a date for SSA of July 1 after to many years of fighting for a hearing.


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 10/25/2008 2:54 PM (GMT -7)   
sometimes I can't get enough sleep others I can't fall asleep. I need 10-12 hours to be reasonably able to cope with the day and then I still usually end up needing a few extra hours in a nap.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, now cellcept


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/25/2008 6:54 PM (GMT -7)   
I had years when no amount of sleep was enough. Then I went through a couple of years where I could not sleep right to save my soul. But since I've been on minimal meds, I've been sleeping way better (still waking frequently though). I think the meds are part of the sleep issues . . . but it could be that the flares are more to blame. I could never quite figure it out. Anyway . . . right now, I sleep from 5 to 10 hours. Usually around 7.

As far as getting things done. When I'm in a flare and needing to rest a lot, I'm amazed at what I can do if use 5 minutes out of every 30 or 40 minutes to do something in the kitchen or throw in a load of laundry or pick up around the house. But you may be too ill to do that . . . so I'm not suggesting that you do more than you are able. But every little success builds to make you feel better and more in charge of your body. Its finding the right balance that is so difficult.

I really enjoy my "recliner sports". I have knitting and crocheting and the laptop computer for all my "rest time". If I need a nap, I feel free to take one. The needle work was a bit intimidating to start with, but there are so many tutorials online and the local senior center can sometimes be helpful too. I hope you have a hobby to enjoy. It really helps pass the time when you have to rest a lot.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 10/25/2008 7:27 PM (GMT -7)   
Before I was diagnosed, but after I started feeling 'weird' I easily slept for 12+ hours a day and still felt like a truck hit me. I was SO surprised when my rheumy prescribed a sleeping aid -- that just seemed so awfully backwards! (Before the lupus symptoms came along, normal was 8 hours for me.)

But I did as I was told, and amazingly enough I started waking naturally after about 8 hours. Still didn't feel all that great, but was awake! Took a couple of naps during the day -- would just find myself staring at something with no evidence of brain!

Then as I've gotten better (spontaneous lessoning of symptoms or management by meds, who knows?) I find that I naturally sleep 8-10 hours and don't usually need a nap. During this time I've also added a good antidepressant to the med mix - it's easy to sleep too much when bored or depressed.

But hand me some stress - mental, physical, or emotional - and my need for sleep goes straight up! And even with more sleep I'm pretty exhausted till whatever is going on passes...

If you're sleeping that much it's a good idea to discuss with your doctor, as it could be so many things...
Hope you WAKE UP :-) soon,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 10/26/2008 8:16 AM (GMT -7)   
Carol,

I love how Lynnwood puts things with such eloquence and compassion. I second what she said.

Sweetie, I'm sorry life has gotten so hard for you. Call or write and tell me how you are doing.

(((((((Pat))))))
SLE, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis, gluten intolerance.

prednisone, cellcept, plaquenil, celebrex, neurontin, synthroid, triamterene, ultram, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


suetoo
Regular Member


Date Joined Jan 2006
Total Posts : 395
   Posted 10/26/2008 11:37 AM (GMT -7)   

Hi! Everyone,

I sleep badly on a good night, but literally must be in bed 12 hours. I shower or soak in the tub when I have joint pain increases, after a 5pm dinner, then hit my bed literally, usually too weak, tired, wobbly or dizzy to stay standing any longer. Then watch tv, make a phone call or two, take my Ambien at 7 and sleep till I wake, usually around 3am, snooze, go back to dozing with the news on, and get up when the need for coffee overpowers me. Usually after begging my schnoodle to make it for me.......

sue


God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, Piroxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily and Paxil, Ambien every night.


*Kara*
Regular Member


Date Joined Jun 2005
Total Posts : 119
   Posted 10/26/2008 11:58 AM (GMT -7)   
I have been having a difficult time lately when it comes to needing a lot of sleep. Even if I sleep 10 or 12 hours at night, I still wake up feeling like I've barely slept at all and as the day goes by I get more tired. I have been finding it very difficult at work lately because of this. I have absolutely no energy and I feel as if I'm walking around half asleep. I can't think straight and all I want to do is sleep. When I get home from work I either take a nap or lay down and that will give me a little bit of energy to get me through the rest of the day and then I'm ready for bed. It's nice to hear that other people understand what it's like to feel like this. I have been trying to explain to co-workers and family, but they just don't get it.

okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 10/26/2008 9:42 PM (GMT -7)   

Hi Everyone, I'm sorry I didn't get back to you sooner. Sundays are rough for me. By the time I shower get ready and go to church I need to come home eat somthing and take a nap.

Old Hippirebel, I'm sorry you are having such a hard time sleeping. I do have times when insomnia takes over but it's about 3 or 4 days out of a month. The rest of the time I'm sleeping.

Lynnwood, it does make since that you would respond to the sleep aid. Maybe even though you were sleeping you wern't getting a recooperative sleep. I diffinently relate to the stress thing though. and boy it doesn't seem like it takes much for my stress level to go up these days. I imagine this possible transplant has a lot to do with it. Maybe counseling would be of some help. It seem like the only people that have a clue are you guys.

Kara(hugs), I'm glad you have some place to go to talk to people. This place has been a blessing to me.

Sue lol, I try to get TACO to make my coffee too. I think it's only fair. I let him out give him food and fresh water. Apperently he just thinks it's all about him lol.

Hi Patty, bless your heart. How is the move going? are the dogs enjoying there new home? So christmas in your new place that must be exciting!

Alwaysrosie, thanks for the input. I used to get more done when i lived by myself. You're right you can get quite a bit done a little at a time. I always wanted to learn how to do knitting and stuff but I'm left handed and when people would try to teach me I just got confused. I was much younger than. Maybe I should give it another try. Or if you want you can always knit me a warm bare of sockies for this winter LOL. Just kidding.

redrose, it sounds like you are right there with the other for the most part. 10 to 12 hours with a nap. Boy this disease really stinks. How on earth do you deal with a new baby? How old is alexander now?

 

Thanks again everyone, I hope you get a good night sleep.

carol 


Prayers,hopes and dreams!
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 
 


peacesoul
Veteran Member


Date Joined Jan 2007
Total Posts : 2446
   Posted 10/27/2008 4:59 AM (GMT -7)   
When I first got ill 15 yrs ago, I was sleeping 14 hrs a day (roughly), then went I started to recover a little, I would sleep 7 hr a nights.

Now, depending on what the days stresses are, I sleep from 6-9 hrs a night. And bad days, even that much sleep leaves me feeling unrested. Then yet, some nights I sleep 6 hrs and feel well.
The world breaks every one and afterward many are strong in the broken places


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 10/28/2008 9:53 AM (GMT -7)   
I'm doing this crazy, sudden "jump" awake thingy. It feels like my heart does one big pond and my jumps and wakes me up. Anybody ever do that? My body is having a time adjusting to dialysis. Before I got sick, I could go on very little sleep. Now, i'm all over the map! Judy

okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 10/28/2008 3:15 PM (GMT -7)   

Peacesoul, I love the saying you have at the bottom. It is so true. Thanks for the response.

Judy I used to do that when ever I had surgery. It would last a couple of months. I was told it was from the anestetic. It finally would go away only to come back with the next surgery. So I assumed that's what it was. However my brother does the same thing and he has never had surgery. My SIL says he does it all the time. Several of my sibs have sleep apnea. He isn't being treated for it though. So I am thinking that has somthing to do with it. Have you been tested for apnea?

hugs

carol

 


Prayers,hopes and dreams!
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 
 


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 10/28/2008 5:36 PM (GMT -7)   
Yes, I do have apnea and I recently have had a couple surgeries. Maybe it's a combination of all the stress my body has been through lately. Thanx, Judy

smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 10/29/2008 4:59 AM (GMT -7)   
I can't get enough sleep, ever. Period. This weekend I was sleeping by 8:00 pm Saturday night and was so exhausted Sunday it was a fight to stay awake all day. Monday night I was sleeping again by 8:00 pm, I am 39 years old and am falling asleep long before I even used to put my kids to bed when they were younger. It drives me crazy. I go to bed tired and wake up tired looking forward to an afternoon nap before i am even out of bed.

I hate being this tired, it isn't a good tired from accomplishing something during the day, it's just being tired beyond tired. I don't like it at all.

Connie shakehead
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.Thyroid Disease ,RA
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1548
   Posted 10/29/2008 6:56 AM (GMT -7)   
Hey Carol. I really like this thread. I've taken ambien for years, but now that I'm retired (yes, there's tired and re-tired) I've been thinking of asking my shrink about discontinuing the ambien. I know my sleep pattern would be abnormal, but all the rest of you lupies are dealing with it. Besides, the ambien just doesn't work well any more. Anyway, I take anti-depressants that keep me a happy lupie. I've had to switch anti-d's over the years, but I know I must take em. I've come to accept it. You may really need all the sleep you're getting 'cause of all your health problems, but anti-d's might help. I love you! Keep us posted. Butterflake

Dx: SLE ('05), depression, diabetes, fibromyalgia, gerd, sleep apnea, hypertension, IBS Tx: CellCept, plaquenil, prednisone, lisinopril, actos, lipitor, nexeum, prozac, seroquel, celebrex, actonel
prn: arthritis tylenol, neurontin, promethazine, ambien, flexeril, multi vit, C, flaxseed oil, acupuncture
Donna
 


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 10/30/2008 8:08 AM (GMT -7)   

I have a mixture of both.  In my good days mentally I find it hard to get to sleep and stay asleep.  In my bad days mentally I find that I can get to  sleep easily and sometimes sleep for 12 hours.  Is this yet another symptom of brain fog?

Maybe

Hester

 

 

oldhippyrebel said...
I'm on the other end of it even though I have some meds that are suppose to knock me out, they don't. It is getting worse, I think it is good when I can get 6 hours. Sometimes I still awake at 1 or 2 in the morning & I've taken meds that should knock me out at 9PM Sometimes I will fall asleep for about 15 min. about 5:30pm I maybe weak and not able to do much but I still don't sleep much.


Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 10/31/2008 10:15 PM (GMT -7)   
Carol,
My first answer was my old motto "as much as you can get". But really, I found it has to do with my asthma and sleep apnea. I am told I snore loudly, though I believe this to be a viscious lie, but I'm sure that my sleep would be better if I could get the breath right strips to stay on with my avocado green face puddin' night cream, tee hee.

Actually, my pulmonologist told me that because of my hypoxia and apnea I was not getting restorative sleep andhe had me use my inhaler and Flonase nasal spray to open my nasal passages as wide as possibe, right before I went to sleep, so I could get the max amountof air in and out when I breathed. I'm sure you are on much stronger, and different things, but I would mention it to the doc to see if there is something along those lines that they can do. My ex hubbie used a bipap/cpap machine.

I take my pain meds a good while before I decide to sleep at supper time because the hydrocodone /opiates, effect the respiratory center, they suppress it, and that causes my apnea to get worse.

I'm glad I'm not the only recliner junkie. I had a ministe come over and try to recruit me for his church and he started getting really nasty with me about how I couldn't be a good Christian and servant of God sitting there like a lump in a recliner. I tried to explain I had lupus and he just rolled his eyes. After all, "you don't look that sick."

I now force myself to sleep most nights and to wake up early, even if I did't sleep much the night before.The schedule I used to hate, is helping me alot now.

ANother thingabout sleeping is your matress, the amount of humidity (not too dry) and darkness and quiet. one of my favorite tricks is to listen to a book on tape with headphones as I fall asleep.

Usually, if I get adequate nutrition, oxygen, and have good blood counts and am not in bad pain or sick, I should need 8 hours, but have slept up to18 and even 20 hours before when not doing well. Oddly, the longer I slept after the 8 hour mark, the harder it was to stay awake and initially awaken and I fell into a bad sleep pattern. It ended up with me taking medicine to get me back on track. When my sleep was so off, I ended up using a medicine called provigil, which is like a cross between a stimulant and an antidepressant. My rheumatologist has many patients on it. I think it helped me because it felt like it had a bronchodilator type action due to the stimulant side. I guess a lot of people with lupus that he has are on it and really like it as an alternative to steroids to fight fatigue when the bloodwork isn't real bad. And it gets you backon schedule. Some other drugs are useful for that too, if you get real off.

I hope all is well with you. I've been having home issues, with those people I call family, but it's okay. Just life. Know I'm prayin' for you.
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 11/1/2008 8:43 AM (GMT -7)   

Hi everyone, I would love to answer each one of you seperately but I'm on a down hill slope right now. I started feeling pain in my back yesterday. Like a prize fighter had given me kidney punches. I'm guessing it was my lungs filling up with crap. Last night would coughing and today is way totally not good. coughing gasping for air. my esophagus feels swollen. I'm afraid I'm going to be batteling pneumonia again. cry I'll head to the hospital if it gets worse. I know the dr. always tells me not to fight it by myself because it will just get worse. But I already am on o2 and anti-b, steroids. and I hate hospitals.

anyway I just wanted to thank you all I really appreciate your input. It seems like 99% of us fall into the same category. about 12 hours plus a nap. Wow that's over half our life. Now that's depressing.

love and prayers

carol


Prayers,hopes and dreams!
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 
 


Baybreeze
Regular Member


Date Joined Oct 2005
Total Posts : 315
   Posted 11/1/2008 9:51 AM (GMT -7)   

I need 7-8 hours to feel "refreshed" when I'm doing okay. However, there have been times, while in flares, that I've almost slept all day, like 14-16 hours and still felt like I needed to sleep more.

Right now I'm not in a flare, but I do have spine problems for which I take several meds. Those meds make me fall asleep pretty quickly and I sleep about 7 1/2 hours during the week. I usually feel okay when I wake up. If I do something, like trying to walk around somewhere (store or something), because it aggravates my spine problems, I do get exhausted. Then I usually fall asleep early and feel blah for several days.

But like I said, I've had flares in the past where I was completely exhausted and sleepy all the time. My Rheum gave me Provigil to try one time. I took it for a couple days..and had to stop them. They caused me not to be able to sleep almost at all. I was lucky to get a couple hours of broken sleep thru the night. And the worst thing was that med caused my heart to race and pound, it got scary. So I quit taking them & told my Rheum I would NEVER take them again. Then he gave me Elavil, which did nothing for any of my pains, however, it did make me fall asleep within an hour of taking it at night. And I did feel pretty refreshed in the morning.


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 11/1/2008 5:55 PM (GMT -7)   
Hey Carol,
 
I'm a mixture too.  Right now I'm getting about 10 hours at night, but it's interrupted by periods of insomnia. Some nights I can't get to sleep.  It's a dog's breakfast.  I sometimes will take a one hour nap around 1pm.  But most of the time I'm good to go for about 12 hours straight.  Lately, with my fibro flaring, I need more sleep, and I don't feel rested when I get up. 
 
I think with all that you're dealing with, sleep is going to be hard for you.  I'm not surprised you need to sleep so much.  I would try to take this as a signal from your body.  It's telling you what it needs.  Embrace it right now.  Give your body everything it needs.  If you sleep 20 out of 24 hours, so be it.  You need it.  I know that's hard because you want to be up and around and productive, right?  If you let yourself get all this rest now, you'll be strong enough and healthy enough down the road to be productive.  Live in the moment.
 
Love ya,
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Zoloft, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 11/2/2008 4:22 AM (GMT -7)   
Live in the moment.
 
Love ya,
Ginny
 
Really good advice Ginny.
Hester
Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, December 07, 2016 7:07 PM (GMT -7)
There are a total of 2,734,404 posts in 301,211 threads.
View Active Threads


Who's Online
This forum has 151329 registered members. Please welcome our newest member, OleMiss1990.
364 Guest(s), 13 Registered Member(s) are currently online.  Details
whatdoigotDOC!, OleMiss1990, TOOTY, Rikky1, Bohemond, Paul's Brother, Charmed3, LG13, Huddie, ChickNorris, Suffering34, trumpet123, Tall Allen


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer