I need some advise.

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Faith's Offspring
New Member

Date Joined Oct 2008
Total Posts : 2
   Posted 10/25/2008 9:48 PM (GMT -6)   
I am new to the site.

I am out of my CellCept. my dose is 2000g/day. Diagnosed in August 2006 with SLE with Kidney Lupus. Kidney function is now normal. I also take 5mg of Prednisone(down from 40mg). Also plaquenil 200mg/day. My labs are very stable now. I sometimes have bad chest pain. I get tired easily and have joint pains.

anyways, my insurance wont pay for my drugs for the rest of the year because they have paid the max they will pay for a year. Its going to cost me over $2000. I am a student and dont have a job so I cant afford it. I applied to Roche to get the meds for free. However, I am out of meds right now. Do u have any advise as to what to do while i wait. diet? anythinng. I have been out for 4days now. How much longer do u think i will be fine without it. I still take the 5mg prednisone and plaquenil and oscal D.

Thanks guys. Great community.

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 10/25/2008 9:53 PM (GMT -6)   
Hello Faith,

Glad you found us. I hope you hear from Roche quickly. In the meantime, seems obvious, but have you asked your doctor if they have samples? Is he/she aware that you are in a pickle? If he/she doesn't have any advice, maybe call other rheumies until you find one who has a "connection".

Sorry you hit the wall on your coverage. . . that sounds really scary. But hopefully, the Roche company will contact you quickly. I bet they REALLY want to keep you on their med if they can . . . so don't be afraid to contact them with the urgency of your situation.

Hopefully one of the others here will have a better solution.

Glad you found us!!


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 10/25/2008 10:01 PM (GMT -6)   
I suggest calling the salvation army and local churches for help with your meds. I wish I could suggest more.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, now cellcept

Forum Moderator

Date Joined Nov 2003
Total Posts : 7056
   Posted 10/25/2008 11:20 PM (GMT -6)   

Have you applied to the Partnership for Prescription Assistance?  https://www.pparx.org/Intro.php

or RxAssist? http://www.rxassist.org/

Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.

Regular Member

Date Joined Jun 2008
Total Posts : 363
   Posted 10/26/2008 8:07 AM (GMT -6)   
There is also an assistance program called Xubex, you can get  180 tablets of generic paquenil 200mg for 30.00 and 360 tablets of 5, 10 or 20 mg prednisone for 20.00.   Here's theri site.         http://www.xubex.com/Default.aspx    Try to stay on plaquenil, becuase it's when you go off of it you realize how much it's working.  If I miss taking it for 3-4 days I break out in horrible hives and the extreme fatigue comes back.  It the takes about a week of beeing back on it until I can get to where I was.    PPARX.org is also a great site, but Roche is the only one offering the cellcept.  You could try calling them for an update on your application status and explain the situation, they may be able to put a rush on your order.  Best of luck to you and God Bless.


PCP DX Lupus and Fibro, Taking plaquenil,  Flexeril,Claritin, Zantac,Ambien,vitamin B-12, multi- vitamin, Lortab.  Homeschooling Mom of 2 boys 1 and 6.  Symptoms: Fatigue, joint pain, heat/sun sensitivity, mouth and nose sores, malar rash, migranes, awful hives, positive ANA, and RF.



Faith's Offspring
New Member

Date Joined Oct 2008
Total Posts : 2
   Posted 10/26/2008 9:20 AM (GMT -6)   
Thank you everyone for your responses. I will definitely check out the website Xubex. Thank u Jennifer. @ AlwaysRosie, Thank u! I already asked my doc for samples and he doesnt have any. I ll see if I can call other rhuemys for help. Thanks for that suggestion. Thank u all very much. Hope u all have a healthy week :)

Veteran Member

Date Joined Mar 2006
Total Posts : 2570
   Posted 10/26/2008 10:11 AM (GMT -6)   
Faith, Send me your email address. I know how to solve part of your problem.

SLE, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis, gluten intolerance.

prednisone, cellcept, plaquenil, celebrex, neurontin, synthroid, triamterene, ultram, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin

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