Maybe some good news

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redrose77
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Date Joined Sep 2005
Total Posts : 2573
   Posted 10/25/2008 3:07 PM (GMT -7)   
I am not sure but I think we are seeing improvement. I am better able to think and my visual has reconnected with my brain. I did 4 of the 7 assignments I was behind in one of my classes- the only one I am staying in this semester. I have a midterm to do but I think I can pass. I will eventually catch up but to do 4 assignments even if it was the easy ones is a big deal. I even feel a little better, the nausea is lessening. I am wondering if maybe the cellcept might not be able to push me into a remission if we keep at it. If nothing else it looks like it will only be 2-3 months of this. That is wonderful. I still have to do a bunch of testing to for my neuro issues but I think I can deal with it better. I am coping better with Alexander when I can sleep- yesterday I functioned on 2 hours then last night he let me get 3 hours. Hubby let me have a long nap- 5 hours this afternoon/evening. Alexander is sick along with me and so he is even more fussy than normal. What was a virus caused me to develop mild broncitis (bacterial) so I am on levaquin since my allergies make antibiotics difficult. 14 days on it but so what as long as I avoid pnemonia this year I am happy. Alexander has a true virus and it is affecting his tummy as is to be expected with a child whose reflux is as bad as his is. If you can't tell I am more co-herent even if my thoughts jump around a bit now. yeah
 
I just wanted to share because this is such good news.
 
On a depressing note I have had to face the fact I need to change my dreams to fit my current abilities. That means serious changes to my degree plan and not getting certified in archival administration because on campus classes are beyond my capabilities. I also have to face the fact I will never be able to hold down a regular job. My hope was this degree would mean I could work 20 hours a week. Hubby has been realistic all along and never expected I would be able to work. I may be able to freelance a few hours here and there when I am feeling well. Oh well, that just means Alexander will never spend hours every week in daycare and I don't have to worry about homeschooling around a work schedule. It still makes me sad. I have changed my dreams so many times because of this disease. Now I have to change them again. I hate changing my dreams just because I have lupus. I guess that is why my subject line is so iffy on if my news is good or not because being able to think more clearly brought all this home to me. sad
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, now cellcept


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/25/2008 6:46 PM (GMT -7)   
It sounds like you still have some hurdles to jump . . . but its great that things are looking up for you Redrose!

I hope your path becomes clear to you . . . . it makes things a lot easier when we have a good feeling about the paths that we chose.

Thanks for the update.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 10/26/2008 8:27 AM (GMT -7)   
Redrose,

The fact that you're feeling better is great news, and I'm sure that with a new baby, both of you sick, plus your chronic illness, the future can look daunting. When life throws us curves it can sometime knock us down. And yours is a pretty big curve. But knowing you, I have faith that you'll find away to make something wonderful out of your life, even if it doesn't match your dream.

Just to share something on a personal note, if I could have seen my current life forty years ago I would have been aghast. I'm living a life that is so opposite to what I dreamed. Yet I'm happier today than I've ever been. I have faith that you'll find peace along the way and as soon as your precious son allows you to get some needed sleep, you'll treasure every day with him.

A big hot cup of Rosie's tea for you my friend.

Pat
SLE, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis, gluten intolerance.

prednisone, cellcept, plaquenil, celebrex, neurontin, synthroid, triamterene, ultram, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 10/26/2008 4:39 PM (GMT -7)   
Thanks Rosie and Patty, I will come to terms with the changes in my plans over time. I think I may drop my last class as well because the midterm is due by 11 tonight and I can't think properly to do it. I think when I do it I will end up failing it.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, now cellcept

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